Need advise about ovarectomy

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luba12
luba12 Member Posts: 4
edited February 2019 in Hormonal Therapy - Before, During, and After

Hi everyone,

Thank you for sharing your experience. I am 53 y.o , 6 months ago diagnosed with IDC and DCIS. MO started Tamoxifen. I am still having periods every month. On my last appointment few weeks ago MO stated he was hoping my periods stopted but he didn't tell that his advise would be to help stop periods. I would like discuss with my family doctor about ovary to be removed. Unfortinatelly physicians will not tell you advise, look like they just watching that will happen next. I would like advocate myself. Should I go forward and speak with family doctor about ovary to be removed.Thank you.

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  • Moderators
    Moderators Member Posts: 25,912
    edited February 2019

    Luba, until other members post with their experiences and advice, you may find some helpful information on this page: Ovarian Shutdown or Removal.

    Please, let us know how what you earn of you finally ask your doctor!

    Best wishes,

    From the Mods

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  • LeesaD
    LeesaD Member Posts: 383
    edited February 2019

    Luba12- I had just turned 49 at time of my diagnosis. After my BMX, ALND, chemo and radiation I wanted to go right to aromatase inhibitors instead of tamoxifen as they have a slightly better track record than tamoxifen. I was still getting my periods so I spoke to my MO and he was on same page as me to go with ovarian suppression shots (zoladex) until I could schedule my ovary removal. I did four months of the shots and started AI's (anastrozole) and then had my ovaries removed. The surgery itself was one of the easier ones as far as recovery. I don't regret it all. If you look up the SOFT trial /results it could help with your decision. I just went with every percentage point I could get so chose ovarian suppression / then removal with AI's. You definitely have to be your own advocate and do your own research! Best of Luck to you.

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  • luba12
    luba12 Member Posts: 4
    edited February 2019

    Thank you very much for your reply. I am so grateful to these forum. I have 17 y.o daughter I would like see her graduated from college and her wedding. I did make appointment with MO at the beginning of the March. I will ask him about Zoladex injection.Thank you LeesaD and God bless you all.

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  • SimoneRC
    SimoneRC Member Posts: 419
    edited February 2019

    Hi LeesaD!

    I am having ovaries removed also after being on AI. Did you have any worsening side effects, like worsening hot flashes, etc...., after removal? Just trying to manage expectations!

    Thanks!



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  • LeesaD
    LeesaD Member Posts: 383
    edited February 2019

    Hi SimoneRC, my side effects did not worsen at all going from the suppression shots to the ovary removal. I honestly didn't notice any difference whatsoever. I still get maybe one hot flash a day but they did not get worse once the ovaries were taken out. My MO had tested my estrogen levels while on the shots and the levels were virtually undetectable due to the shots so the shots were doing their.job but ovary removal was always the end plan. Best of Luck!

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  • SimoneRC
    SimoneRC Member Posts: 419
    edited February 2019

    Thank you LeesaD!!!

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