Age 32 and Large mass in right breast

2

Comments

  • Motheroftwo36
    Motheroftwo36 Member Posts: 116
    edited February 2019

    I’m working on seeing what’s available at another hospital. These hospitals don’t “talk” to each other but oh well.

  • blah333
    blah333 Member Posts: 270
    edited February 2019

    I don't want to alarm you, but I had a similar story in which I didn't even really know I had a little lump, if I felt it I dismissed it as hormonal changes/normal texture in a breast. A doctor felt it and I saw the look of alarm on her face. She said I should get it checked right away. I was 35. I told her about my family history but that lumps like this come and go but she was quite firm about it being alarming... I remember walking across the parking lot in a sudden doom.

    They told me I had calcifications after my mammogram and that I would need a biopsy. It turned out to be DCIS. However, most DCIS doesn't present it self with a lump (mine was like a small pea). If your calcifications are in cluster, that's more likely to be DCIS or cancer than if you have a few spread out. As soon as I was told that I went home and gorged on information about calcifications. The 18 days between my mammogram and diagnosis were consumed with cancer research. What a waste. It's not like I could undo the calcifications in that time. From my understanding, older people are more likely to have scattered (benign) calcifications. However, it sounds like they are not too concerned with your calcifications/are assuming they will be benign?

    Did they give you a BIRADS rating?

  • buffalowings
    buffalowings Member Posts: 24
    edited February 2019

    I'm sorry. In a similar position- 33, two kids, having biopsy today for what I thought was a previously biopsied benign lump but may not be the old one. It has calcifications too. I don't have discharge like you do but from what I have read that could be a sign of a papilloma, which isn't cancer.

    Sending good thoughts your way. The process is terrifying and full of anxiety and worry. Without question the most stressful experiences I have had to go through.

    Also, try not to focus on your perception of the size. I have learned that is way off. Both times I've stressed over the lump in this spot i would have sworn they were 2+ inches. Reports for both say 2cm

  • Motheroftwo36
    Motheroftwo36 Member Posts: 116
    edited February 2019

    blah333

    My birads was 0 because they needed the ultrasound. The ultrasound didn’t have a rating and it just said suspicious. The surgeon said the calcifications had a suspicious pattern but she didn’t say what the pattern was. The ultrasound said numerous locations of innumerable calcifications. So to me that means cluster but I don’t know. Researching has been helpful but most of it is a waste of time. I’m trying now to do any research but before all this i was clueless about cancer types so it’s good to at least be knowledgeable. The lumps though she isn’t concerned about.

    Buffalowing...

    Good luck and let me know results! How was biopsy? I hate u have to go through this AGAIN. What a nightmare.

    On a good note, I rescheduled my biopsy with a different hospital and will go this Friday. I have to go pick up my images though since the hospital won’t send it.

  • blah333
    blah333 Member Posts: 270
    edited February 2019

    I didn't even know there was a BIRADS 0.... my healthy breast was a BIRADS 1, before I had it removed. If you have the ability to look up online through some health portal (my hospital has it, my appointments, blood test results, clinician notes etc) you may be able to read their report. The BIRADS rating is helpful to see how likely they think this is to be cancer or be benign. I was clueless... When they showed me my mammogram image before the biopsy the radiologist told me it had a 50% chance of being cancer, but later on I looked back at old paperwork and saw that they gave me BIRADS 4C which is about an 80% chance, and they bumped that to BIRADS 5 after my biopsy, which became BIRADS 6 (confirmed malignancy) after the biopsy results were DCIS.

    If they didn't mention a cluster, perhaps yours are arranged more in a line.... OR there can be instances of multi-focal (abnormal cellular activity/cancer in various places). OR various other issues, who knows.

    Research was useful to me just to prepare my mind. After enough looking around I was pretty sure if it was malignant, my case would be DCIS. They were hesitant to tell me over the phone, which was obnoxious. They didn't yield information until I specifically asked if it was DCIS.

    This is hell.... I have to call in a day or two from now to see if I can pry my latest biopsy results over the phone. I'd hate to be told in person, incase I might cry, ha.

    I hope all turns out well for you.

  • Motheroftwo36
    Motheroftwo36 Member Posts: 116
    edited February 2019

    just had biopsy, that was rough! They did two separate biopsies. One ultrasound guided biopsy near my nipple which stung really bad and then s stereotactic biopsy and I didn’t feel anything but i bled like crazy! I was covered in my blood and it took 30 minutes to stop it. It still bleeds when I move. Ugh.. I’ll have results on Monday

  • Dani444
    Dani444 Member Posts: 522
    edited February 2019

    Keep those ice packs on! I had a bit of bleeding with my second biopsy but it was later, while I slept. Sorry you had a rough time, it’s a a lot to go through! Do keep and eye on it and let your doc know if you have any increasing pain. Sometimes you can get a hematoma after the biopsy. Sending good thoughts that you can rest up this weekend

  • Motheroftwo36
    Motheroftwo36 Member Posts: 116
    edited February 2019

    the tech said I would probably have two hematomas. :/. The biopsies wiped me out, probably more stress than anything.

  • buffalowings
    buffalowings Member Posts: 24
    edited February 2019

    Biopsies are not fun and you may have a lot of bruising and swelling ... I did because mine was done in a very "thin" area of my breast without a lot of surrounding tissue to buffer. My lump was basically right between skin and lung - the radiologist was crazy careful getting samples to avoid puncturing my lung. Stay iced up. The big refreezable gel cooler packs are your BFF for the first 24 hours- they're soft and moldable so you can sort of form them around your whole breast.

    My results came back as a complex sclerosing lesion- rare overall and especially for someone my age (33). It's very big (2.2 cm) and needs to come out even though it is not cancer. These things so thoroughly mimic carcinoma that ONLY pathology can differentiate. They are almost always birads 4c or 5 due to sharing all the physical features of invasive cancer. I feel beyond lucky; everything in my images and reports indicated IDC.

    See if you have a patient portal you can log into to access your report. It will give you specific language about what they found, especially regarding your calcifications. DJMammo has linked some docs with common lingo used in these reports and what they signify. Certain terms are more often correlated with benign or malignant findings. You may know more once you see the actual report.

    Good luck for your findings. I was a wreck during this process as mine looked so dire- I was mentally preparing for bad results. Hoping hoping hoping yours are benign.

  • Motheroftwo36
    Motheroftwo36 Member Posts: 116
    edited February 2019

    buffalowings


    Such good news! And what a frightening experience!! I’m living with no direction as to what my odds are and the doctors aren’t saying one way or another either. Yesterday I had another ultrasound before my biopsy and the tech was wonderful. She explained everything she saw. I asked if she sees this much in my age and she said no it’s very uncommon. So either way I’m riding the uncommon boat with you! I’m almost 33.

    The calcifications I have go from nipple all the way to arm pit. Tons of them. Very tiny powdery like. Probably run about 1.5 inch wide in a line. Some areas are more dense then others. Only on one breast. So bizarre.



  • Motheroftwo36
    Motheroftwo36 Member Posts: 116
    edited February 2019

    Biopsy results are in: DCIS with suspicion of invasion.

    Not what I was exp

  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited February 2019

    motheroftwo, I am so sorry to hear this! It's a shock, I know. It's a complete 180 to go from "healthy person" to "cancer diagnosis." I was in disbelief. I am hopeful you will get more clarity and a plan of action very soon. Somehow having a plan makes it easier. You are definitely in the right place to get wisdom and support. (((hugs)))

  • MBPooch
    MBPooch Member Posts: 229
    edited February 2019

    motheroftwo - Even if it's something you suspect in the back of your mind, it hits you like a ton of bricks. This is the worse stage, not knowing specifics but you will get there so don't get too ahead of yourself. This is such a great place to come to for questions and support!

  • Dani444
    Dani444 Member Posts: 522
    edited February 2019

    Motheroftwo- So sorry to hear this. I will echo what others have said. This really is the worst stage of this process. It does get easier as you learn the specifics of your diagnosis and formulate a plan with your team. It is all so overwhelming in the beginning, but you will get get down to the business of “kicking cancers ass.” These forums have been invaluable as I moved through my treatments. I think you will find a wealth of knowldeg and support here. We are here for you

  • Motheroftwo36
    Motheroftwo36 Member Posts: 116
    edited February 2019

    it makes no sense. I’m 32. I thought I was healthy. I eat better than most, I run. No family history. It’s so bizarre.

    I was told that most likely I’ll need a mastectomy. Going through that with two toddlers will be a challenge. Now I’m hoping it’s not invasive. Hopefully ill know that tomorrow. What a long nightmare of a process. I just want to be done with it.

    Now I wonder if I’ll want a double mastectomy. Don’t really want to do this again.


  • AnxietyGirl85
    AnxietyGirl85 Member Posts: 74
    edited February 2019

    So sorry to hear that you ended up getting bad news. :( Here's hoping that it's still at a super-early stage (no invasion!).

    I was in your position just over a year ago, 32 years old, no family history (we all die of heart trouble, no cancer to be found!), never been sick a day in my life, no reason to suspect that the lump I felt would be anything but benign, and BAM, a Stage II diagnosis. It would suck at any time in your life, but it sucks extra when you're so young. *hugs*

    If it helps, this really is the very worst part, the not-knowing, the waiting, the not-having-a-plan-yet, but once you have more information and know exactly what you're up against and what the plan is to deal with it, it will get easier. It's never fun, but it's more manageable when you're not totally in the dark, promise.

    Stick around, you'll find lots of support here, and lots of wisdom. You'll get through this. <3

    (And please stay away from Dr. Google!! Nightmare fuel, that.)

  • blah333
    blah333 Member Posts: 270
    edited February 2019

    WOW those were very fast results.

    I was 35 at diagnosis and the "healthiest" person I know... fucking awful shock out of nowhere. I do have family history but no BRCA gene, I thought different diet ant more exercise etc would help me but NO. Sometimes things in life make no sense.

    They will probably make you do an MRI soon. They may not know if there is an invasive component until surgery/pathology but hopefully more imaging can help.

    Personally I opted for the double mastectomy due to younger age (and wanting symmetry). There is just more time to have more bad luck come along. I don't regret the decision. Some people (or European healthcare) claim it is "overkill" to do double mastectomy or even mastectomy for DCIS but I don't think so. What's the point of keeping a breast if it is going to be so stressful? Good luck to you, this will be a drag and drain/a little sidetrack in your life but it's not the end of the world. You seem to be taking things well!


  • buffalowings
    buffalowings Member Posts: 24
    edited February 2019

    oh shit. I am so so sorry. Praying there is no invasion.

  • KerLyn
    KerLyn Member Posts: 35
    edited February 2019

    Just agreeing with the other people posting, this truly is the hardest part. Once you have more information - take your time thinking and discusising and making a plan YOU are comfortable with. Once you have a plan, and you know what you are dealing with, it gets easier. I promise.

  • Motheroftwo36
    Motheroftwo36 Member Posts: 116
    edited February 2019

    thanks everyone, I meet with surgeon tomorrow. What is the typical time frame with diagnosis to surgery

  • Krose53
    Krose53 Member Posts: 148
    edited February 2019

    My breast surgeon and plastic surgeon had to arrange a day when they were both available. My double mastectomy was 6 wks after diagnosis. The time went by very quickly. And honestly, my mastectomy was easy with easily handled pain and quick healing. The main thing will be to get some great care for your little ones. Wishing you the best

  • Wigging2000
    Wigging2000 Member Posts: 295
    edited February 2019

    Motheroftwo,

    So sorry to hear about your diagnosis. I too hope for you that DCIS is your only result after surgery. I had a few issues crop up in between my diagnosis and surgery but I was still able to have it within a month of diagnosis. I had bilateral mastectomies and the surgery was not as bad as I thought. You can do this. You will feel so much better when you have a plan. Getting my surgery date was SUCH a relief. Good luck tomorrow. Hugs.


  • Marymc86
    Marymc86 Member Posts: 102
    edited February 2019

    Motheroftwo ,

    I’m sorry you have to deal with this. My surgery was about one month from biopsy. It took a week to get my biopsy results and then my Primary Care Physician delivered the news over the phone, which I was fine with that. I had invasive plus DCIS I had a lump in my right breast from age 22. At 24, I had my first mammogram and ultrasound, no biopsy then. They said it was a fibroadenoma and benign. Now I wonder if it was cancer that stayed dormant for 30 years?

    Anyway, I had a lumpectomy last March. My surgeon recommended lumpectomy and said that lumpectomy plus radiation is as effective as mastectomy. That is some food for thought. Whatever you decide, take it one step at a time. If you don’t feel comfortable with one doctor, ask for another opinion. BTW, my surgeon asked if I wanted a second opinion. I said no. I thought she was great. And, the surgery was a breeze. The biopsy was the worst part of my entire treatment. And I had breast reduction surgery between lumpectomy and radiation.

    It’s all so overwhelming in the beginning. And I agree with others, the waiting is hard. Things move slow when you want them to go fast.

    Keep us posted. This is where I lived (breastcancer. .Org) in the beginning. So much information and so many supportive people going through the same thing.

    Keep us posted.

  • AnxietyGirl85
    AnxietyGirl85 Member Posts: 74
    edited February 2019

    The longest wait for me was actually getting diagnosed, that somehow managed to take 7 weeks from when I first went to the doctor till I finally got the scans, biopsy and then final results. Once I had the diagnosis, it took two days to see a surgeon (my GP put in an urgent request), and then it was not quite three weeks after that consult that I had my surgery (lumpectomy and SNB).

    Hoping you won't have to wait too long, either! The waiting is definitely the hardest part.

  • leftduetostupidmods
    leftduetostupidmods Member Posts: 620
    edited February 2019

    They might want to do a breast MRI prior to surgery.

    As for timing, depends if you do immediate reconstruction or not. If immediate, it might take a bit longer for the breast surgeon and plastic surgeon to coordinate.

    See if you qualify for skin sparing mastectomy, if the tumor is not close to the skin. That would make you qualified for a one-step implant with Alloderm sling, if the plastic surgeon is able to do it. It's the easiest of all reconstruction methods.

  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited February 2019

    Yes, a few more tests may be needed to clarify the best approach to your treatment. For example, in some cases they prefer to start chemo to shrink the tumor, then do surgery (this happened for me and I got away with a small lumpectomy rather than a mastectomy due to the shrinkage. An MRI can show aspects that a mammo and US cannot show so they generally want all three. You have not posted the grade of the cancer (1,2,or 3) and other details that can influence the order of things but that should all become clear in the next week or so.

    One of the things that is highly irritating about Cancer treatment is the amount of times you need to push people and be your own advocate to move things along. For me it was like I was the only one feeling urgency! Maybe the urgency was nerves but it felt like one thing I could do to help myself was move things along as rapidly as possible. For example, getting on the surgeon's calendar before every detail was known so that t did not fill up in the meanwhile.

    Another thing that helped me psychologically was to eat a very clean healthy veggie-heavy diet with no crap and no alcohol, and to consult an integrative doc to advise me on supplements, complimentary practices, etc. The MD I consulted with (Dr Keith Block) has a book called "Life Over Cancer" that has a lot of info based on validated scientific knowledge of practices that reduce recurrence. For one example, many BC patients have low vitamin D status, and bringing it up is correlated with better outcomes. Melatonin is something to use for sleep that also has anti-cancer properties. There are a lot of little things you can do with diet and exercise to assist yourself in getting a better outcome.

  • Motheroftwo36
    Motheroftwo36 Member Posts: 116
    edited February 2019

    thanks everyone! It’s nice to hear others experiences. Unfortunately I don’t think I can get away from mastectomy because more than half of my boob has these calcifications. I have smaller breasts also so there won’t be much tissue left. I’m interested in nipple sparing but I have a lump right behind my nipple so not being too hopeful there.

    I should have lots of answers today. I wish they could do the mri while I’m there but that’ll be another thing to have to schedule. But hearing from most of y’all it seems the average wait is 1 month to 1.5 months so that’s not too bad I guess. Looks like it’ll fall right around my birthday. :/

    I’m actually pretty calm about this for some reason. It doesn’t seem real. Just hoping for no invasion. Not sure if that even makes a difference though so I’ll be having it all removed.

  • leftduetostupidmods
    leftduetostupidmods Member Posts: 620
    edited February 2019

    DCIS doesn't have chemo as standard of care. As for the nipple sparing, that will only save an extra reconstruction. Sorry for the bad news, but when they do the mastectomy they cut the nerve that goes to the nipple as well, so it would be unfunctional, so to speak.

  • blah333
    blah333 Member Posts: 270
    edited February 2019

    I would recommend looking at as many pictures of you can of all the options and see how you feel when you view them. A lot of pics are on instagram under #mastectomy etc and related hashtags. Though of course there are trans surgery pics mixed in. There are more images than google search. It helpe me prepare my mind.


    When they take away the breast tissue, there is nothing left to support the nipple so the shape of it changes even if it is spared. And no nerves connect to it, so it stays like a nub vs. how real nipples get hard or not hard....

    A mastectomy really is not so bad. I was glad to forego radiation. And like you mentioned, breast conservation isn't worth it if most of the breast is going to be gone.

  • djmammo
    djmammo Member Posts: 2,939
    edited February 2019

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