Adh alh

Tchuts
Tchuts Member Posts: 17
edited February 2019 in Benign Breast Conditions

help please. I need to shed some light on this. I had a stereotactic biopsy for a 2.5 mm group calcifications on Thursday. Yesterday my dr called and said no cancer woohoo, I think that was all I heard. She had also mentioned dysplasia but I honestly was so focused on the no cancer. She did say they where able to get everything they needed in my biopsy. Told me to have a relaxing Christmas and come see her in January to talk and that I would be needing additional screening in the future. Then I started to google and feel back to square one. Isn’t this really a pre cancer.

Comments

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited December 2018

    Did the doctor say dysplasia, or hyperplasia? No, ADH & ALH are not precancers. They are conditions that indicate you may be at higher risk for developing cancer in the future. The percentage of increased risk depends on your individual risk factors. Most women with these conditions do not go on to develop cancer. Example: statistcs are that about 13.5% of women will develop breast cancer in their lifetime. Perhaps 20 or 25% of women with one of these conditions might

  • Tchuts
    Tchuts Member Posts: 17
    edited December 2018

    hi Melissa, thanks for your response. I honestly thought she said dysplasia and additional screening but I was so focus on no cancer. Her office is closed now until after New Years so I have to wait and wonder. I know it is still best case scenario but again my Brain goes to dark places.

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited December 2018

    That could be. Way too early to get worried when you know no details.

  • jenndenino578
    jenndenino578 Member Posts: 75
    edited December 2018

    Hi, I had a lumpectomy for a radial scar in order to rule out DCIS. The final pathology report stated that I had a radial scar/sclerosing lesion which had atypical ductal hyperplasia, usual ductal hyperplasia and some benign calcifications. I am supposed to have another mammogram soon for a follow up but I haven't heard from the breast center via a phone call, letter or email. I guess I will have to call them soon to make an appointment. My surgery was on June 21, 2018. So it's now been 6 months. I was not looking forward to having my breast with the scar on it compressed in the mammogram machine as I still have nerve pain which comes and goes. It has healed fine. Of course it is still in the back of my mind that something new could turn up....

    Prior to the lumpectomy I had a 3 Tesla MRI after the initial mammogram, ultrasound and biopsy which showed that it was a radial scar. They decided to remove it via a lumpectomy.

  • CasM
    CasM Member Posts: 110
    edited January 2019

    Hi Jenn

    With a 3 Tesla MRI did you have to get contrast?


  • CasM
    CasM Member Posts: 110
    edited January 2019

    HI Melissa

    I wondering if in your opinion having a MRI with contrast after a diagnosis and excision biopsy is overkill or necessary. I am scared of the gadolinium toxicity. I was told by my breast surgeon that there would increased monitoring and that a MRI with contrast is the next step in April. I was thinking maybe I could suggest just another mammogram/ultrasound monitoring instead.

    I know you are a great source of LCIS/ALH and wondering your opinion

    Cassie

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited January 2019

    CasM, for now I've decided not to do annual MRI's, in small part because of the contrast agent, but more so because I have had a very high deductible/copay on my lousy excuse for insurance and I just can't afford it.

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited January 2019

    But I still would not hesitate to have one, like I did at the beginning, after the initial core biopsy finding before surgery.

  • CasM
    CasM Member Posts: 110
    edited January 2019

    Melissa

    Thanks so much. I appreciate the response. So sorry about your lousy excuse for insurance!!!

  • LynnVB
    LynnVB Member Posts: 24
    edited February 2019

    I was diagnosed with ALH in 2016. Lumpectomy with good margins-refused Tamoxifen. I am low risk and am on 6 month monitor. So far so good on all my imaging. Since DX I have had two MRI’s. My surgeon advised that the gladiolinim used for breast imaging is not as high as with other types of imaging. For now, I will continue until the 5 year mark. Definitely stinks for insurance purposes though. Our deductible is high so we basically pay out of pocket.

  • CasM
    CasM Member Posts: 110
    edited February 2019

    @LynnVB - thanks for the tip on gandolinium and yes that does stink on the out of pocket expenses!

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