Anyone have breast implants prior to radiation?

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Hi,

Starting whole breast radiation this September. I have silicone breast implants, under muscle, about 9 years old.

My OR says there is nothing I can do to prevent CC if it is going to happen. It may or may not, and won’t be evident right away, rather in months or a year.

Anyone facing something similar?

Thanks,

NJ

Comments

  • Palesa2018
    Palesa2018 Member Posts: 140
    edited August 2018

    Hi NJMom, I have been looking for similar experiences. I am newly diagnosed and had direct to implant surgery but after the surgery turns out my DCIS is so extensive that even though margins were cleared in re-excision the BS recommends radiation. I'm all for it because I had no chemo (low oncotype) however fear capsular contracture.

    Please share your experience with that radiation with implants. I will certainly share mine. All the best to you!

  • fishingal68
    fishingal68 Member Posts: 56
    edited August 2018

    Hi,

    I had a BMX with reconstruction in February. My silicone implants are over the chest muscle. I had rads in May-June. So far, so good. No rippling, no CC. Good luck!

  • Palesa2018
    Palesa2018 Member Posts: 140
    edited August 2018

    Hi fishingal68, that is very encouraging to hear! How many sessions or what type of radiation did you have? I'm scheduled for a longer course instead of the shortened to try and minimise impact on the implants. Same effectiveness as I understand. Thank you for sharing.

  • 7of9
    7of9 Member Posts: 833
    edited August 2018

    I had radiation on left side (recurrence) with silicon implant. Sorry to be the downer but I did get bad capsular contracture...showed up a good 6 months plus after and got worse thru about 12 - 15 months then I had revision / replacement last August. It's much better though another 8 months down the road feels like it's trying to come back. Not sure if it's a timing thing or summer exercise yard work. Started PT this week and I am getting back to stretching massaging (got lax). It sucks. I find wrapping an ace bandage (probably not recommended) at night to put downward pressure on it seems to be working as the CC had the implant climbing a good 2 - 3 inches higher than my non radiated side. My plastic surgeon assured me he can redo it again or I can do the more extensive revision involving back muscle but I don't want to be laid up that long. Life moves fast and being a six year survivor I'm on the move! ;)

  • NJmom2boys
    NJmom2boys Member Posts: 31
    edited September 2018

    Thanks so much to everyone for sharing. 7of 9, so sorry to hear about your situation. The docs say it won’t show up immediately, but as you say further down the line. Can’t avoid rads, so hoping for the best. Is there anything they suggest to help reduce risk? Massage? My RO says no. Best of luck to everyone.

    NJmom

  • Palesa2018
    Palesa2018 Member Posts: 140
    edited September 2018

    Hi, my plastic surgeon put me on Singulair (montelukast) to reduce the likelihood of capsular contracture. Here is an extract from an article I read:

    "Effects of Singulair (Montelukast) Treatment for Capsular Contracture.Capsular contracture (CC) is one of the most common complications of breast augmentation surgery. ... Therefore, leukotriene antagonists Accolate and Singulair have been prescribed by plastic surgeons off-label to treat and prevent CC."

    Again, no guarantees. Just hoping for the best. I start radiation in a couple of weeks.

    Best wishes to all

  • Lavenderlee
    Lavenderlee Member Posts: 27
    edited December 2018

    I am another one of the gals who has had implants placed prior to radiation - wasn’t expecting adjuvant treatments or we would have used TEs. I am on Singulair oral to help prevent capsular contracture and feel okay (tan with a little dermatitis) at 18/33 treatments. Hope everyone is doing well to this day with implants post rads.

  • Palesa2018
    Palesa2018 Member Posts: 140
    edited December 2018

    I completed rads with implants in October. Still taking Singulair and massaging with tissue oil daily. Some stiffness to the breast but not too bad. I'm not consistent with stretch exercises which is important. Giving it a year then will see PS if any adjustments needed. I've also lost a lot of weight since surgery and the implant seems to have dropped somewhat.

  • InnaB2018
    InnaB2018 Member Posts: 1,276
    edited December 2018

    In her book Breasts: The Owner’s manual dr. Kristi Funk advises this protoco to avoid capsular contracture: Singulair for 3 months starting the day of radiation, Trental for 6 months starting two weeks after the end of radiation. Vitamin E for 6 months along with Trental.

  • Prandall3
    Prandall3 Member Posts: 2
    edited January 2019

    Hello ladies, I will be completing chemo in February and looking at the next stage of my treatment journey. I had a double mastectomy with the first stage of reconstructive surgery (expanders in place). Reading the various comments and recommendations is very comforting! I am trying to decide which route to go, implant then radiation or FLAP surgery then radiation. I've been doing research and heard women have more complications with the implant (CC, pain, loss of mobility, etc) vs. women who go the FLAP route. Do you mind sharing why you choose the implant route vs. the FLAP? Also, has anyone undergone a FLAP surgery? If so, can you share your experience? Thank you for taking the time to share experiences. This is a complicated process to navigate and requires a village of survivors to help guide the process. Thank you!

  • charleysmom
    charleysmom Member Posts: 11
    edited February 2019

    I realize this is an older thread, but I’m trying to get information on having radiation with breast implants that were not a part of BC reconstruction. I have 27 year old saline implants. No problems with them. I now will have a lumpectomy on my right breast then radiation. One surgeon (2nd opinion) suggested a mastectomy just because I have an implant - then replace it plus replace the one in my left breast. There is nothing wrong with my left breast nor my left implant. It would be purely for ‘symmetry’.

    My initial surgeon (that will do the surgery) didn’t seem to think my implants would be an issue. My goal is to get rid of the disease. My thought is if I have CC down the road I can always have new implants. But I don’t want to have a mastectomy because I may or may not have CC.

    Thoughts? Anyone with this experience?

    My surgery is scheduled for March 14.

    Thank you

  • Palesa2018
    Palesa2018 Member Posts: 140
    edited February 2019

    Hi, I have done radiation post implants after double mastectomy. As some say, radiation is the gift that keeps giving in more ways than one. In the first three months post radiation everything felt fine but lately I'm experiencing serious tightness in the radiated breast. Perhaps signs of CC? I am still taking Singulair so things are soft to touch but feel tight.

    I tend to go for the most extreme treatment even if not necessary because I want to throw everything at this disease that's why I did the double mastectomy.

    All the best.

  • NJmom2boys
    NJmom2boys Member Posts: 31
    edited February 2019

    Hi Charleysmom,

    I am the original poster on this thread.  I know each case is different, but I never heard of having a mastectomy just because of having implants.  Not all women will incur problems with their implants due to radation, and some have slight change that is not problematic.  Yes, CC is a possibility, but why jump the gun.

    I had a lumpectomy on my left breast, had under the muscle silicon implants prior to diagnosis.  Not one doctor suggested a mastectomy because of implants.  (I did go for several opinions) Again, I understand each case is different, and there may be more factors involved, but for me the implants would not determine going from a lumpectomy to a mastectomy.

    Talk to your RO.   Mine was just phenomenal.  I did go to a very well known hospital and had a top doc.  I think the key for me was being comfortable and trusting my doctors.  There was a big difference in going to the RO in the top hospital as opposed to the one locally in that the local doctor didn’t care what my personal situation was, he was just administering a set dose of radiation over a set amount of weeks. Everyone that had DCIS (no matter grade, size, etc.) got the same treatment.  The RO I went with tailored my radiation to what MY diagnosis was.  Took everything into account.  So if I went local I would have had 6 weeks radiation whole breast, but I went to NYC and had 4 weeks, the last week being the boost, and not whole  breast. The travel was nuts, but it was so worth it to feel comfortable with my decision.

    That being said, I was nervous about CC.  I am 6 months out and (knock on wood) just fine.  I do still use the Calendula cream religiously.  I will do that for at least a full year.  My opinion would be you can cross that bridge if it ever comes, but why cross now.  Again, just my thoughts.

    I wish you the best of luck.  I know how stressful this is.  

    Sincerely,

    NJ


  • charleysmom
    charleysmom Member Posts: 11
    edited February 2019

    NJmom2boys - thank you so much! That's exactly what I think...why have a mastectomy because I have implants and MIGHT have CC? The 2nd doctor was very clear that it had nothing to do with a better prognosis for the cancer, etc. She said lumpectomy+radiation, for me, would yield the same result as far as survival rate. I would have a mastectomy in a heartbeat if that's what was needed to rid myself of BC - but not solely for preventive measures regarding CC.

    Thanks for the insight about the RO - I don't have one yet (or at least haven't been given his/her name). I do think I'm in an area with some top notch doctors - I'll seek some recommendations and see what options I may have. I realize that each step of the way requires research and decisions. It's almost a full time job!

    I'm happy to hear you're still doing well with regard to CC. That's great! And very encouraging.

    Thank you again,

    charleysmom

  • NJmom2boys
    NJmom2boys Member Posts: 31
    edited March 2019

    Hi Charleysmom,

    You are right. You don't meet the RO until after the surgery. I just “jumped the gun" lol as is my nature in a way....always wanting to know what is next, especially knowing I had implants in the mix.

    I had zero confidence in the first doctor I met. He came highly recommended through a friend, was local. As I mentioned, everyone is treated the same.....no matter what the type of DCIS. I went to a surgeon in NYC, again through recommendation. It was the difference between night and day. They are at the forefront of research, top of the line equipment. She used something called the margin probe in surgery to make sure margins are clear of cancer. They use the savi scout to place the marker prior to surgery. And what a difference in approach and treatment. As I mentioned, I LOVED my RO. It is important to feel confident in your doctors. I was treated for what I had, not a blanket treatment.

    As far as my lumpectomy, 10 days later I was back to running. I ran through my 4 weeks of radiation, fatigue was never an issue.(Calendula cream was and still is my best friend) I did have my Mom living with us which was a huge help being it was Septmber and back to school ( I have 3 kids). So with the support of my family, the hardest part for me was the travel. 2 hours each way for a quick treatment of radiation. Worth every minute as far as I am concerned to feel at peace with my decision.

    Best of luck to you,

    NJ

  • CTLMom
    CTLMom Member Posts: 56
    edited March 2019

    Hi, I just wanted to put my 2 cents into this thread. I had a left side mastectomy in 2007 and 4 rounds of A/C with no radiation. I had a tissue expander (done at the same time as the mastectomy) and after several months had the permanent saline implant put in. Fast forward to 2013 and I was diagnosed with a local recurrence in the mastectomy scar. After having head to toe multiple type scans showing no metastatic disease I had the lump excised. Final pathology came back again showing no lymph node involvement. After healing I began rads which consisted 6,000cGY. Several months after finishing rads I began to notice increased tightness and changing shape in the left "breast". Over the next couple of years it got increasingly worse till June 2015 I developed cellulitis and was hospitalized for 5 days until it cleared up. From that point forward my "breast" was so incredibly tight and painful that I ended up having a lat flap surgery in 2016 in order to cut out the radiated tissue and replace it with the muscle and tissue from my back. What I didn't realize when I agreed to this surgery is that the radiation damage was in my back/shoulder/rib areas in addition to the chest wall. I have been in PT for 3 years and also had HBOT to try and help. In December I had the implant removed and went flat in the hope of relieving the pressure and tightness that wraps around my left side. It helped a little but I am still in pain every day and deal with spasms in both the chest and the mid back. My oncologist suggested a bone scan to rule out any possible metastatic bone involvement causing my pain. She didn't feel that was the case but it was more a situation of ruling it out. The scan came back clean. I have recently seen the cancer rehab specialist my oncologist referred me to who said that have radiation fibrosis syndrome. She prescribed Trental and vitamin E. I have not been on it long enough to know if it will help. I'm sorry to sound like Debbie Downer but I wanted to share another side of what can happen with radiation when you already have an implant.

    Thanks,

    CTLmom


  • duffyzmom
    duffyzmom Member Posts: 261
    edited March 2019

    I thought I'd post here as I've had a new development. My implants were sub muscular silicone and 2.5 years old when I had radiation this fall. In January a noticed a lump in the radiated breast. Following an US and Breast MRI it has been determined the implant has ruptured. Better outcome than a recurrence of the BC but am not looking forward to another surgery. I'm scheduled to see my PS this week and scheduled for an implant exchange surgery at the end of the month. I'm sure we'll never know if the radiation is what caused the rupture but I assume it played a role.

  • Sgold1023
    Sgold1023 Member Posts: 3
    edited June 2019

    Good morning. I was just wondering what you ended up doing with your implant situation. I have 6 yo silicone implants and will have a lumpectomy and then radiation. I was going to downsize my implants and I may still. THe PS seemed wary of doing that and then doing radiation but the radiation oncologist felt okay about doing it. The PS seemed to also feel why have implants at all, just do fat transfer and avoid any potential complication. I am unsure what to do.

  • Spoonie77
    Spoonie77 Member Posts: 925
    edited June 2019

    Sgold - While you wait for others to chime in, this thread may be helpful to you too. Radiation After Silicone Implants

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