Just Told My breast Cancer might have spread

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I went to the cancer clinic today for my CT scan results not thinking anything would be wrong i was told there is a mass on my lung and a spot on my spine, I now need a biopsy on my lung. I thought after my lumpectomy and having 9 lymph nodes come back clear I would be fine. I am incredibly distraught. How can I live day to day not knowing if my life will be fighting for my life. I don't know if I have the strength to fight this again, but know I need to for my kids

Has anyone ever had a doctor be wrong thinking that the mass on the lung is cancer? Now I try to live day to day dying on the inside while trying to look happy on the outside. This is torture. It will now take a month to find out. Im bracing for the worst hoping for a the best.


Comments

  • illimae
    illimae Member Posts: 5,710
    edited February 2019

    Pippy, I’m sorry you’re going through this but we’re here if you need us. Just wondering why you have to wait a month, that seems like a really long time to let you worry.

  • buffalowings
    buffalowings Member Posts: 24
    edited February 2019

    think positive. Those machines are very sensitive. They pick up all kinds of things that when they are probed further turn out to be nothing bad. If you had a lumpectomy and nodes were clear chances seem good those spots might be unrelated.

  • djmammo
    djmammo Member Posts: 2,939
    edited February 2019

    pippy1963

    How big is the mass in the lung? Do you have risk factors for lung or any other type of cancer other than breast?

    How did they describe the spot in the spine? Are you having back pain?

    Have you had or have they now ordered a bone scan or PET scan?

  • wallycat
    wallycat Member Posts: 3,227
    edited February 2019

    My sister had 3 findings on her lungs (ex-smoker). They monitored them and after 3 or 4 years, stopped monitoring since nothing was happening (no growth). She's never had issues.

    Doctors and scans can be wrong. I was told my MRI image was not cancer; it was. I was told my tumor would be 7mm; it was 1.8cm. They do not know what they do not know. I think it is great that they want to follow up and not simply dismiss any findings, but to assume those findings are cancer even before they are in the dish is a little unnerving.

    Your tag-line doesn't tell us what you started with, how far out you are, size, type, etc. so it is hard to even guess what they are looking at.

    I'm sorry to say that we have all been here, not knowing and stressing and imagining the worst. No matter how much someone tells you that worrying won't help, it is unavoidable. How do you go on living? Ask for help. Doctors can Rx anxiety meds; family can hold your hand and let you know they will support you; science can provide treatment where options are available. No reason to give up even before you have any news. For all you know, the lung mass is an incidental finding (my friend just got a liver scan and there's a cyst...but it was always there they were told) and the spine spot can be arthritis or inflammation. Try not to die before you have to!

  • pippy1963
    pippy1963 Member Posts: 36
    edited February 2019

    Thank you for all the kind words

    It started on January 22 just a routine check up at the cancer clinic. I have been on Tamoxifen for a while and complained that sometimes taking a breath in hurt but i have chronic back pain thought it was a muscle spasm doctor wants ct scan just in case of blood clots side effect of tamoxifen she was not worried A week later she wants me to come in to her office She explains there is a mass on my lung and a spot on my spine. Week later I see a lung specialist he wants to schedule a lung biopsy which is set for Feb 28. Meanwhile I went for more CT scans for abdominal region. That came out clear but still shows the spot on my spine. My doctor said she suspects Breast Cancer metastasis but can't do anything until the lung biopsy results which takes 2 weeks after the biopsy. So i wait. My thoughts are all over the place bracing for the worst I cant eat sleep my thoughts are dark. I'm only 55 i have so many years to live still. I haven't told too many people just my sister who is by my side all the way and my husband who is just a mess. I can hope for the mass to be non cancerous but my doctor said they dont do a biopsy unless they suspect cancer. I really don' know if I can handle this outcome

  • pippy1963
    pippy1963 Member Posts: 36
    edited February 2019

    Dj I was told the mass is about the size of a nickle near the bronchial lobes The spot on the spine looks white on the ct scan I have chronic back pain so i wouldn't notice The stress I am under is causing alot more pain my last CT bone scan showed white shadow spot on the spine. I was really basically told to brace myself my doctor is waiting to find out what kind of cancer is in the lung so she can start treatment

  • KBeee
    KBeee Member Posts: 5,109
    edited February 2019

    I am sorry you are dealing with this. Praying it is benign. Do keep us posted.

  • Natasha007
    Natasha007 Member Posts: 44
    edited February 2019

    praying for you pippy. About when are they expecting to have results

  • pippy1963
    pippy1963 Member Posts: 36
    edited February 2019

    Thank you all

    Had my lung biopsy today wasn't as bad I thought it would be. Can't remember anything which is a great thing they were trying to get 4 samples. I think I heard them say they got 3 but I'm not a reliable source under medication. I see my oncologist March 19th but if she gets results sooner she did say she would get me in ............now I wait for my fate

    pip

  • Rosie24
    Rosie24 Member Posts: 1,046
    edited February 2019

    Pippy, I hope you get your results soon. I agree that the waiting is terrible. It’s so hard to know whether to hope for the best or prepare for the worst. It sounds like your dr is preparing you that the spot on your lung is cancer? Thinking good thoughts for you

  • Mamasha
    Mamasha Member Posts: 104
    edited March 2019

    Pippy you have us whenever you need to talk. I’m sorry the wait is so long. Hopefully you’ll get answers faster. Best to you! Praying for good results

  • wallan
    wallan Member Posts: 1,275
    edited March 2019

    Pippy1963: My heart goes out to you. The waiting is the worst. It is so cruel I think.

    I had nodules in my lungs found on an xray that I had for bronchitis about 8 years out of my first BC dx. I was told it was likely BC mets too. But they didn't biopsy. I had CT scans every 3 months for quite a while ( a little over a year) until my family GP said no more CT scans because they were not changing. Its been 15 years since my first BC dx and I am considered NED from that still. And now there is no trace of nodules in my lungs. Go figure.

    I remember when I was going thru that what a wreck I was too. And then it turned out to be nothing in the end. I wish they had of biopsied right away... the anxiety from every scan and the exposure to radiation from every scan wasn't good for me. It would have been better to know one way or the other by a biopsy right from the start.

    I am holding you in my prayers and thoughts that it turns out to be benign. Hugs to you.

    wallan

  • KBeee
    KBeee Member Posts: 5,109
    edited March 2019

    That wait is horribly long. Hoping you have answers sooner, and that they are benign.

  • LoriBach
    LoriBach Member Posts: 130
    edited March 2019

    I have been stressing for a week. Brain scan came back clear (which we thought it would). Had the pet/ct today and was told doc would have the results this afternoon. Called his office when test was done. Called again at 3 and told he is out of the office. I can't handle the waiting. My mind goes to all the wrong places

  • pippy1963
    pippy1963 Member Posts: 36
    edited March 2019

    Lori did you get a call from the doctors office? That is just cruel to leave you hanging. I would hope that its good news if they didn't call you.I know what your going through Im in a waiting game I was told its probably cancer but which type is what they are waiting for. So in the mean time I have to get a PET/MRI test I have never in my life been in this much stress. Each test we have to do is torture. Let us know what is happening and don't forget to breath. I had my doctor prescribe me lorazapam it helps.

    pip

  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited March 2019

    The irony is that sometimes the wait is just a wait and other times because they double check a GOOD result. My BS told me that... like if the tissue shows no signs of live cancer they might take a few more slices of it to analyze, to make sure they aren't missing it.

    The waiting is the WORST. Lots of empathy and hugs for anyone hanging in suspense. Hoping for good results SOON.

  • LoriBach
    LoriBach Member Posts: 130
    edited March 2019

    Still waiting. Beyond crazy. A friend took me out to dinner last night and another friend is having me over for dinner tonight. I appreciate all the support. My mind is not thinking no news is good news. My mind goes to either verification as suggested (but not in the good way) or the good news phone call is less than five minutes, the bad news is much longer and he is saving it for Monday. If it is simply a clear scan, I will be relieved, but I think I will have to say something like...I hope you had a good weekend because I spent mine thinking of how I am going to tell my daughter I am sick again. Thanks for the support ladies

  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited March 2019

    I think they are truly MORE cautious to deliver a good result hastily. I was terrified by my incredibly long waits for post neoadjuvant chemo imaging and my post lumpectomy pathology-- and BOTH were due to good results that needed double and triple checking.

  • pippy1963
    pippy1963 Member Posts: 36
    edited March 2019

    Hang in there Lori you are lucky to have good friends. I wish I lived close to you so I could give you some anxiety meds I could have never got through this nightmare without them. and I hate taking pills but when your back is up against a wall you do what it takes and these pills keep me sane. Lets hope Monday you get the good news.

    pip

  • KBeee
    KBeee Member Posts: 5,109
    edited March 2019

    How frustrating. Hoping you get an update soon!

  • pippy1963
    pippy1963 Member Posts: 36
    edited March 2019

    Any updates Lori? I really hope they called you today.

    pip

  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited March 2019

    pippy I loved this comment:

    "I wish I lived close to you so I could give you some anxiety meds."

    You are a good person!!!

  • pippy1963
    pippy1963 Member Posts: 36
    edited March 2019

    santabar

    I know how she feels. Its just cruel how we get told you may have cancer. you may not, your life is about to be thrown upside down or not. My nightmare started on Jan 22 and I was about to book a girls trip but I got a call a week later saying you have a mass on your lung so my life has been turned upside down. My family are all a mess Ive had CT scans I have had biopsy and still dont know but been told its probably cancer they are now waiting to see what type of lung cancer. I am a mess This will be my third cancer not sure why cancer loves me but at first i felt i cant do this anymore but now Im really mad and will fight. Im only 55 I have alot of girls trip to go on. In the last 10years I have lost my mom to lung cancer my aunts ,uncles, and my dad not too long ago so this terrifies me I dont smoke and my lung specialist said its didnt seems to have the characteristics of small cell cancer. this started almost 2 months ago and Im still waiting to find out what I have I now have to go for a PET scan and a MRI . Doctors should give the options right away to give their patients anxiety meds. I would have never made it through this without mine and I HATE taking meds. My heart goes out to all who have to go threw this.

    pip


  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited March 2019

    pippy I agree... waiting in suspense is HORRIBLE, and it is ridiculous how long it takes just to get results back! I agree: you have a lot of girls trips to take! And: stay pissed! My dear friend who has Non-small-cell lung cancer calls cancer cells "the little assholes." And she is currently NED on a biologic agent, after being stage 4 at diagnosis in 2014!

    I hope you get a firm diagnosis and a plan of action soon, as in YESTERDAY. Hugs to you.

  • AMP47
    AMP47 Member Posts: 200
    edited March 2019

    I paid $10 and had my PET -CT mailed to me. You can read the report yourself. It also comes with a disk, a right you have as a customer.

    Tell them you want a copy and give a card for shipping/mailing.

    Annamaria

  • pippy1963
    pippy1963 Member Posts: 36
    edited March 2019

    I think in Canada its different. You have to wait your turn. We talked about going to the states for the test but was told they are trying to fast track me. WOW if This is fast track I hate to see the slow track. But I'm grateful for the Canadian medical insurance. So I really shouldnt complain Im just very anxious.

    pip

  • PalBuddy
    PalBuddy Member Posts: 27
    edited April 2019

    So, me too. Axillary node on MRI is "prominent" whereas it wasn't on last year's. (subpectoral)

    This was my first scan since surgery & radiation therapy (so, one year later). There was nothing in the breasts, but there is this node. I'm petrified I've jumped from Stage 1 to Stage 4. I get biopsy results the middle of next week and PET scan is on Friday. I can barely function.

    My sister had advanced cervical cancer and her treatment didn't work and we found out last week she only has months to live. So, possibly we'll all be gone.

    I'm too scared to hope it's a false positive. (But, has anyone had those?)

  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited April 2019

    PalBuddy, so sorry to see this is something you are dealing with.... I hope it's nothing but even if it is, a lymph node is not necessarily stage 4, but rather "locally advanced"... crossing fingers!

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