My mom has a deep fear for chemo and refuses chemo
My mom has a deep fear for chemo and refuses chemo. She feels that chemo means death.
She is almost 70 years old, and she has at least stage 3 breast cancer (we are waiting for scan results to confirm the stage).
She is strongly ER positive, HER2 negative, which means hormone therapy therapy would work for her... but the doctor still recommends chemo... he said "it'll increase her chances"
Can somebody who knows more about chemo share the experience of chemo treatment? Is it as bad as people say???
~~~
I just talked to her about it this morning and shared what I read in this forum.
She had a mental breakdown... Sigh.
I guess it takes time.
~~~
Thank you ladies for all your replies.
I've been talking to my mom, and she has made it very clear that she does not want chemo.
She thought it through, and she said she has no regrets on the matter. She knows what she wants.
It's her body, and her decision; and we've decided to back her on whatever she chooses.
Comments
-
Mary, I had a bad reaction to my 1st and 2nd chemo’s but it’s very rare, like 2%. After my 3rd, I was really surprised by how well and normal I felt. I stayed active, which for me was key to avoiding fatigue. I worked every day except for the day of my infusion and even did my first 5k. It’s doable and not like it was many years ago. Everyone’s reaction is different and it did get tougher towards the end but I’d do it again, if needed. Good luck 😀
-
It is not like in the movies. They're pretty good at managing side effects these days, though some people still have a terrible time with it. I breezed through. Lots of side effects, but none were very debilitating.
If she is stage IV, they will probably not start her on chemo. Most stage IV folks start out on hormone therapy plus a CDK4/6 inhibitor if they are HR+ and HER2-.
A lot of people refuse chemo. If she has a lot of other health problems, refusing chemo is perfectly reasonable. If she is healthy and could live another 20 years, chemo is more likely to be helpful. But generally speaking, HR+, HER2- cancer does not respond that well to chemo, especially if it is low grade. I understand her hesitancy at her age, and would get a second and possibly a third opinion if I were her.
-
Thank you!
Her grade is 2-3 out of 3, pretty high risk. which is why the doctor recommends it.
she doesn't have other health issues right now... but she fears that she might start to have them after chemo...
-
My mom is exactly the same. She thought chemo means death. She actually had a meltdown at the hospital at her first chemo appointment although I spent many days telling her about the wonderful stories of the survivors in this amazing community, and other friends and co-workers. I think you should do the same. Explain to her that chemo is doable, actually some people have very few side-effects with the current medications. Tell her that if you knew chemo will “kill” her, you woun’t let her have it. Also, always be with her, go to hospital appointments with her, have “calming” conversations with her. She needs your support now more than ever. It’s a long journey, take it day by day. Wish you and your mom all the best!
-
Mary - maybe your mom will agree to one infusion. If that goes okay, then she can go to the second one. The thought of doing six rounds of chemo was kind of overwhelming to me before I knew how I'd react to it, but just giving it a try didn't seem so daunting. I kept that mentality all the way through. I told myself if I got too sick or things got too bad after this infusion, I just wouldn't go to the next one. One round of chemo will only make you feel a little worse than you feel now. One round is totally doable.
You could also look for studies that are using non-chemo agents instead of chemo in women like your mom. There are some studies using CDK4/6 inhibitors instead of chemo on early breast cancer patients. But you would most likely have to travel for treatment. I traveled for part of my treatment, it gets really expensive. I don't know if that would be an option for you guys.
-
Thank you. It has been so hard. She went from denial to depression. It's so sad to see her like that.
-
I worked through chemo, walked the dog, went to the gym regularly (although I had to push through a bit of tiredness at times), went to my regular yoga classes but cut back a bit. I had 5 months of infusions and during Taxol I was hiking after my infusions, before I went home for the day.
Point is not to brag but to share with your mom that we can function normally during chemo, pretty darn easily. Your hair falls out and you may be more tired than normal, but the immune boosting drugs like Neulasta really help us feel better, and there are so many tips to allieviate side effects along with drugs that can do that, too.
I never threw up once during chemo nor do I remember even being nauseated but I did lose weight because it did kill my appetite.
Could she talk to her oncologist and relay her fears? Maybe talk to a chemo nurse ahead of time? Knowledge and truthful information about the benefits of chemo might help. Sharing current, supported research might help her turn around her belief that chemo means death might help?
-
My chemo experience kinda mirrors claireinaz , kept up my workout routine, social life etc. One week out of the 3 week cycle is feeling slightly flu like, tired weak queasy, then next 2 weeks quickly feeling better. Never vomited, good meds for that, did lose my hair, all of it!😄everywhere. Lost some weight because food tastes wrong, but definitely not as bad as I was expecting. Once it's over, with good nutrition, you feel back to normal sooner than you might think. Best wishes and thoughts to you and Mom💖
-
if she is in good health otherwise and assuming stage III diagnosis stays it would make all the sense to do chemo. You might discuss different types of chemo, pick one that is a bit easier to handle (no dose- dense for example.)
I worked a full-time job through chemo that was five years ago and have no long-term side effects
-
I was younger than your mother (55) but like a few others, I worked and exercised through chemo with nary a side effect. I didn't lose weight but did lose taste for a while. I also worked through radiation which I found to be tougher than chemo.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team