Can anyone describe their chemo? Stage 2a

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Anonymous
Anonymous Member Posts: 1,376
Can anyone describe their chemo? Stage 2a

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  • Juleseyes
    Juleseyes Member Posts: 20
    edited January 2019

    Hello, this is about my mom(55),we had the apt yesterday after her surgery and there were no surprises other than the one lymph node they knew about (0/9, 1.2 cm) and the breast with calcifications and 1.8 cm tumor (mastectomy).She has an apt with the cancer Center but not for another month!!! Surgeon says due to the lymph involvement there will definitely be radiation and HIGHLY likely chemo. She is upset that she needs both but says she's willing to do what it takes. However...this may sound like I'm judging but...she has a lot of friends who are kind of fear mongering. They are "devastated" and "so disappointed" to hear that she needs chemo. They are insisting that sugar feeds cancer so now she's beating herself up with the smallest treat. They go on and on about how cancer loves an acidic body rather than an alkaline one - what? Doesn't our body regular our Ph level on its own? I'm so afraid they are going to convince her to go some alternate path. They are probably the reason she skipped mammos for 5 years because she didn’t want the radiation on her thyroid. She's already seeing a naturopath but she insists it's to "integrate" her through the chemo with vitamin c injections to bolster her immune system. However she mentioned that the naturopath said not to TELL HER ONCOLOGIST that she's seeing him? What? Is it just me or does this sound sketchy. I'm so afraid my mom will buy into this irrational fear of western medicine and skip chemo. Chemo is the best chance you have of not having cancer recur which is way worse.... were so close to having this nightmare behind us. I wish I could take the chemo and rad for her. Can anyone tell me that it wasn't that bad? Thank you.

  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited January 2019

    First, in general, chemo is nothing to be terrified of. It can range from tolerable to quite unpleasant but there are wats to handle the side effects that come up. I was more tired than I could have imagined, but less sick.

    Every chemo is different, and every cancer is as well. But for me, not that bad. I was very proactive. Gave up sugar etc. So maybe I am similar to your Mom. I also took IV vitamins, along with chemo and surgery. But I told my oncologist about it.


  • Juleseyes
    Juleseyes Member Posts: 20
    edited January 2019

    thank you. I do not mean to diminish certain beliefs especially in regards to nutrition, I mean, processed sugar is of course of no nutritional value to anyone and therefore doesn’t help the body thrive.

  • Meow13
    Meow13 Member Posts: 4,859
    edited January 2019

    Is she hormone negative? I would think a second opinion might be a good idea.

  • Juleseyes
    Juleseyes Member Posts: 20
    edited January 2019

    hi she is hormone positive, and her2-

  • Meow13
    Meow13 Member Posts: 4,859
    edited January 2019

    Juleseyes, if she only has 1 positive node she might want to get an oncodx test or mammoprint test done. That test can help with decision to have chemo or not assuming she would do hormone therapy.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2019

    Hi Juleseyes,

    As was mentioned earlier every cancer is different and every body reacts differently to chemo. But as for myself chemo wasn't nearly as bad as I feared it would be. They have to warn you about all the side effects you "could" have. Just like medicines list all of the side effects you could have but not every body has all of those side effects. They are very proactive in prescribing preventative meds for all of the side effects - I had 2 for nausea, one for diarrhea, two for constipation, one for mouth sores, one for acid reflux. They also give IV pre-meds prior to chemo - for nausea, I had Benadryl because I have so many drug allergies, etc. They tailor the pre-meds to each individual's needs.

  • MoonGirlJess
    MoonGirlJess Member Posts: 267
    edited January 2019

    I had a naturopath also, I asked my oncologist about all supplements the naturopath wanted me to take through chemo. Many times my onc said no to supplements as they help the cancer to survive through treatments. I used to take tons of antioxidants—turmeric, astaxanthin, ginger,vitamins, etc. but put those on hold for chemo and soon radiation. I also had a pristine diet for years prior to my diagnosis at 41 years old. Pristine. No meat, no dairy, no sugar. I was a gluten free, vegan. Seriously, I only ate organic plants, seeds, lentils, beans, brown rice. I never strayed from my diet—ever. I was not fun to go out to dinner with. I ran and did yoga daily.

    I, too, was devastated when I had to do chemo. Devastated. But, I’m 15 days out from my last chemo. I’m glad I pushed through. Do not keep secrets from your onc. Don’t take anything they don’t ok. If your mom wants to eat clean and do the alkaline diet by all means eat clean. Just don’t take supplements. Juice up the veggies and ginger and turmeric. That’s what I do.

  • Juleseyes
    Juleseyes Member Posts: 20
    edited January 2019

    thank you for this moongirljess. Can I ask, do you still maintain that diet? Although some things about naturopathy concern me, I do of course believe in eating healthy foods.And this scare in general has got me thinking that we all need to have pristine diets or else. But it seems to not matter, when I hear of cases like yours :/

  • WC3
    WC3 Member Posts: 1,540
    edited January 2019

    Yes that naturopath sounds sketchy. We don't keep secrets from our cancer care team! They need to know everything their patients are taking, supplements included, because some of these supplements can cause bleeding problems during chemo or metabolic issues.

    My chemotherapy wasn't fun but manageable. I had infusions every 3 to 4 weeks. I would sleep afterwards and spent a few days in bed and then light activity with lots of rest breaks. Acid reflux was a problem but I could have managed it better. I didn't have much nausea as that was managed pretty well but I did have bad stomach cramping which I eventually got under control with diet + imodium and I think they also lowered my chemo dose. My throat would get very tender for a few days after the infusions due to dexamethasone withdrawal and my tongue would get very sensitive for a week or two. I also had taste changes from the anti nausea drugs early in my chemo cycle and then from the chemotherapy itself later on. I got fatigued due to anemia and also had some petechea due to low platlets and then there were some other things like some neuropathy but mine was the numb type mainly.


  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited January 2019

    I would absolutely request the Oncotype (her surgeon can submit the tissue sample) and/or the Mammaprint before proceeding any further. (There's information on the main BCO site on both tests.) Her insurance should cover both of these. If not, ask the laboratories involved about patient discounts, which can be generous and fairly easy to qualify for.

    In many cases endocrine therapy (aromatose inhibitors/tamoxifen) can be at least as effective (if not more so) as chemo. I had two positive nodes and did radiation (a given, regardless, due to tumor location) and letrozole - no chemo. I've had numerous scans in the last 4.5 years (for other reasons) and at this point show NED and feel fine. This isn't to say your mom's results would be the same but to give both of you something to discuss with her team. It does require a committment to staying on letrozole (or the like) and it sounds as though her friends may try to talk her out of endocrine therapy as well as guilt-tripping her about her nutritional approach, so maybe be prepared for that. Good luck to both of you.

  • ksusan
    ksusan Member Posts: 4,505
    edited January 2019

    My chemo was manageable. These days, I might not have received it due to changing standards, so I agree she should get an oncotype. My naturopath and oncologist worked together. She absolutely should not keep secrets from her oncologist--in fact, the naturopath suggesting she should could be grounds for disciplinary action by the naturopath's licensing board. Antioxidants are stopped during chemo and radiation because they make the allopathic treatment less effective. As to her friends, no, that's not how bodies or cancer work.

  • CBK
    CBK Member Posts: 611
    edited January 2019

    Whoa!!!

    I’m a big fan of supplements and modifying diet for best outcome. But not keeping oncologist informed is completely against every rule in the book. I would strongly recommend your mother reconsider that naturopath. She can’t have it both ways to be a success without disclosure!!

    Chemo was no walk in the park; I had a long and aggressive regime. But I never vomited, I ended up gaining weight on my second regime and my side effects were well managed with pre-meds and meds they send you home with. It honestly wasn’t as bad as I anticipated. I carried on a relatively normal life. Trouble sleeping was big for me because of the steroids involved and getting constipated. There are no regrets for me doing chemo in the least

    Who are these “friends” have they beat a cancer diagnosis? I hope she starts to trust her oncologist and know at an early stage she has a great shot of kicking cancer to the curb with either chemo or rads or both.

    Good luck to you Jules and your Mom!!

    Feel free to ask anymore questions you need to!!

    Hugs

    KC

  • MoonGirlJess
    MoonGirlJess Member Posts: 267
    edited January 2019

    Juleseyes—during my initial chemo (AC) I absolutely couldn't eat any raw veggies at all. I got to the point that I had to start eating bread again as I was dropping waaayyy to much weight. I got down to 104.8 pounds and at 5'7" I was painfully thin. (I got sores on my tailbone from sitting) I could tolerate bananas but none of the other berries I used to eat daily. I ended up incorporating cheese back into my diet. I could tolerate cheese pizza relatively well. And lasagne. Still I don't eat meat of any kind. I never had any indigestion issues but that was the only SE I missed.

    My case blows. I agree. The family joke is that I was too healthy and that's why chemo was rough on me. I'm almost back to my plant based diet as I can now tolerate eating raw fruits and veggies again. I make a Vitamix fruit/veg/seed smoothie almost every day. I can eat salads again—it has been months since I could stomach a salad. I'm still super skinny but gaining slowly on healthy foods. During chemo it was any port in the storm.

    PM me for anything this journey is insane but the clouds do part

    Jess

  • Runrcrb
    Runrcrb Member Posts: 577
    edited January 2019

    jukeseyes, go read the AC thread in this section. Have your mom schedule a second appointment with another oncologist if she is worried about treatment plans. Have her heal from surgery. Chemo was easier than radiation for me. Tell her to stop talking to her friends who have not had breast cancer.

    PM me if you want.


  • jo6359
    jo6359 Member Posts: 2,279
    edited January 2019

    Jules- each person is different. I found chemo to be very manageable. It wasn't fun. I was able to work and exercise almost every day during chemo. Food tasted like crap. I considered the horrible metallic taste in my mouth to be my worst side effect after chemo. I Incorporated food into my diet that I've never eaten. I added Dairy to my diet and salmon and tuna. Didn't make any difference I couldn't tolerate it so I went back to my vegetarian lifestyle. My biggest problem was I never lost my appetite but I couldn't tolerate the taste of the food. When I realized I was losing too much weight I started Chugalugging Gatorade. I didn't have any weight issues prior to chemo and I maintain my weight throughout chemo. Maintaining my weight was a challenge. Best of luck to your mom.

  • BrinkOfEternity
    BrinkOfEternity Member Posts: 207
    edited January 2019

    Hi,

    I asked a Dana farber nutritionist about the acid vs. alkaline theory and she said there’s a lot of barrier between our digestive system and the rest of our body that would prevent our food ph level to make any difference. Also sugar itself is not bad, but sugar spikes, because that triggers insulin production which *may* stimulate cell growth.

    On chemo, i had weekly Taxol and it really hasn’t been that bad on me. Just some minor fatigue and nausea on days 3-5. And neuropathy, which is getting better post chemo.

    On alternative medicine, I have seen it help people improve chronic health conditions and such, but cancer is really too aggressive for it to make much difference. As a warning, my mom took Chinese herbs (known to remove toxins) to help alleviate side effects from Taxol, and her cancer recurred within months of completing chemo. If your mom does decide to use alternative medicine, make sure you understand how those supplements would interact with chemo.

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