Am I a TNBC sister?

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vixkix69
vixkix69 Member Posts: 8

South Mississippi here! ♥️ I was diagnosed with "no specific type" ductal carcinoma on Dec 20th, 2018. Looking over my path report, I see it's ER neg, PR neg, HER2/neu neg & k-67 at 60.54 %, so I am going with aggressive/ fast growing TNBC. Am I right?

The oncologist whom I was able to see for 5 minutes didn't explain anything (hence , me getting my own copy of the path). I had an MRI last week ( I have it on CD, as well as my Mammogram& Ultrasound) & will see the surgeon & oncologist (again) next week. I also have an appt & test week planned with MD Anderson in 3 weeks. Im terrified that this is all going so slowly... I will be over a month out before I can get to any hope of an official diagnosis, treatment plan & surgery. I plan to opt for BM & reconstruction if viable. And life. Most importantly, life.

BTW, I'm 49 & premenopausal .

Comments

  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited January 2019

    Sounds like you draw logical conclusions.... It's great you will be seen at an excellent cancer center. You can definitely beat TNBC. Throw the book at it. Do not stint! I have posted my story in Member's Stories in the TNBC forum. You are being proactive and that is the spirit you need.

    all the best

    Santa Barbarian

  • Hannah1962
    Hannah1962 Member Posts: 35
    edited January 2019

    Hi Vixkix,

    That's how I figured out I have triple negative BC too -- by reading my own pathology report. I was originally diagnosed elsewhere in November, but went to Memorial Sloan Kettering in December, and had surgery at MSKCC just after Christmas. My cancer turned out to be very small, just about 1 cm. My surgeon at MSKCC recommended lumpectomy, and said for my size of tumor it would be as effective as taking more tissue, and an equally important part according to the doctor is what follows the surgery (radiation for sure, maybe chemo too but maybe not).I just wanted to mention, BC survival keeps improving because the doctors treat and then track the outcomes. Be optimistic, but good for you going to MD Anderson. I'm sure you will great care there and your questions will be answered.

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