Has anyone had Oncoplastic Surgery at same time as lumpectomy?

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BWH5
BWH5 Member Posts: 56
edited August 2019 in Breast Reconstruction

I am trying to decide on treatment and if go with surgery I would like a lumpectomy.

The PS recommends oncoplastic surgery at time of lumpectomy with reduction to other breast.

The NP told me later that if margins are not clear post surgery I would have no choice but to have a masectomy.

Has anyone experienced oncoplastic surgery? What were the outcomes?

Those of you who had DCIS how did your margins turn out with a lumpectomy?


Any help would be appreciated. Thanks

Comments

  • Mymomsgirl
    Mymomsgirl Member Posts: 174
    edited January 2019

    BWH5 I had Oncoplastic Surgery along with Intraoperative Radiation. The NP is correct on the margins, but since I was getting the reconstruction at the same time my BS took a little more to try to make sure there was nothing left, but nothing is a guarantee. My RO wanted to do some radiation during the procedure to make sure we had a good dose to the tumor bed before my PS started moving everything around. Since I was a little larger at the spot was at 11 o'clock on the left I also had the right reduced to match.

    I'm very glad I went with this option, it was one surgery and by having some radiation during the surgery I only need 15 sessions of radiation instead of 25-30. I also did genetic testing prior too because that was going to impact if I did a lumpectomy or mastectomy. It was all negative so I went with the Oncoplastic Surgery option.

    Good luck with your decision.

  • BWH5
    BWH5 Member Posts: 56
    edited January 2019

    mymomsgirl,

    Thank you for the reply. I am glad ask went well for you.

    Mine is at 9 and 10:00. Left side. 6.9 x 6.6 x 3.3 cm. And only .7 cm from nipple. I have large breasts but not huge. So it may be difficult formy BS to take extra for margins. She is not so sure the lumpectomy will work with me but is willing to try.


  • JosieO
    JosieO Member Posts: 314
    edited January 2019

    BWH5,

    I also had oncoplastic surgery at the time of my lumpectomy. Didn’t realize that I would, but my surgeon found that by the time all of the cancerous tissue was removed (I had tissue that did not appear cancerous on testing, but when the surgeon saw it he knew that there was more there), I had a large enough cavity that the surgeon felt I would look disfigured. So he went ahead and rearranged my tissue. When I saw it, I was totally blown away at how natural it looked. Forever grateful to him. My breasts were large so without the oncoplastic there would have been a noticeable difference.

    mymomsgirl was fortunate to get some radiation right to the tumor bed. Sounds like her entire team was ready for all needed options. That’s what you want, so ask your surgical team how they can/will address.

    Best wishes to you as you move forward

  • Mymomsgirl
    Mymomsgirl Member Posts: 174
    edited January 2019

    BWH5 does your BS work closely with the PS? Mine worked closely together and my PS was able to give me a good idea of what to expect, she even took a little more than the BS to make things come together a little more. Like JosieO said I would've had a divot. I see in your signature that yours is DCIS which usually means them measure the length. Did you ask your BS if they would remove the full dimensions? I had IDC so it was a mass 1.5 x 1.3 x 1 cm and my BS took a little more than normal margins (.2 cm) the were more around .5 cm.

    Did you get a second opinion from another BS? Is your BS part of a Breast Center? From what I've read that is the best route because they do this every day. Even though mine was pretty straightforward I found having a second opinion gave me piece of mind.

    One piece of advice I did get was you can always remove more but you can't put it back on. My mom had a mastectomy without reconstruction 25 years ago and after seeing her I just couldn't go that route unless I had to. Ultimately it is your decision and you have to do what makes you comfortable.

  • BWH5
    BWH5 Member Posts: 56
    edited January 2019

    josieo. Thank you fur the reply. I appreciate it. It sounds like you were in good hands. I will deficient ask them.

  • BWH5
    BWH5 Member Posts: 56
    edited January 2019

    Mymomsgirl.

    Yes. The BS and PS work closely together. And theymeasured it from the mammo and biopsies.

    My diagnosis was from one local hospital that my primary doctor is affiliated with. When they called with the dcis DX I switched immediately to the Stefanie Spielman Comprehensive Breast Care Center at the James, OSU. I never had a consult with the original hospital as the James is one of the best. My BS only does Breast cancer.

    I definitely want a lumpectomy and hope that it will be successful. I do not want a MX but know there may be that chance.

    Thanks for the reply.

  • HPFULL
    HPFULL Member Posts: 247
    edited January 2019

    Hi. I had a LICAP flap oncolplastic recon with my lumpectomy. They got clean margins the first time but I went to the PS today and it seems that the tissue didn’t take that well my breast is super hard and he said the tissues not dead but it’s not alive either. I was a bit upset and still am but I knew there were risks with the surgery. He didn’t check my blood flow from the tissue that he was pushed through for the procedure until the day of surgery if I had it to do over again I would’ve had him check prior to surgery day because he didn’t know until the day I had surgery that I had a weak blood flow from where he was pulling that tissue and I think

  • Stellawt57
    Stellawt57 Member Posts: 75
    edited January 2019

    I completed my sentinel nodes biopsies, BS, IOeRT, and reconstruction for my left with reduction for the right for symmetry in one 5 hr. surgery. My BS, RO and PS all counseled as to the best treatment plan for my cancer. All three verified completion of all procedures in one surgery would be benefical for me as my tumor was so small and preliminary findings showed the lymph nodes were clear. So I had surgery Oct. 3, 2018. The sentinel lymph nodes were clear and the procedures went as planned. Days later my pathology report indicated the margin was clear too. So additional radiation isn't needed. I'm taking part in a study for early breast cancer with single dose of IOeRT and in a way I feel I was coerced into the procedure as I fit all the criteria for the study. Hindsight is always best I'm second guessing my decision. What I'm struggling with is my cup size, I was told I would go down one size, C to B but was C to flat A. I've never been this flat! Hope this gives helpful insight or questions to get clarified!




  • HPFULL
    HPFULL Member Posts: 247
    edited January 2019

    I am sorry Stella that you went down to an A without you knowledge. I think I was persuaded to do the LICAP flap because the BS thought I was a good candidate. He didn’t go over all my options. I wish I would have pushed harder to have him go over all the options. Hopefully this will help people but it’s so hard at the time with the diagnosis and The wirlwind that follows

  • Stellawt57
    Stellawt57 Member Posts: 75
    edited January 2019

    I had a similar situation, when I talked with my BS she told me the reconstruction/reduction would be best as I had dense breasts with plenty of tissue for reconstruction. She explained the procedure very well & casually mentioned mastectomy, as she said it was to radical for the size of my tumor. Both the RO and PS confirmed I had plenty of tissue for a good outcome. As we all know getting the dx, test after test, and surgery plus any other treatments is so overwhelming. I know I will adjust in time, but for now I'm angry & feel I was manipulated for the study and the human aspect with real emotions was left out of the procedure!😖😤

    I know I'm my own worst critic & least patient with myself. The hubby has been my greatest support & cheerleader, he thinks they're perkily perfect

    DX 8-14-18, IDC left <1cm, 1A,grade 3, ER+Pr+HER 2- 0/2 nodes, surgery 10-3-18, taking anastrozol

  • HPFULL
    HPFULL Member Posts: 247
    edited January 2019

    Stella those are totally valid feelings. So glad you have such a wonderful hubby💕 sending you a big hug

  • Stellawt57
    Stellawt57 Member Posts: 75
    edited February 2019

    An update on my oncoplastic surgery, I had a 3 month follow up appt. with my RO 2 weeks ago & had an emotional break down. She tried to console me asking what she could do to help & I told her I had no idea as I didn’t know what I needed. A few days after the appt. I received a call from the PS office manager offering a second opinion with another surgeon. We scheduled the appt. I was hesitant in going & thought about canceling but decided to go. The PS offered a follow up procedure option to take care of my concerns. He also stated insurance would most likely pay as my concerns aren’t all that unusual following oncoplastic surgery. I haven’t seen my initial PS since 1 week post surgery, my follow ups have been with his CNP who needs a few lessons in manners when working with BC patients. I will see him in April & go over the options I received from the other PS. My RO helped answer my prayers I’m so grateful for her,

  • HPFULL
    HPFULL Member Posts: 247
    edited February 2019

    thank God for your RO Stella. I have an appointment schedule with a different PS in May. I hope I get some good options

  • BWH5
    BWH5 Member Posts: 56
    edited February 2019

    Stella did they offer to go back in and add to the size and make them look more natural? My BS and PS both told me this is an option after I am all healed. My PS mentioned small implants.

    I had my lumpectomy with oncoplastic reconstruction 2/5/19. Five hour surgery. While under they realized the margins were not clear so BS removed more and did get clear margins. She had to take more than either anticipated. My BS said the PS was not happy with the extra having to be removed. She worded it better than that. 😄

    I waa a C in LX left breast. Right was a C/D. I feel like after the swelling goes down I will be a good size B cup. At least I hope so. But I dont like the appearance. I cried when I first removed the bra and bandages. Then I cried every time I took a shower. Last time I took a shower was the first time I did not.

    Looking down at them they look natural and look. About the same as before surgery. But when I look in the mirror I see the large incisions under each as they have no natural hang to them. They look like cone shapes. Like an old Madonna cone shape bra. The BS and PS said after the swelling goes down they will hang more naturally. I don't know if hang is the correct word.

    After radiaton and they heal they said I can decide if I want to go back in to make them larger and or more natural shape. The PS said she left the right side a bit larger thinking I would want to go back in and work on the left. Funny thing is the right side was always larger and after plastic surgery it still is.

    I am thankful for the clear margins and both nipples still have feeling.

    They also said insurance would cover any additional work.

  • Stellawt57
    Stellawt57 Member Posts: 75
    edited February 2019

    I see my initial PS in April for my 6 month checkup and will talk with him to see what he says and will go from there. I haven't seen him since a week post surgery and I still had bandages. My PS's CNP has seen me for my follows thus and I refuse to see her any more due to her disrespectful, rude, & insulting mannerisms. I definitely will be asking about small implants to get back to at least b or c would be great. I'm sure they will need to use expanders to stretch the skin. It's been heart lifting to know that there’s a bright outcome to end this gloomy BC nightmare! It has really affected my self image for the past 4 1/2 months. My hubby continues to stand beside me & support me in every way!! Thanks to all for your support and suggestions.

    DX 8/14/18 IDC left <1cm IA, grade 3, surgery 10/3/18- 0/2 nodes, lumpectomy left, reduction right, IORT

  • Stellawt57
    Stellawt57 Member Posts: 75
    edited August 2019

    I’m updating from my last post, I had my revision surgery; to remove 4 skin cones (dog ears), incision pits & excess side bulge removed. This was on July 12th with the 2nd PS I met with verses my 1st because his options met my needs in a proactive way. Well the bandages came off a week later and now the surgical tape is off and what a startling shock 😧 huge incisions that are lumpy, more pits than what were there to begin with, and I’m so upset that the incisions are huge. I’ve started to massage them, but also want to see what lotion/oil to use too. I’m calling his office first thing in the morning to ask those questions & let them know these incisions are far worse than my first surgery. He also knows how I was struggling with the initial results! So I’m back to tear filled sleepless nights and the next day filled with bouts of frustration, anxiety & anger. I know it’s also early in the healing process, but these wounds are frightful. The skin cones that were removed from the each side of the breast bone are round verses the initial rectangular shape. At my 2 week post op appointment PS said everything looked to be healing well. I didn’t realize how lumpy & pitted the incisions were then otherwise I would have brought it up. I don’t think I’m asking for much, just to look & feel normal again!

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