TNBC and treatment options for liver mets

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FelineMum
FelineMum Member Posts: 141
edited February 2019 in Triple-Negative Breast Cancer

I'm finding it hard to find information about chemo options that may work for women with TNBC and liver metastasis. After my mets originally were discovered, I was given 6 months or less to live. The only option mentioned was Halaven and the MO I was seeing at the time said it'd most likely give me 3-4 months additional time with full-fledged traditional SE that likely would affect my desire to live my remaining time as fully as I could.

I decided to live my remaining time my way. After a couple of months, I started doing in-home hospice to get help with pain. Four months into my "6 months or less," I was still very much alive and not showing early signs of impending death. "Pretty healthy for a dying girl," became a grim joke.

Fast forward to October, the month my expiration date was supposed to be in. I started Doxil with a new MO. I love Doxil. It's a great drug. But my tm keep going up and up, and unless that stops; my MO wants to change drugs. I still feel a million times better than before my first Doxil infusion. I suspect the MO will want to try Taxol. It was a toss-up between that and Doxil.

I did Taxotere with Carboplatin before my bmx. I don't want to be bald or bloated, permanently flushed, unable to sleep and neurotic from steroids. I'm hypersensitive to 'roids.

I have this strange idea that the treatment shouldn't be worse than the disease, especially in Stage 4.

What else is out there? TIA

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  • Flynn
    Flynn Member Posts: 307
    edited February 2019

    I hope that someone in the stage 4 area had some good advice. I think it’s brave of you to forge a path that you feel comfortable with when you’re dealing with such a rough diagnosis. Best wishes to you!

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  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited February 2019

    Look into hyperthermia... heat to kill cancer. There are hospitals using heat to weaken the cancer cells in combination with chemos and rads. TNBC is vulnerable to heat. UMD, Wash U St Louis, and Cleveland Clinic are three places that I know offer it. Looking into "just in case" future therapies, I talked to the head of hyperthermia at UMD and he was so nice. (I emailed him and he emailed me back w his cell phone!)

    A friend of mine w/ liver mets is on Xeloda and doing well on that, but I see you have already had Xeloda.

    I too admire your earlier choce for better quality of life. I think I would feel the same but it's hard to know until the decision is in front of you. I hope you find something that's well-tolerated and effective!

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