Tissue Expander Infection....Help!

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vikingsgal
vikingsgal Member Posts: 4
edited February 2019 in Breast Reconstruction

Hi all -

I have read these forums for awhile, but rarely post.  I feel like I am really in need of people that understand what I am going through right now....

I had DCIS and chose to have a bilateral mastectomy in August 2010.  I had tissue expanders put in at the same time and was extremely lucky that I didn't need any addition treatment beyond the surgery.  I had my drains removed 3 weeks after the surgery and had both of my TEs filled.   I felt great.  Then, about 2 days later, I started developing signs of infection - fever, redness on my breasts, etc.  I went to my PS and when he drained the fluid it was all very puss-like and I ended up having surgery immediately to remove my left TE.  

 OK, fast forward 6 months.  My PS tells me that the skin has healed well enough and we can try again.  I had a new TE put in the left side in February.  All was going great.  I had my drains about a week ago.  On Tuesday, I had fills on both sides for the first time since August.  Again, I felt great.  Then yesterday, I had the chills all day and had a slight fever.  This morning I woke up to find my right breast was swollen.  I called my PS today and he put me back on antibiotics as a precaution.   Now tonight, I go to put on my pajamas and find that my right breast is very red as well.  

I honestly am not sure I can handle having this thing removed and starting over again.  It is emotionally tormenting.  Just when I start to feel a little bit "normal", it seems something awful happens and I have to start over again.  

Has anyone else had trouble with multiple infections?  Any advice on how to get through it emotionally?

Thank you....

Comments

  • oldgram1
    oldgram1 Member Posts: 56
    edited March 2011

    I had one incident of infection and had to have one of the tissue expanders removed.   I had made up my mind when I did that surgery that I'd give it one more try and then I was done.

    Thankfully, I've had no problems since.  The reconstructed breasts are okay but if one goes bad, I'm having them both taken out and will live without them.

    Gail

  • wan2bwell
    wan2bwell Member Posts: 22
    edited March 2011

      I had bmxty 1/17 four drains and like you, no additional treatment needed (YES!)  The TE were placed during surgery and filled with 300. The night the second set of drains were removed I was rushed to the hospital with 103.4 temp and back in surgery to remove the infection.  My PS did not remove the TE.  I was in the hospital for seven days and home with IV antibiotics for four weeks.  I have had two fills since then.  One 50 & one 100.  I was released from the infectious disease doc this week and go back to the PS next week for another fill. It is a long road. I hate the TE and am scared to look at them for fear they will be red or something, but we will make it...attitude of gratitude for all these wonderful ladies that share their hopes and fears and lives with us!

  • thenewme
    thenewme Member Posts: 1,611
    edited March 2011

    Hi Vikingsgal,

    Ohmigosh, I'm so sorry!  I haven't had infections, but other issues and I know the torment.  No advice, unfortunately, but you're not alone!!   HUGS! 

  • pamcycle
    pamcycle Member Posts: 39
    edited March 2011

    I had bmx with tes in June 2010.  I developed redness 3 weeks later with a temperature.  I was admitted to the hospital for 3 days.  A PIC line was placed and I was started on IV Vancomyacin.  I remained on that for approx. 2 weeks.  I had the PIC line removed then developed slight reddness on the other breast.  Started oral antibiotics.  This postponed starting chemo for 2 weeks.  I was extremely fortunate, the reddnes resolved just before the decision was going to be made to remove the tes. Chemo was then started.  No infections after that, exchange surgery last week.  

  • walker2222
    walker2222 Member Posts: 558
    edited March 2011

    My story is the same I had BMX and the right side was my tumor side.  I had my surgery 5/11/10 everything was fine the first week had two of my 4 drains taken out, that was on Monday then on Thursday I had a fever of over 100 and throwing up.  Called the PS and he prescribed antibiotics, felt better by Friday and Saturday, then Sunday breast was red and swollen. When to see PS on Monday for appointment, he took out the last drain on the left but was going to leave the right one in, I said something was wrong, had no fever but something was not right.  Well they took out the drain and puss was coming out.  Sent me to the hospital asap and put on 24hr antibiotics and had surgery the next day.  Left one was ok.  Let myself heal had chemo 4 rounds of AC and 4 rounds of taxol.  Then in November we tried again, every thing was fine had my fill, then after our return from Thanksgiving my incision started weeping and had sarcoma build up and had cellulose's on the skin.  Had the fluid drained every other day then thought the incision healed and the cellulose's healed.  After two weeks of this the incision started weeping again and then a whole developed on the skin above the incision which got bigger over the weekend.  Went in to have it checked out as I was in a panic.  TE was exposed and had to come out because it would not heal for months and I still need to have rads.  Long story short had right TE removed again before Christmas.  Through a lot of thoughtful prayer and talking with my DH, I decided not to continue with recon at this time and probably never.  4 surgerys in 6 months was enough.  I informed my PS of this in January when I was going through rads, he understood and told me to come see him three months after treatment and during that time think about it.  I would end up having to have a latis flap done on the right side, through all of this my left one was looking wonderful but still had TE in.  My three months is coming to an end and I am still not continuing with recon and I will have the TE taken out of the left side as well.  It made since to me to have both taken out instead of one reconstructed and one not.  I am sorry this is not of any help to you right now.  I am 47 and know I can handle not having breasts, I am not for sure your age which maybe a deciding factor.  You go through this thinking you have done all the research and have made an informed decision but it just boils down to what is right for you.  I would say stick with it if you can.

    Each story is so different and I know I could not have gone through what I have if I did not have my faith, the care and love of my DH (who just wants me happly and healthy) and DS, the wonderful sisters here and those I have found through my church.  I have prayed for you that the antibiotics will take care of this, that the possible infection will correct its self and that Jesus wrap his healing arms around you and give you comfort.

  • Kyta
    Kyta Member Posts: 713
    edited March 2011

    hi vickingsgal…I can relate to how frustrated/fed up you must feel. I'm hoping your right side is ok and that you don't have to remove the TE. This process takes so long, and when you have a setback, it's tough emotionally. You just want it to be done and over with!! I had TEs put in end of Nov 2010. A few weeks later the left side started to get red, and several weeks later, the pain started. I was started on oral antibiotics early Jan, then IV meds started end of Jan til early March when it stopped abruptly due to allergic reaction to the meds. Had the left TE removed 2 weeks ago as the infection didn't seem to be getting better. I'm now waiting a few months to have a new TE put in on the left side, and will be praying big time that it works this time. 

  • mintchocchip
    mintchocchip Member Posts: 13
    edited April 2011

    I had BMX on 2-7-2011.  The right breast was the cancer side.  After surgery I had fever, and left breast was red and hot to touch.  I had chills also.  After weeks of lets wait and see from PS, the incision was leaking, and blistered and I asked her to do something. I was admitted to hospital and was put on Vanco IV, then I did vanco IV for another 14 days at home.   We scheduled surgery to remove both expanders and skin at incision and replace with new expanders.  I still have some redness in left breast, but has not changed in 4 weeks, no fever, no chills, feel good, left side is very tight though.  Will find out tomorrow if PS will do fill on left side or not.  Right side is looking good. We have been holding our breathe as we are running out of time before they have to start radiation. 

  • JM1965
    JM1965 Member Posts: 4
    edited December 2018

    Last fill was two weeks ago (right side only tissue expander) Recently, it’s gotten really round and more sensitive - seems larger than usual at night. No redness or anything else though..I called my ps office and assistant said maybe I’ve been doing too much (I’ve had this te since my mastectomy in August, no problems except in the beginning they warned against doing too much ). Can seroma still be a possibility at this stage? My swap surgery is scheduled for mid February. Taking advil for the next couple of days and if it does not get back to normal I will go in and have it checked. It is supposed to be stretched more so I’m a bit confused. Have not had any pain since it’s been in, just a little tight after each fill, went very slow with fills. My question is, if it looks a bit swollen after a busy holiday maybe?) - should i be alarmed? This was the ps assistants take...

  • AliceKo
    AliceKo Member Posts: 151
    edited January 2019

    With the implants anything is a possibility at any point in time. While you have TE, when you get your permanent, decades after you have gotten your permanent. Watch it and see your PS. Good luck.

  • BigSister-2015
    BigSister-2015 Member Posts: 342
    edited January 2019

    bless you and hugs! I had a similar experience. I had a very small area of invasive cancer and lots of DCIS, so I dodged needing chemo. Since I am BRCA2 positive, I opted for a bilateral mastectomy with immediate recon.

    The left TE got infected and had to be removed. 3 months later they replaced it, and it got infected again, this time with sepsis—almost killed me.

    My PS didn’t want to do another implant and recommended a lat flap. That didn’t sound good to me.

    Long story short, I ended up with abilateral DIEP—best decision ever. Since it is my own tissue, no more infections. My breasts are warm and permanent—I won’t have to have implants replafed evry ten years.

    Wishing you the best. Infections really stink.

  • SunshineLo
    SunshineLo Member Posts: 2
    edited January 2019

    ladies. I had a bilateral mastectomy . I am 5'6 100 pounds 27 years old. Finished chemo in December and had my surgery January 11 2018 . I have tissue expanders in right now skin is very tight. They were filled a little at time of surgery and I hadanother fill 3 days ago. My right tissue expander I can feel and see it like Its gonna poke out of my skin under neath. Is this normal? Will it fill/smooth out over time with fills? Just odd it's only happening to my one side . Please let me know if this has happened to you

  • kandyhunt
    kandyhunt Member Posts: 87
    edited February 2019

    Help. I just need to vent, I think. I had exchange surgery on January 8th. On the morning of the 20th, Sunday I had chills and high fever, throwing up. Went to the ER. They found strep in my upper chest but not in new foobs. On Thursday night the 24th my right boob starts to leak and look so look infection. Cultures are done. A different kind of infection. Given 2 antibactics and sent home. Saw PS on Monday the 28th. I don't feel like I am getting any better. Tonight the boob has fluid still coming out. It's a pale reddish yellow. About the color of iodine.

    I'm so afraid that this will lead to anther surgery. And more set backs.

  • Kerryn135
    Kerryn135 Member Posts: 3
    edited February 2019

    I'm so sorry to hear of your troubles. I've also had a horrible experiences with expanders. I had the red swelling and fevers and was on anti biotics for about 6 months. In the end my surgeon took them out and replaced with silicon implants without realising I had actually developed pressure necrosis from the expanders. So a couple of weeks after my silicon implants were put in my mastectomy scar opened more and more every day to the point a quarter of my implant was exposed and looked like it was being pushed out of my breast. Unfortunately I had to have my left breast and implant removed but am currently still having mastectomy scar break down. Funny thing is I've had all the same surgeries done to the right side but there wasn't cancer in that side it was precautionary but the cancer side has been a 3 year battle. I now have a lot of recovery to do and then I will be having the skin flap on the last side instead. Not even sure if I want to now tho to be honest it's disheartening when there are complications

    Please keep me updated because I have struggled to find anyone that has gone through anythi g even remotely similar but your red swollen breast and chills just brought back some memories for me from 2 months ago .

    Best of luck x

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