More questions than answers with LCIS

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Anne929
Anne929 Member Posts: 3

LCIS seems to be a bigger headache then other varying diagnoses. There are so many more questions to ask with such an illusive diagnosis. Personally, I went to my internist with a palpable lump, was then was sent for a diagnostic mammogram, and then a biopsy,then a diagnosis with LCIS; I was supposed to consult with a surgeon and then a day before my appointment , I was told that I need to go get an MRI of both breasts before the appointment. I guess since LCIS is usually diagnosed "by accident," versus presenting symptoms by itself (especially not with a palpable area). I had surgery almost 15 years ago on the right side and now it's the left side, both times in the exact same place and both times it presented with a palpable area. It's more than frustrating and scary. How am I supposed to proceed when there are more and more unknowns everyday? It has become an abyss of unknowns and I don't do well with those; I'm assuming none of us do. It's not an issue of insurance. So, what's with the curve ball? Has anyone been through anything like this? Or knows of it? I'm drowning with "what if's." Any suggestions or comments, PLEASE??!!??

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  • KBeee
    KBeee Member Posts: 5,109
    edited February 2019

    The MRI will bring clarity to what's there, so they'll know how to proceed at the appointment. Otherwise at the appointment, they'll just say, "Once we have the results of the MRI, we'll.....". Hoping you get the MRI soon. In the meantime, keep a list on the "notes" section of your phone of all of your questions. I keep them in my phone, because it is usually with me and I can jot new ones down as soon as they come to mind. Sorry you're dealing with this again.

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