Need some advice with sleeping, anxiety, etc

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kec1972
kec1972 Member Posts: 269
edited January 2019 in Just Diagnosed

I was diagnosed about a month ago. I am going through the period that I'm sure you've all been through where I am having anxiety and stress and trouble getting a good night's sleep at night. I really don't want to rely on pills for these symptoms. Wondering if anyone could share any meditation techniques, or anything else that has helped. Thanks so much! Karen

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  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited January 2019

    Look into melatonin. it has anti metastatic properties and helps sleep a lot. I take 20 mg/night but you have to work up to that amount.

    Also, deep breathing, and counting breaths can really help disengage your mind.


  • Jenkins00
    Jenkins00 Member Posts: 144
    edited January 2019

    Oil diffuser with lavender or CBD oil which does not have THC in it. I use both to help with sleep. I also have a relax meditation app on my phone.

  • MBPooch
    MBPooch Member Posts: 229
    edited January 2019

    One 250 mg of Magnesium taken with a vitamin D chewable has worked wonders for me! Take it an hour before bed, works amazing.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2019

    Melatonin works for some--3 mg I think is the recommended rx (you can buy it over the counter). Magnesium will also relax us, along with theanine, an amino acid. I've had to clean up my sleep hygiene to enhance my "stay-asleep" button, so I go to bed at the same time, turn out the lights an hour before that, stop phones and other screen time (other than TV) an hour or more before at least, stop eating at least 2 hours before bed, and (important) watch something funny and lighthearted as the last thing I watch on TV before I sleep (or read something lighthearted--an escape-I like historical fiction).

    I know you don't want to medicate, but I found that half a .25 mg tablet of Xanax was enough to take the edge off my worry and fear, and helped me sleep when I needed it. I didn't use it every day or every night. But I figured my gripping anxiety during the first 2 months was enough to harm my health, and my surgeon and PCP both agreed that if there was ever a time to need a bit of Xanax help, this was it.

    We all get where you are, and it does lessen. Big hugs. Let us know how it's going~

    Claire in AZ

  • kec1972
    kec1972 Member Posts: 269
    edited January 2019

    Thank you all for your suggestions and kind words. I will try them all. I think I am probably going through the most stressful time right now, in between surgery and rads. Thanks again and hugs Karen

  • BellasMomToo
    BellasMomToo Member Posts: 305
    edited January 2019

    I've been using Melatonin for years. 3 mg usually works for me. There are 'time release' versions that may help with a longer sleep.

    But sometimes melatonin isn't enough for me. Those nights I take Zzzquil. It's just liquid Benadryl, but works much faster. Funny, I don't get drowsy when I take Benadryl tablets, but I do with the liquid version.

    With melatonin/Zzzquil, I don't wake up feeling drugged.

  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited January 2019

    the 20 mg dose is re anti-metastatic properties. I have no trouble sleeping without melatoni, but I take it for the other reason, and it KNOCKS me out.

  • kec1972
    kec1972 Member Posts: 269
    edited January 2019

    that’s interesting, I never knew that about melatonin

  • Dani444
    Dani444 Member Posts: 522
    edited January 2019

    I take 10mg of melatonin and it does help me. I also will use CBD oil if I am feeling anxious or my mind won’t allow sleep. I hope you find something that works for you.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2019

    santabarbarian, can you share a link to research about higher rx of melatonin and anti-metastatic properties? I'd love to see it!

  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited January 2019
  • Egads007
    Egads007 Member Posts: 1,603
    edited January 2019

    When I first started tamoxifen I was advised by my NP to try Magnesium supplements for muscle spasms.....that 50% of sufferers would see a marked difference. Unfortunately it wasn't one of the 50%'ers. What did happen was an INCREDIBLE difference in my sleep. Pre-mag I would get, if lucky, 4 hours of 'meh' sleep. Post-mag I was sleeping solidly for 6 to 7. Thinking it was a co-inky-dink I stopped the mag supplement and my sleep went right back to lousy. I can't recommend magnesium enough...worth a shot.

    Because of my GI issues I waded in carefully. All magnesium supplements are not created equal (some cause diarrhea, hence why mag is used in colonoscopy preps). The cheapest, and most available (Magnesium Citrate/ Magnesium Oxide) should be avoided if you have GI issues. Magnesium Bisglycinate or Glycinate are highly absorbed and don't cause tummy issues. It's all I take because of Ulcerative Colitis.....never a prob.

    Obviously our doctors should be consulted before taking any new supplement, but know that 48% of North Americans are Magnesium deficient so it most likely won't be a problem....Mag deficiency symptom: Poor sleep.


  • Salamandra
    Salamandra Member Posts: 1,444
    edited January 2019

    I happily use pills for help but because you said you were looking for non-pill methods here is a thing that I read about that has been somewhat helpful for calming me and putting me in sleep mode. It's a word game for sleep.

    Also, SantaBarbara, I'm interested in the melatonin. I didn't realize that the dose was that high for the anti-metastatic properties. I will try to do some more reading but if you have links handy, I would love to see. My sleep is bad enough that the idea of a combination sleep+anti-cancer drug is super attractive.

    Eegads007, thank you so much for linking about the magnesium. I'm interested in trying that too.


  • Dani444
    Dani444 Member Posts: 522
    edited January 2019

    That is interesting about the anti metastatic properties of melatonin. My neurologist also recommended it as a help with my chronic migraines as well as sleep. Egads, thanks for the tip on the type of magnesium. I have been looking at supplements to get started on but I seem to get overwhelmed!

  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited January 2019

    I do not have a specific link-- taking it was suggested by the integrative cancer doc i had a consultation with, and my dose was determined by my naturopathic physician.

  • BrinkOfEternity
    BrinkOfEternity Member Posts: 207
    edited January 2019

    I don't like taking pills either. Soon after diagnosis I started baking different desserts, collecting recipes and cooking new (but simple) dishes which have been therapeutic for me. Recently I started listening to audio Bible on my phone and that keep my mind off worrying as well. I literally fell asleep before they finished reading Numbers 1.

    I think using essence oil diffuser may help as well. I haven’t tried it though.

  • kec1972
    kec1972 Member Posts: 269
    edited January 2019

    Thanks for all the tips everyone. I will try them all.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2019

    Very interesting discussion about melatonin! Apologies to kec1972 about kind of hijacking your thread. I hope some of what was suggested here helps. Time, also, to wrap your mind around the shock of finding out about a b.c. dx will also ease the anxiety and sleeplessness somewhat. You'll begin to feel confident that you will get fierce, get treatments, and kick c to the curb. You're going to be fine!

    Hugs

    Claire in AZ

  • lyzzysmom
    lyzzysmom Member Posts: 654
    edited January 2019

    I like to listen to guided breathing or meditation on YouTube, also ASMR virtual head massage, head scratching or hair washing videos while wearing an eye mask and headphones. Super relaxing.

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