Roll call - Oncotype Score, Length of Time and If Recurrence

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Sadlynew2018
Sadlynew2018 Member Posts: 222
edited April 2019 in Chemotherapy - Before, During, and After

hello everyone! Thought I would start a thread to see how Oncotype scores have been doing. I understand there are a lot of factors that play into a recurrence. If possible, can you comment on your score, how long since diagnosis and whether there’s been a recurrence? Thanks

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  • letsgogolf
    letsgogolf Member Posts: 263
    edited January 2019

    Oncotype score = 3, surgery was 2/2017, no recurrence. Interesting thread. I hope others will respond.

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  • Meow13
    Meow13 Member Posts: 4,859
    edited February 2019

    oncodx score 34. No recurrence 7 years. Stage 1 no nodes, 2 tumors ilc and idc, grade 1 & 2, er+ 95%, pr- 0%, her2-. 4 years AI drugs. Mastectomy left DIEP reconstruction. Chose no chemo.

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  • Peregrinelady
    Peregrinelady Member Posts: 1,019
    edited January 2019
    Oncotype 12 - almost 4 years since diagnosis - no recurrence.
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  • NancyHB
    NancyHB Member Posts: 1,512
    edited January 2019

    2011: Oncotype 42, ER+ 50%, PR-, Her2-, 1.3 cm, 4 nodes with ITCs (considered node negative), stage 1, grade 2. LX, chemo (Oncotype score allowed me to participate in a chemo-based clinical trial), rads. I tried Tamoxifen and Aromasinand stopped after 8 months due to SEs.

    Local recurrence in 2016, this time TN. Stage 1 grade 3, node negative. Chemo, no rads, UMX with DIEP reconstruction.

    Bone mets discovered during follow-up CT scan in 2017.

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  • micronancy
    micronancy Member Posts: 51
    edited January 2019

    Oncotype 13. Lumpectomy only-- no hormone therapy, no radiation. Still clear 6 years later.

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  • SummerAngel
    SummerAngel Member Posts: 1,006
    edited January 2019

    This thread is in the chemo forum but I'll respond anyway:

    My signature has all of the information: Oncotype 9. Only one side was tested, even though I had bilateral invasive BC.

    BMX, no radiation, no chemo. Took Tamoxifen for about 4 months total, about half of that time I took a half-dose. No recurrence.

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  • keepthefaith
    keepthefaith Member Posts: 2,156
    edited January 2019

    Onco 21, stats below. So far, so good! Did 2.5 yrs on Tamoxifen. 58 yrs old at DX in Sept 2013.

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  • 36andcounting
    36andcounting Member Posts: 7
    edited January 2019

    Oncotype 35

    Dx 08/01/2018

    Preparing for surgery(umx/alnd)

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  • Toni_S
    Toni_S Member Posts: 49
    edited February 2019

    Oncotype score 21 in 2011, recurrence in one axillary lymph node in 2018

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  • Sadlynew2018
    Sadlynew2018 Member Posts: 222
    edited February 2019

    Toni, ugh, I’m sorry to hear that you have to deal with this again.can I ask how you found it? Or maybe what your treatment was the first time around?

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  • Murfy
    Murfy Member Posts: 342
    edited February 2019

    Oncotype of IDC = 52 in 2017; mastectomy, chemo, currently AI and no recurrence to date.

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  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited February 2019

    Oncotypedx 3, Feb 2012, Tamoxifen 3 years, AI 1 year, no recurrence, seven years out

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  • sheila77
    sheila77 Member Posts: 18
    edited February 2019

    Did you have to have chemo? Just starting this journey.

    thanks for sharing

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  • carmstr835
    carmstr835 Member Posts: 388
    edited February 2019

    DiagnosedMarch 13, 2017. Onca scores 17 left and 19 right. Extranodal lymph 2 node positive. left breast ER+ PR + HER2- right breast ER+ PR- HER2+ chemo, targeted therapy (herceptin and perjeta), and radiation, bilateral mastectomy, and bilateral DIEP; currently still on nerlynx. No Reoccurance.

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  • Toni_S
    Toni_S Member Posts: 49
    edited February 2019

    SadlyNew2018,I had lumpectomy and radiation in 2011, and then 5 years of Arimidex. The recurrence was found quite by accident. I had a CT scan of the chest to diagnose pneumonia in November of this year, and a very sharp radiologist who looked at my breast cancer history noted as an incidental finding that an axillary lymph node was slightly enlarged, and I mean very slightly, like 1 mm larger than would be considered normal. He recommended follow up and after biopsy the lymph node tested positive for ILC, same cancer as in 2011. It was not palpable on physical exam, and mammograms don't reach the axillary lymph nodes, so all my mammograms were normal. My Oncologist said it would have been a year or longer before it got big enough to be found on my annual physical exam.

    Fortunately all my scans were clear, there was no distant metastasis. I had an axillary dissection and will have 4 rounds of chemo followed by 5 weeks of radiation to the axilla since that wasn't radiated in 2011. Ultrasound is the only way to screen for this type of recurrence, but it's never done, just mammograms. Don't quiteunderstand why.

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  • KBeee
    KBeee Member Posts: 5,109
    edited February 2019

    2013: Oncotype 16 (long story, but oncotype not done until after chemo started to decide 4 rounds or 6). 4 rounds TC then Tamoxifen

    2015: local recurrence in 2 spots. Oncotype 40 chemo, then letrozole. No further recirrences...yet.

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  • Meow13
    Meow13 Member Posts: 4,859
    edited February 2019

    Oncodx 34, no chemo, 7 years no recurrence

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  • Appyfan
    Appyfan Member Posts: 90
    edited March 2019

    Following this thread. My oncotype score was 49, so I’m going to be looking over my shoulder for a long time. I was diagnosed 5/2018.

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  • canadaliz
    canadaliz Member Posts: 37
    edited March 2019

    Onco 17, lumpectomy, 22 rads, letrozole. 1 year out and clear. But have stage 4 cirrhosis due to combo of non-alcoholic fatty liver and Tamoxifen--a known hepatotoxic drug and now need a transplant. :(

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  • DebraC
    DebraC Member Posts: 75
    edited March 2019

    I’m fairly early in this journey. Too early for reoccurrence. Diagnosed in January, just got my Oncotype score....63! Anyone else have that high of score?

    My doctor said I almost broke a record for him, one other at 70. Didn’t want to be breaking that kind of record.

    Will have second lumpectomy on Wednesday for more clear margins, then start chemo in April. A lot to wrap my head around.

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  • everetta
    everetta Member Posts: 71
    edited March 2019

    Do they have any idea what brought the score to that. I know the Pr- brings up the score but I don't know what range. Does age make a difference. Does anyone know what makes scores higher. Hope your chemo goes well. It is hard to understand these oncotype scores--did your doctor explain why?

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  • ML1209
    ML1209 Member Posts: 241
    edited March 2019

    Oncotype - 35. Other info in signature.

    Canadaliz - I too found out I had a fatty liver with my first CT scan at initial dx. Tamoxifen had my liver enzymes thru the roof. I am now on arimidex and thankfully they are coming down. I am so sorry you need a transplant! Prayers it comes soon!

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  • DebraC
    DebraC Member Posts: 75
    edited March 2019

    Everetta, oncologist kept mentioning “my tumor was large 2.7cm and I’m young” Really,,, I’m 56, post menopause. I’m 100% ER +, Don’t have the actual report yet, this info from his phone call to us. Will meet with him on 3/19.





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  • KBeee
    KBeee Member Posts: 5,109
    edited March 2019

    Debra, even though you are ER positive, my guess is the percentage is low, which would increase Oncotype greatly. I tolerated chemo well. I hope you do too. I highly highly recommend joining the chemo group for the month you’re starting. My chemo Gals were, and still are, my sanity savers!!!! We’re still vlose

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  • DebraC
    DebraC Member Posts: 75
    edited March 2019

    Karen, Thanks, I will join a group in April

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  • Rwns
    Rwns Member Posts: 105
    edited April 2019

    hi DebraC-I have some similarities to your Dx. I’m almost a year post CT chemo, and got through it just fine. Look up Tiffany’s tips for chemo on this site...I followed those tips to a T. I had infusions on Wednesdays and felt pretty good by Monday (good enough to work 1/2 day). Good luck, wishing you minimal SEs.

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