Any long term survivor stories with ILC

Hi everyone. I am coming up on my 15 year mark with a very craptastic diagnosis. My stats are below. They don't warrant repeating.

Anyway, there are lots of ILC ladies who are years and years out who are doing great.

IamElaine, your diagnosis may be craptastic, but you're doing great - 14 years on! Wow!

You've just given me hope! (see my info below....)

I'm 10 years out and read these boards a lot through my treatment (mastectomy with full lymph node dissection, chemo, radiation, tamox and AI which I'm still on). My grandson was just a month old when I was diagnosed, and I was determined to live for him! My late mother said I would be fine- and no one ever disagreed with my mother . Take heart, those of you who are new to this. I never thought I would forget any detail of my ordeal, but blessedly so much of it is now a faded memory!

Hey there you doing great - I celebrating 6 years I had 9.2 cm tumor and 17 nodes and nodes were excapsular I am probly saying that wrong. I am doing good don't think about it as much as I did. It is hard not to be scared sometimes even now. I am on anastrozole for life I love green tea I drink tons maybe its the secret I don't know. Think about future as much as you can in small steps. Like I wanted to see son finish public school - I did - then I wanted to see him graduate high school- I did - saw him fall in love first time...etc... try that it helps. Best to you - Beth

Just wanted to say, diagnosed 2003. Lumpectomy, chemotherapy, radiotherapy + 5 years Arimidex. I visited this forum then for support and well remember the fear and uncertainty I felt during this unwelcome journey. No problems at all since. I know I desperately wanted to hear of positive outcomes, so I hope this helps someone.

Violette and Rolojolo -- welcome to Breastcancer.org!

Thank you so much for sharing your inspirational stories! Wonderful to give hope to many here who find it hard to remember that you CAN get through treatment and live a long, happy life. Cheers to many more happy, healthy years!

We hope you continue to share here, and inspire and support others.

--The Mods

Hi All. My aunt was diagnosed with ILC 22 years ago and is still going strong. She found a lump at age 45 on her right breast. She had a mastectomy without reconstruction and with all lymph nodes removed on that side, then chemotherapy, radiation and 10 yrs Tamoxifen. She deals with lymphodema because of the node removal (it was prior to the development of sentinel node detection) but otherwise is now retired and is living a wonderful life of travel, leisure and time with family. I was just diagnosed with ILC at age 45 via a lump in my right breast, so I look at her as a strong beacon of hope!! We are both carry the CHEK2 gene variant.

hi and congrats to all survivors.

All posts are with her2- I think, there are survivors withher2poditive grade 3?

I am diagnosed with this type and I will be encouraged to hear a positive story with type.

Thank

please someone reply!

I’m her2positive stage 3 Tumor 1.5cm. I am at the end of my devint ac and I noticed di this round and dfinnatly yesterday and today Sumerian’s blurry vision. Is ac creates blurry vision? Anyone experienced it

My ilc tumor was grade 2, and her2 +2 but fish test says her2-.

I hit my 15 year mark this month. I was diagnosed with inoperable, locally advanced ILC. We threw the big guns at it and I am still taking an AI.

Wow good for you Elaine1.   That is incredible.  

Wow Karen & Elaine! Many more.

I am 10 years out. I try very hard to live a healthy lifestyle: exercise almost every day, limit stress, eat a plant-based diet, surround myself with friends. I had to stop letrozole after 7 years because it knocked me into osteoporosis. I'm almost 62 years old and feel great. It's a reality check for my MO to remind me that ILC is sneaky and can recur much later than other forms of breast cancer. But I can't live scared. I do my best to live in the moment and enjoy whatever today holds.

7 year survivor, 5 of the years being stage 4.

I have mets to bone marrow, bones, ovaries and peritoneum...I try to make plans and always look to the future. Not to say I dont have super tough days, especially when ascites come back.