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  • Flynn
    Flynn Member Posts: 307
    edited January 2019

    urdrago71, that’s annoying! I was stage 2b. I had a very small amount of residual and my insurance has been paying no problems. Except, in Jan my deductible reset so this cycles meds cost $1000 but soon i’ll hit the deductible again and go back to a low copay. Good luck getting your rx approved.

  • Meow0369
    Meow0369 Member Posts: 156
    edited January 2019

    santabarbian, I loved that post about the insurance getting bitch slapped! Hell yeah!

  • Volleyballmom2008
    Volleyballmom2008 Member Posts: 54
    edited January 2019

    Met my surgeon yesterday, good news, pathology report after lumpectomy showed no evidence of cancer in surrounding tissues or lymph nodes, chemo wiped my tumors completely out. Needless to say I am happy and scared about going forward.

    Waiting for radiologist to call back to set up radiation.

    Thank you all for being here during this crappie journey we are on.

  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited January 2019

    whoooooo! yay volleyball mom!

  • Vslush
    Vslush Member Posts: 183
    edited January 2019

    That's great, Volleyballmom!!!

  • urdrago71
    urdrago71 Member Posts: 559
    edited January 2019

    Volleyballmom congrats.. what was the one thing u wanted to do and cldnt as u were doing treatments? Well do it right after rads.. Also radiation depending on which side and where on body u will get rads. Lather twice a day as soon as u start..

  • Volleyballmom2008
    Volleyballmom2008 Member Posts: 54
    edited January 2019

    Thank you ladies. Relieved and terrified all at once. Urdrago71 what is the best.lotion to use? Also question to all. I finished chemo about 4 weeks ago. I did taxol first 12, then a/c last 4 rounds. Then had lumpectomy 10 days later. My question is when did you start feeling energetic? Not sure if me but I have no energy to do anything. I get things done but I push. Anyone else?

  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited January 2019

    I am nearly 7 weeks after my final chemo and I am beginning to feel more like my old self now!

  • urdrago71
    urdrago71 Member Posts: 559
    edited January 2019

    Volleyballmom, I used aquaphor, and lubriderm. Til i started turning red then the doctors office gave me lotions and creams to apply. I will take pictures of those tonight. I probably wld of made it through without burning but didnt know I should be applying lotions all the way to clavical and along upper back right side. Radition did go thru bcuz its so thin (less fat) there and angle. Any questions ask away...

  • cefinkc
    cefinkc Member Posts: 86
    edited January 2019

    Volleyballmom -- yes, radiation was a breeze compared to chemo. I stuck with hydrocortisone throughout and got red -- but never blistered. However, radiation will cause more tiredness. Mine usually hit around 5:00-8:00 pm. You feel great one moment, then your body says "I'm pooped". Congratulations on your pathology report!!!!

    Anyone else have joint pain (mine in the knees) post-chemo? I'm 14 weeks PFC, and the joint pain began coming on strong last week. Perhaps a late side effect of Taxotere?

  • Missourimom54
    Missourimom54 Member Posts: 19
    edited January 2019

    I've just been diagnosed with the Triple Negative breast cancer. Am I in the right group? I'm awaiting a treatment plan. I'm not loving the things I'm reading about survival, but I know better than to go there right away.

  • Valstim52
    Valstim52 Member Posts: 1,324
    edited January 2019

    missourimom, yes you are in the right group. welcome, sorry you have to be here, but you are in the best place for support.


    val

  • urdrago71
    urdrago71 Member Posts: 559
    edited January 2019

    missourimom, i found this place amazingly supportive and helpful as I went thru my treatments. Theres different topics as well that will be supportive as you journey thru the treatment plan. We all are uniquely different and alike. Ask anyone for information blog or send a private message.

    Sending you peaceful vibes and cyber hugs.

  • Mncteach
    Mncteach Member Posts: 274
    edited January 2019

    Welcome to our group missourimom... sorry you have to join us, but glad we can offer support. There will be many questions and someone usually has the answer!

  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited January 2019

    In addition to our TN group, you might also check out the threads for groups of those going through chemo or surgery. They can answer a lot of questions and provide support as well. It's a lot to digest... but the more you understand the more you can be a good advocate for yourself.

    Wishing you the best!


  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited January 2019

    I have been looking into proton radiation. I have Obamacare/ Blue shield in California - gold plan. So far, based on having a TNBC diagnosis as well as a left sided cancer, I AM able to get coverage at an out of state proton center, and they will not charge a larger copay than the copay "max out of pocket" for my plan (which I will meet no matter what). Of course, a month in a different town isn't free but the coverage level surprised me.

    In case any other TNBC sisters have an interest in proton rads, thought I should mention this.

  • JCSLibrarian
    JCSLibrarian Member Posts: 564
    edited January 2019

    Missourimom,

    Sorry you have to be here, but it is a great place to get information on all kinds of topics. Check out many of the different forums as the info can be interesting. Fill out your diagnosis information in your signature if you are comfortable with that. It helps people to see if theyare going through a similar situation.

    I was totally surprised by my initial diagnosis. And it kept going from bad to worse with each test. I am going to remain positive and focus on the fact that several people have lived long, happy lives with my diagnosis. Do not Google too much. It can be dangerous!

    Take care!

  • cefinkc
    cefinkc Member Posts: 86
    edited January 2019

    Welcome MissouriMom. Sorry you have to be here, but this blog is a great comfort and my security blanket. Such great strong women. I’m in Kansas City treated by University of Kansas. Are you on the west side of Mussouri

  • QueenKong
    QueenKong Member Posts: 154
    edited January 2019

    Hello Everyone,

    Five year survivor checking in.

    edited to added: 6.5 years from diagnosis I realize. Chemo brain is real.

    Keep moving.


  • moth
    moth Member Posts: 4,800
    edited January 2019

    QeenKong - congrats & thanks for checking in! Keep on staying healthy!

    I spent a chunk of last week on the phone re-arranging my follow up appointments now that I have my school schedule sorted out & that kind of ratcheted up stress, just having to think about this all again.

    I have a diagnostic mammo on Feb 21, oncologist on Mar 14, and endocrinologist (to discuss chemo induced osteoporosis tx though my GP has already started me on Prolia) on April 15. Plus bloodwork etc. It just struck me that cancer is still taking energy and space in my mind, plus sucking up actual time, and making me do something about it each month.

  • Missourimom54
    Missourimom54 Member Posts: 19
    edited January 2019
  • Missourimom54
    Missourimom54 Member Posts: 19
    edited January 2019

    Hello, thanks for writing. I am in South Kansas City and my hosptial and doctors are all associated with KU, too!

  • Missourimom54
    Missourimom54 Member Posts: 19
    edited January 2019

    Thanks for the encouragement. You hang in there, too!


  • Missourimom54
    Missourimom54 Member Posts: 19
    edited January 2019

    Thank you for welcoming me!

  • Missourimom54
    Missourimom54 Member Posts: 19
    edited January 2019

    Thank you for welcoming me!

  • anotherNYCGirl
    anotherNYCGirl Member Posts: 1,033
    edited January 2019

    Welcome Missourimom, - and ditto to all the previous responses you received! This board is the BEST place for those of us on this 'journey'. I'd rather we be sharing a trip to Hawaii or the like, - but I am forever grateful to have you all along this journey, too!!

    QueenKong, - Thanks for your wonderful update! Keep them coming!

    Big storms predicted in many parts of the country for the next couple of days. Stay safe and stay warm everyone!!

  • cefinkc
    cefinkc Member Posts: 86
    edited January 2019

    KU is awesome. I’m so blessed to have them

  • Flynn
    Flynn Member Posts: 307
    edited January 2019

    congrats, volleyballmom!

    Also congrats to queenkong!! Always good to hear from those further along on this journey!

    Welcome Missourimom. I’m sorry you’re here but happy to help in any way.

    Moth, I hear you. Life certainly is still complicated post treatment. I’m doing well and yet I feel like I pour so much energy into managing my health.

    Take care & stay warm, to all my fellow TN’s!

  • kathyrnn
    kathyrnn Member Posts: 393
    edited January 2019

    Hello Lovely Ladies. I am an OLD timer from this thread. It breaks my heart to see so many new members. I hope my post will give you some encouragement.

    I was diagnosed in 2011 and had a rapid re-occurence (sorry SP) in my lymph nodes in 2012. At the time they gave me 2 1/2 to 3 years. There were some factors that were discovered after that estimation. First they admitted that the diseased lymph node was probably there at original diagnosis and missed. (Apparently Sentinel node biopsy isn't fool proof). Second, I convinced my new oncologist to AR test my tumor. (Testing was fairly new at that time, but I had a sneaking suspicion because I had been on testosterone replacement before CA raised it's ugly head). I was 99% AR+. (Waves Hi to Santabarbarian. Thank you for that interesting link to tumor types.). I have great fun telling people I basically have Prostate cancer. (I have a PSA test every 3 months) It makes me laugh that God apparently has a sense of humor. I take this AR+++ status as proof that my big balls decided to bite me in the ass!

    This March will be five years since the end of my last round of chemo and radiation. I'm still here and many of you lovely ladies will have many good years ahead of you! I don't fool myself, I know that it may rear it's ugly head again, but I've survived for 8 years. Have hope lovely ladies!

  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited January 2019

    kathyrnn, so good to hear from you and know of your success! BTW I was 90% AR+ so I am interested in perhaps following up on that in terms of prevention. You really get PSA? That's cool. I wonder if i should ask for one for baseline in case I should want to monitor that in terms of recurrence?

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