Breast LE

Hi Julie. Sorry to hear about the breast lymphedema. Have you been to see a lymphedema therapist? Breast lymphedema can be a little tricky to treat. What works for one person, doesn't necessarily work for the next person. It's important to find a therapist who is familiar with this type of lymphedema. (My first therapist wasn't and it wasn't until I found the right therapist that I also found relief.)

There is a website that I was directed to that was very helpful. Some of the older members of the breast cancer community put it together. It is called Step up, Speak out and here is the web address: https://www.stepup-speakout.org/ You will find information on breast lymphedema, how to find a LANA certified therapist, places to buy compression bras etc.

As for me, exercises, compression bras, swell spots, manual lymphatic drainage massage, compression sleep shirts, and a lymphatic pump are all things that have given me relief. We tried some other things that didn't work for me but might work for you. I also wear a sleeve and glove when I do repetitive movements (like exercising) because breast lymphedema makes you at a higher risk for arm lymphedema.

For me, colder weather, humid weather, and too much salt causes flair ups. I also always tell the mammogram tech that I have breast lymphedema, and they do their best to not add to my issues.

I hope this gives you a place to start. Breast lymphedema is no fun, but it can be made better.

Gentle cyber hugs coming your way, Julie.

Hi Julie and TP. I agree with Tess that you need to see a physical therapist that specializes in lymphedema. My surgeon referred me to a therapist to learn MLD and get recommendations for compression garments. She also prescribed a pneumatic pump for my breast lymphedema as most women do not perform MLD correctly.

For me, my breast became extremely tender and became swollen to the point that my clavicle was not very noticeable. It also felt physically warm to the touch and puffy, but did not leave indentations when pressed. My arm had very little swelling.

The LE developed a few months after my radiation treatment was completed, so initially my doc was not concerned as swelling can occur after treatment. However, after a couple of months where it continued to worsen, she sent me to the therapist who began to work with me to manage the LE. After nearly a year of active treatment, I am very happy to tell you that my LE actually "reversed" and its now been about 18 months since I stopped using the pump.

Wishing you all well!