Information to include on profile and bottom of posts?

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Salamandra
Salamandra Member Posts: 1,444

Hi all and dear lovely moderators,

I'm pretty new here so maybe this has been addressed before, but I've been thinking about the profile we fill out that we can make visible at the bottom or our posts. It has been really useful to me to be able to see the profiles and journeys of others. I was wondering about some things that it seemed to me might be useful to add there.

It is customizable so some women do go and and edit and add some of this - I have added some. But for example, the profile questions asked about oncotype but as far as I can tell, it doesn't show up automatically on the forum signature.

This is what I have thought of so far, and I'm curious about others' thoughts and also moderator's response about whether this is technically feasible and/or desirable to make these optionally visible?

Brainstorming, in no particular order:

  • oncotype/mammaprint/BCI etc scores
  • age at DX
  • Menopausal status at dx
  • Whether the staging is under the pre-2018 or post-2018 guidelines
  • Ranges of size if not the exact sizes - I was confused that my 1.8cm tumor showed up as 1cm in the profile, maybe it could say 1-2cm, if that's as specific as people would like to be displayed?
  • presence of LVI
  • Medical center/hospital of treatment - and/or country/region of treatment
What do people think?

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