Refusing radiation therapy at age 72

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rbreny
rbreny Member Posts: 15

I had a lumpectomy 1/2018, clear margins, no lymph node involvement. Tumor was small ( 7mm) onco score 7, grade 2. I refused rads since I had been a long time smoker and was concerned about lung scarring. I am taking Arimidex (not a walk in the park) but I keep getting a gnawing thought that I made the wrong decision. I did a lot of research and what I found was that women over 70 often do not need rads for early state bc and that hormone therapy is enough. Any thoughts ?

Comments

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited February 2019

    My mom had BC when she was 85 and did seven weeks of radiation, 5 days a week. Except for getting tired (some of that was from driving to another town every day for treatment), she did fine with it in spite of having had lung damage and mild emphysema due to an infection years ago. I smoked for 49 years and finished my radiation in December with no problem that I know of. The beams are programmed to go around your lungs and heart in a curve, like string or wire art using geometric shapes to turn straight lines into curves.

  • rbreny
    rbreny Member Posts: 15
    edited February 2019

    Thank you Alice, I appreciate your response. I'm past the window of opportunity for rads I suppose time will tell if I made the right decision

  • edwards750
    edwards750 Member Posts: 3,761
    edited February 2019

    I was DX in my late 50s so while there is an age difference I did do radiation. I didn't have a choice - it was prescribed by my MO. I could have refused but frankly I was afraid to do that. Radiation has improved drastically over the years by targeting only the affected areas. Of course it isn't foolproof but it's better.

    I did have early stage too. IDC - Stage 1b, Grade 1. I had a lumpectomy and 33 radiation treatments. I was a long time smoker too and I was aware it could cause lung scarring but I felt I had to as part of my treatment plan. I dodged chemo because of a low Oncotype score which was 11.

    I am 7 years out last August. Several years ago a chest X-ray showed lots of lung nodules but that turned out to be nothing. The radiologist said the Xray was normal. Lots of people have lung nodules. My sister had one and she never smoked. Ditto my brother. Where I live there has been an outbreak over the years of lung nodules and the carrier is a bird virus.

    It's a gamble but it's your call. You should always do what's best for you. Don't second guess yourself now. There aren't any guarantees either. Did your MO recommend radiation?

    Time will tell if you made the right choice. At least you are taking meds. I know ladies who refused those. Who knows if that was the right decision either?

    Diane


  • SummerAngel
    SummerAngel Member Posts: 1,006
    edited February 2019

    rbreny, I would have done the same if I had been in your shoes. Your risk is low and radiation is not risk-free.

    My friend's mother got low-risk BC at about the same age and had many complications from radiation.

    Diane, you absolutely had a choice, we all have the final say in our health care.

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited February 2019

    We all have choices, but I generally base my decision on the medical expertise of the professionals rather than my uninformed emotions. Opinions and facts are not the same and I get really tired of hearing they should be treated equally.

    Old bat rant of the day.

  • Ibis
    Ibis Member Posts: 71
    edited February 2019

    I had 2 mastectomies for DCIS a year apart. The first mastectomy was necessary because of the size of DCIS. When I asked about lumpectomy for DCIS in the other breast, my surgeon said that radiation was currently not recommended for over age 70 in my situation as long as the person took the recommended anti-estrogen medication after the lumpectomy. Rbreny, this sounds similar to the research you found.

  • Salamandra
    Salamandra Member Posts: 1,444
    edited February 2019

    I met an older lady while I was doing radiation, she was almost 80. She had refused hormonal treatment but her doctor insisted on rads and she went along with that. She was willing to do something for a month, but not commit to a pill every day for years.

    We stayed in touch. She had typical SE (fatigue etc) but seems to have come through fine.

    I saw those 70+ studies too. I don't think they are standard of care yet, and I guess it varies a lot among doctors.

    I think that the radiation has enough short term positive impact on recurrence to make it worth considering even older. I mean, this whole thing is such a pain the ass. Even if you have a best case recurrence scenario (local, small, etc), do you really want to go through this all again in 5 years? Thinking about that was part of what got me fully on board with radiation.

    That said, you know your own life, lifestyle, anticipation about life expectancy, etc. Some 70-ish year olds, like my dad, are convinced they've already outlived their expiration date - he has a very low bar for refusing medical interventions. Others may feel fit and healthy and happily anticipating another 20 more enjoyable years, or more.

    I think that being retired also can make radiation lower impact/less stress, and worth trying even if the marginal benefit is slightly less.

  • Beaverntx
    Beaverntx Member Posts: 3,183
    edited February 2019

    I am one of the over 70 who is aiming for 20 more years (my father set the example, died one month before his 98th birthday). I have a PCP I trust who referred me to a BS who has an excellent reputation (which is well earned, I really like her) and she connected me with an equally excellent radiation oncologist (5 weeks of radiation, DCIS found in surgery sample, surgeon satisfied with margins but RO was not so had extra boosts). Oncotype was 17 so no chemo. I felt better about doing something besides surgery, but that was my comfort zone and not necessarily someone else's.

    What's done is done, not second guessing that just trying to live more healthfully!

  • SummerAngel
    SummerAngel Member Posts: 1,006
    edited February 2019

    Alice, I hope you weren't referring to my post, as I form decisions based on research and recommendations, too.

    NCCN Guidelines Version 2.2014 Senior Adult Oncology: "In patients 70 years or older, omission of RT can be considered for patients with stage 1 estrogen receptor-positive breast cancer who undergo a lumpectomy with negative margins and who are likely to complete 5 years of endocrine therapy."

  • rbreny
    rbreny Member Posts: 15
    edited February 2019

    I too had done much research and found lots of info. regarding this issue. I also read that many women opt for mastectomies even if they are not necessary. We all have to live with ourselves and make our own decisions. I would never think badly about any decision anyone makes regarding their health. Only the Lord can judge us !

  • Denise-G
    Denise-G Member Posts: 1,777
    edited February 2019

    My mom was 80 at diagnosis for Stage 1 BC - 1.5 cm - ER+ PR+ Her2 Neg Lumpectomy only. I made sure to take her to my NCI Designated Comprehensive Cancer Center. It was her decision, but the experts said Rads would help her an additional 3%. She made the decision not to do Rads, and the experts were happy about her decision.

    She took an AI for 2 years, but had balance issues so had to quit.

    She is now 5 years out and doing well.



  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited February 2019

    SummerAngel, I wasn't aiming my comment at anyone in particular; I had just come across too many comments on various threads about people basing their decisions on gut feelings or what they googled or what the cancer fairy told them, but not trusting well-trained medical professionals. Ugh.

  • Salamandra
    Salamandra Member Posts: 1,444
    edited February 2019

    I do think part of the issue is that it's one thing to plan to do endocrine therapy for 5-10 years. But the compliance rate is lower than it should be because some women have intolerable side effects - and you don't know if you are one of them or not until you try it. Doing radiation can be good in case the endocrine therapy doesn't work out for you for whatever reason.

  • edwards750
    edwards750 Member Posts: 3,761
    edited February 2019

    Yes I did Summer Angel but as I stated in my post I was afraid not to. I dodged chemo so I was relieved to do radiation instead. As long as we can live with our decisions that’s all that matters.

    Diane

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