Quitting chemo early?

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  • Jaybird627
    Jaybird627 Member Posts: 2,144
    edited May 2018

    Hey Amelia01,

    I'll ask my onco about it. Did every 2 weeks last time and I had to quit. I'll see if it is an option. She knows about my neuropathy issue and how scared I am about the pain I expect to have (again).

    And my onco may do the A/C again because of my terrible adverse reaction to taxanes. And that is another set of possible issues. :(

    Where do I find a thread/info about CBD oil that may be helpful for me. I live in Illinois and there are many dispensaries here. I've been reading about how CBD oil may help with neuropathy.

    Thanks!

  • buttonsmachine
    buttonsmachine Member Posts: 930
    edited May 2018

    Hi jaybird, I have no idea if this would be appropriate for you - but Xeloda is a pill chemo that might be easier to tolerate than the taxanes or AC. My MO called it the mildest chemo, and so far it's been much better for me.

    For me AC was hard, but doable. I reached my maximum dose of Adriamycin, and my MO said more isn't worth the heart damage in my case. TC was very bad - I had an extremely bad and painful neurological reaction to Taxotere, so taxanes are off the table for me. Xeloda it is.

    Anyway, there are other options. I'm sorry you're facing this again.

  • Amelia01
    Amelia01 Member Posts: 266
    edited May 2018

    Jaybird - I'll send you a PM with some details for obtaining the right CBD oil in Illinois. I haven't tried it (yet):


  • HopeBry
    HopeBry Member Posts: 88
    edited January 2019

    Glad this Forum is active. Im a TN, stage 2a, grade 3, no lymphs. Did my 3rd AC infusion and have been vomiting for days, losing weight, cant eat, fatigued,feeling faint, cant stand for long, shortness of breath anemia. Got so many different nausea meds and they dont work. I told oncology Im not doing the 4th AC. They are trying to talk me out of it saying but your a TN. I dont think it would make a huge difference. I just want to start on the Taxol. My tumor was caught early by me at 2.1cm. It has gotten smaller. I am eligible for a nipple sparring because the tumor is towards the back. I dont know if many of you have been fine skipping a round, I want to believe as well.

  • Meow13
    Meow13 Member Posts: 4,859
    edited January 2019

    HopeBry, maybe you can try a different type of chemo like buttonsmachine has done. I know they want you to cave in and finish but if you are not willing. My oncologist pulled out the scare tactics but I put my foot down. You know best as to how you are doing and ultimately you are the decision maker.

    The suffering people have gone through is hard to imagine you have to weigh it against your goal.

  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited January 2019

    HopeBry

    Have you tried fasting before chemo? It can really help. My SEs were a lot less.

  • HopeBry
    HopeBry Member Posts: 88
    edited January 2019

    Hi Ladies, Im not eating, barely drinking so everyday is a fast. During chemo Im ok because they pump you with liquid nausea meds. Its the days after Im feel like Im in my last leg at home. The drugs arent working. There telling me its psychological which I believe some of it is but I cant take it. I dont believe there are options for TN BC except the hardcore chemo because Im told thats the main thing we have the cancer reacts to.

    There solution is for me to come in for daily hydrations. Im too ill to jump in my car and do that. The hospital makes me want to vomit everytime I go. I have a child to care for at home. Its too much. I think their main concern is people quitting mid way because they lose money on treatment cost. The money is in the treatments. I will have to see what next week brings. Thats when I have to make my decision to still get the last AC or start Taxol.

  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited January 2019

    HopeBry is there a way someone can give you (and your child) a ride in for fluids? Can they use a mobile nurse? See whether there are options. IVs help a LOT.

  • Denise-G
    Denise-G Member Posts: 1,777
    edited January 2019

    HopeBry - I begged my MO to let me stop at Infusion 3 of AC - literally begged. He took my hand in a doctorly fashion and said he would not let me quit. I finished it as sick and horrible as I was, and moved onto Taxol - #4 AC was better than #3.

    I am now 7 years out. Literally, there is not a day goes by even now that I am grateful that my MO would not let me quit. Did it make a difference getting that last AC? I will never know. But I do know that I am still here after lots and lots of SEs, a heart attack, and too much to go into here.

    After talking with hundreds of breast cancer patients through the years, #3 AC seems often to be the worst and wanting to give up and quit and move on to the next are normal feelings.

    Tell your medical team what you are telling us - you need help to get to hydrations. The IV fluids help ALOT!

    Sending you all my best wishes and as much strength as I can...

  • Meow13
    Meow13 Member Posts: 4,859
    edited January 2019

    They begged me to do AC& T, I said no, I just couldn't do it. I wouldn't do it, I did not want to compromise my good health. Little did I know the permanent side effects AI drugs would have. My situation was different being I was being treated for prevention.

    I am 7 years NED. I must be convinced before I proceed with any medical advice from this point further. Understand your situation snd make an informed decision that you can accept.

  • Kathleen26
    Kathleen26 Member Posts: 210
    edited January 2019

    I too suffered terribly from nausea from the AC. By the 4th round, I was on 4 different nausea meds, but by that treatment, things did get easier. I agree with the earlier poster that the 3rd treatment was the worst. You've already invested in 3/4 of the AC part of the plan. From what I understand chemo is calculated as a single dose based on your specifics, divided over a number of treatments, so just doing part of the treatment may not give you all the benefits that you need.

    You say it won't make a huge difference, as if a small difference in outcome is acceptable, but there are only two possible outcomes: your cancer becomes metastatic or it doesn't. With TN, this is your best shot at trying to achieve the second outcome. Everything will become much more difficult if you don't beat it back now. It's just a couple more weeks.

  • YATCOMW
    YATCOMW Member Posts: 664
    edited January 2019

    I agree with Kathleen26..... you're triple negative.....chemo works best on you! This is your best shot.

    I have a saying with my kids....."You can do anything for six months"......whether it's putting up with a boss until they find a new job....or don't like their professor....whatever it is I tell them this saying. They suck it up and get to the other side of it.

    You can do this....know that this is not forever and it will be over. I don't think we can emphasize enough....you have one shot at this. Kathleen26 is right....there are two outcomes.

    Hang in there. We know it isn't easy;) I hope this didn't come across too harsh as we all just want to support you.

    Jacqueline

  • buttonsmachine
    buttonsmachine Member Posts: 930
    edited January 2019

    HopeBry, I want to say that I respect your decision either way. No one except you can know how you're feeling.

    That being said, I hope you'll be able to finish AC. I've had two local recurrences, and I'm at extremely high risk for distant recurrence. Believe me, your life does not get better if your cancer comes back... it's hard, but it really is better if you "do it right the first time," as one MO I saw put it.

    If the AC chemo is working, and your tumor is smaller, that is EXCELLENT. My point is this: there's no guarantee that any chemo will work on any particular cancer. (My strongly ER+ cancer actually grew during some chemos - which was disappointing to say the least.) Anyway, if AC is working for you, I'd do that 4th dose.

    However, you could also ask your MO about alternate regimens if you really can't tolerate more AC. They do use Xeloda for TNBC, but Xeloda is typically used in addition to ACT, not instead of ACT. But there are many, many other chemo options out there too.

    Best wishes to you on your decision.

  • HopeBry
    HopeBry Member Posts: 88
    edited January 2019

    Thanks all for the advice. I will consider all feedback.

  • Newfromny
    Newfromny Member Posts: 139
    edited January 2019

    hopebry I understand how you feel I’m a week from my 4th TCHP infusion and feeling so weak, I can hardly eat or drink. Feel like it’s not worth it. Looking for encouragement on what to do to feel better

  • romashka
    romashka Member Posts: 62
    edited January 2019

    Hi HopeBry. After BMX without reconstruction I did one round of dose dense AC. The choice to not continue came with much thought and searching. No AC and no Taxol. No treatment. My risk of recurrence is a reality - with or without chemo. Please message me - or ask here - if you have questions.

  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited January 2019

    I was given taxotere carboplatin. another option.

  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited January 2019

    Final idea, have the chemo in the hospital, so they can give you fluids, etc.

    Take care

  • rozem
    rozem Member Posts: 1,375
    edited January 2019

    sometimes they can adjust your dose slightly

    They did that with my last 2 taxotere and they assured me it didn’t reduce efficacy. It made a huge difference in getting through the last round.

    I had a terrible time on AC as well. I was NOT one who breezed through chemo. I got through it. It was incredibly hard but I did

  • Newfromny
    Newfromny Member Posts: 139
    edited January 2019

    rozem I’m through 4/6 of TCHP and having a really hard time, nausea all the time meds don’t help, reducing your dosage helped? What were your SEs

  • rozem
    rozem Member Posts: 1,375
    edited January 2019

    Newfromny terrible debilitating nausea and bone pain. I lost 10 pounds in months. I even had to go to the nutritionist to help me with maintaining my weight I was so sick.

    I was on a different chemo regimen. I was on FEC-D,C is the culprit in yours. The nausea was with the first part, nothing really helped I just slogged through it. They reduced my D because of the bone pain I had. ( it’s a taxol)

    I found that I had to keep Ensure by my bedside and drink a bit first thing in the morning and eat tiny amounts all day to keep the nausea down didn’t take it away but a tiny bit of relief I feel for you that was horrible

    I would ask maybe it would help apparently there is a safe zone where they can adjust your dose


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