My Five Years are Done

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Bounce
Bounce Member Posts: 574
edited December 2018 in Hormonal Therapy - Before, During, and After

Tomorrow I will take my 1825th Tamoxifen. I am hoping to see an improvement in my:

Cognitive abilities

Joint pain

Weight

and the list goes on.


I must say I am nervous about stopping Tamoxifen. At the moment I am more scared that my period will return than I am of a recurrence!

Is there anything I should know about stopping Tamoxifen? It seems crazy to take a medicine for 5 years and then just stop (even though parts of my body feel more like 83 than 53).

Any advice?


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Comments

  • ksusan
    ksusan Member Posts: 4,505
    edited December 2018

    Congratulations on making it through!

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  • Moderators
    Moderators Member Posts: 25,912
    edited December 2018

    Congratulations on finishing treatment, Bounce! We hope you start feeling better soon.

    Best wishes,

    From the Mods

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  • Skwashie
    Skwashie Member Posts: 25
    edited December 2018

    That is such a great question ... what to expect upon stopping. Congratulations and I hope your body starts to feel less intervened upon. Wishing you gentleness and the exciting rediscovery of your amazing and non-medicated body.

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  • edwards750
    edwards750 Member Posts: 3,761
    edited December 2018

    I’m 7 years out last August. My MO told me I could quit taking it but taper off instead of totally stopping as in one every other day, etc. For me it did make a difference esp with the joint pain.

    I did worry about quitting though because it was my extra insurance policy against a recurrence. My MO said there was no reason for me to continue and run the risk of a blood clot.

    I had IDC, Stage 1b, Grade 1. Oncotype score was 11. Early stage, 8% chance of recurrence.

    Diane

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  • edwards750
    edwards750 Member Posts: 3,761
    edited December 2018

    Oh and congrats on the 5 year milestone!

    Diane

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  • Snow441
    Snow441 Member Posts: 4
    edited December 2018

    I can relate to everything you are saying. I am about to go off of mine as well in March, after being on it for five years. Every doctor of mine tells me I should celebrate going off of it. You should celebrate as well. I think that is strange also about quitting it all at once after five years

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  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited December 2018

    I quit it cold turkey and never looked back. It has a pretty long half life so it'll be in your system for a while. I thought going off it would help with the hot flashes. Not so much. Still have them something fierce nearly four years post ooph.

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