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  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited December 2018

    Flynn,

    If you had a biopsy they likely still have tissue they could test. However, it might have morphed since 2017.

    My naturopathic doctor had lab that did a blood test that separated the shed cancer cells out of my blood. I think "liquid biopsy" is a name for it. They can culture the cells and test them against chemo drugs or nutritional supplements for what is effective.

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  • Flynn
    Flynn Member Posts: 307
    edited December 2018

    Urdrago71- sorry I missed your post last night! Following is a link to one of the articles. There was a slight improvement in most patients but one subgroup did get a nice impact. The articles I saw did not mention dosage and I recall the big Japanese study was at a higher dosage than most women here are able to tolerate. I’m wondering how big of role that plays. I have to look for the actual study and see what I can find.

    https://www.medpagetoday.com/meetingcoverage/sabcs...


    Santabarbarian- since I’ve participated in a clinical trial and moved and changed medical provider, a few samples of my biopsy have already been pulled. Perhaps they have more than I realize. I was also thinking that ideally we would check the residual found after surgery but that is described as cookie crumbs vs one mass. I’ve heard the term liquid biopsy but don’t know much about it. I plan to discuss all this in detail with my MO in Jan. I stepped back from my computer today and I’m feeling more even keeled.

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  • urdrago71
    urdrago71 Member Posts: 559
    edited December 2018

    Flynn, I'm going to send a message to my surgical team and ask the question about basal or non. I just had surgery in October re-read the report and nothing on there. So why not ask. The link you sh is red is very informational and it sucks they don't have the funds to start investigating further in depth.

    Sending good vibes..

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  • LoveMyVizsla
    LoveMyVizsla Member Posts: 813
    edited December 2018

    Flynn, I looked up the second opinion I received from my cancer center on my original biopsies, because I remark it saying something about basal-type.

    Here is what it said, in part: additional immunostains performed on the biopsy demonstrating the following immunophenotype: OSCAR, GCDFP-15, GATA-3, CK5/6, p53 positive; mammaglobin and p63 negative. These IHC findings support the diagnosis of a breast primary. The neoplasm has variable expression of CK5/6 and over expresses p53; together with the high Nottingham grade, these findings suggest basal-like ductalcarcinoma.

    Don't know what all of that means, but there it is.

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  • urdrago71
    urdrago71 Member Posts: 559
    edited December 2018

    Hellos, heres another study phase 1 that some places are getting.


    Oxford BioTherapeutics Receives US FDA IND Clearance for OBT076

    https://www.prnewswire.com/news-releases/oxford-bi...

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  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited December 2018

    Thanks for that urdrago!

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  • Mncteach
    Mncteach Member Posts: 274
    edited December 2018

    I’m in a weird catch-22 right now. My initial report came back er-, pr,slightly +, her2 -. When we tried to get an Oncotype done, it “failed” and the dr led me to believe that meant I was for all intents and purposes TN. However when I just read my add ended path report, it just said it failed due to ER -. Well duh, already knew that! So now when I go to my next appointment I need that clarified as well as I want to ask about basal status after reading this thread!


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  • Moderators
    Moderators Member Posts: 25,912
    edited December 2018

    Hi Mncteach, and welcome to our community.

    Yes, it does sound as though you'll need some clarification in order to best help you make treatment decisions that suit your situation. Please keep us posted and obtain a second medical opinion if you feel it necessary.

    We are thinking of you,

    The Mods

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  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,847
    edited December 2018

    Hello everyone,

    I just wanted to wish all of you on the TNs a Happy Christmas and a very Healthy, Happy New Year.

    Sending my best wishes to all of you going through treatment and telling you that you can get through this journey. I am now 13 1/2 years out since diagnosis. Keep looking forward.

    Love.

    Sylvia xxxx

    image

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  • Lookingforward66
    Lookingforward66 Member Posts: 147
    edited December 2018

    Hello all,

    Merry Christmas! As of the 26th I will be 6 years out Cancer Free!! Just had PET scan on the 20th. NEDS!! Spending holidays with my daughter & her family. May all your holidays be Happy!! If anyone has doubts that this can be done, see my story. Odds were not in my favor. I’m still here.

    Love to all,

    Marsha

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  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited December 2018

    Cheering for you Marsha!

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  • urdrago71
    urdrago71 Member Posts: 559
    edited December 2018

    Sylvia and Marsha thanks for checking back in and support us.Happy Holidays !!

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  • cccmc2
    cccmc2 Member Posts: 131
    edited December 2018

    Happy Holidays to all of you wonderful ladies!

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  • anotherNYCGirl
    anotherNYCGirl Member Posts: 1,033
    edited December 2018

    Marsha and Sylvia, - so wonderful to hear from you!

    I dont post as much as I read, but I am always here, cheering and holding hands with all here.

    I came on to wish Merry Christmas, Happy Holidays and Happy HEALTHY 2019 to you and yours!

    But, I also need some calming words right now.

    I have a swollen gland right behind my jaw and I am trrrrrying to keep my imagination from running away. I keep thinking mets, or lymphoma from the AC. Of course, the more I touch and check it, the sorer it feels. I have an appointment with my GP on Thursday, and will call my onc, but of course, no one is in the office tomorrow and they are always SO busy even without holidays.

    I apologize for adding this to what I planned to be a happy, upbeat post. Thank you for understanding.

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  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited December 2018

    It's way more likely to be due to cold and flu season... I hope it's something simple like that. Do not let needless worry intrude on your holiday!! Or go to urgent care, if you want to be proactive (as it's more likely you have a virus or bacterial infection). Try deal with facts only... and the fact is, it's Christmas!

    (((hugs)))

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  • anotherNYCGirl
    anotherNYCGirl Member Posts: 1,033
    edited December 2018

    Thank you, santabarb! ( I hope you're right!)

    Have a wonderful Christmas eve! and day!!

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  • urdrago71
    urdrago71 Member Posts: 559
    edited December 2018

    anothernycgirl, it cld be a tooth infection as well. I experience lump at back/ bottom jaw and it was a tooth..and yes, the more I touched the more it was irritated. You could take anti-inflammatoriy pain pill. See if it helps. I have to agree with Santabarbarian if its a cold or flu go to urgent care.

    Cyber Hugs and Happy Holidays..

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  • anotherNYCGirl
    anotherNYCGirl Member Posts: 1,033
    edited December 2018

    Thank you undrago! I truly appreciate your response!

    sending hugs and holiday wishes!

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  • InspiredbyDolce
    InspiredbyDolce Member Posts: 1,181
    edited December 2018

    Good Morning Friends,

    Just stopping by to share with you my 7-year healthy victory celebration, which is officially tomorrow (12/27) the dx date.

    I always find it hard to log in and post, because it is hard to celebrate when there are still so many more being diagnosed.  I do so though, because I know you wonder "where are the other survivors, and what are they up to these days?"  LOL  And because your happy thoughts help reconfirm that collectively, we can do this. 

    I am sending prayers out for our entire community, as well as for the researchers and medical professionals who lead the advancements into novel therapies that can benefit everyone who has or ever had any type of cancer.

    And while you are all so dedicated to doing everything just right in health, nutrition, and wellness - remember to let up for a moment or two, to enjoy one of your favorite past times - then you can get back to it!

    Cheers to a wonderful 2019, and I hope that all of you stay positive and that you know you have many survivors around the world thinking of you and sending prayers daily, even if they/myself don't log in to post.

    Much love, hugs, and peace to all of you!

    Debra

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  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,847
    edited December 2018

    Hello Debra,

    It was wonderful to see your post on the thread, and I want to say congratulations on your 7 year survival.

    I have never forgotten you and all the wise posts you sent on here and on my thread.

    I have just reread the details on your nutrition tips and of course I heartily agree with them. I am still eating in the same way but am not taking metformin.

    Please pop in to say hello to the ladies on my thread.

    Lots of love.

    Sylvia xxxx

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  • lovesgreenthings
    lovesgreenthings Member Posts: 107
    edited December 2018

    I had the same gland thing going on and saw my Doc today. Just the normal work of the glands working against all of the crud going on this time of year! Yours will be the same. 

    Saw our Dolce friend on here and am so glad she is far away from this. My wish for all of us is that we worry less and enjoy more in 2019. 


    Hugs,


    Anne

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  • anotherNYCGirl
    anotherNYCGirl Member Posts: 1,033
    edited December 2018

    Good to read your post, Debra.

    Anne, - thank you so much for your response.

    Hugs to all

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  • LoveMyVizsla
    LoveMyVizsla Member Posts: 813
    edited December 2018

    anotherNYCgirl, I have a swollen area under my jaw. Had an ultrasound, it’s a salivary gland. *shrug

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  • anotherNYCGirl
    anotherNYCGirl Member Posts: 1,033
    edited December 2018

    Thanks for sharing with me, LoveMyVizsla!

    I saw my gp today, he felt the glands and said seems ok, but all this touching has made it feel more sore tonight! I will have routine blood work tomorrow. I will wait for those results, and then see how things are next week.

    It is sooooo helpful to have this board to 'talk' to!

    With much appreciation, hugs, and as always, BE WELL wishes to all here!

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  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited December 2018

    Per our earlier conversation about "types" of TNBC, here is another interesting approach

    https://www.nature.com/articles/s41467-018-05742-z

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  • cccmc2
    cccmc2 Member Posts: 131
    edited December 2018

    sitting at Maine Cancer specialists. I have been feeling a lumpy area on either side of my mastectomy scar, and figured I should have it looked at. They couldn’t fit me In for an ultrasound Today so I have to come back Monday for an ultrasound of the area. My MO didnt seem overly concerned but enough to set up an ultrasound. I thought it was probably scar tissue but now I’m feeling a little nervous. Anyone ever have this

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  • LoveMyVizsla
    LoveMyVizsla Member Posts: 813
    edited December 2018

    Cccmc2, yes, and it was scar tissue and some fat necrosis.

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  • Vslush
    Vslush Member Posts: 183
    edited December 2018

    Yes. As a matter of fact I had my ultrasound today. Turned out to be fat necrosis, a few water cysts and general scar tissue. The radiologist even came in to reassure me that all findings were benign (what a sweetheart!).

    From what I've read, it sounds pretty common.

    Hope this helps,

    Vickki

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  • cccmc2
    cccmc2 Member Posts: 131
    edited December 2018

    thank you !

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  • maryna8
    maryna8 Member Posts: 1,810
    edited December 2018

    Hi, Helen

    Nice to hear from you down under! Sorry it's so hot there, here it is -3 C this morning. Our weather has been up and down all winter, we were at 15C a few days ago. Not good for my poor old sinuses. They like consistency, of one sort or another.

    I'm glad to hear you are almost finished with treatment, glad the Xeloda wasn't too bad. The end of treatment is a strange time. I know I felt that while I was undergoing treatment, I was actively battling cancer, and when it was over I felt as if I was still in a battle but disarmed. At the same time I was very relieved to not have the drugs going in my body. Then I began to realize slowly this was my life now, for however long, and I had better live it as well as possible in my rather battered body. I try not to get stressed over things, and also to take advantage of opportunities to do things with friends and family. If I want to travel, and can swing it, I go and see new places. I now try very hard not to get emotionally over-stressed, but still do once in a while and it's very unpleasant, I am very aware now of what it does to one physically as well as mentally.

    Yes, good health and good fortune do seem to be one and the same to all of us here, I'm sure. I also wish that for all of us in 2019! Take care, Helen, hope to talk to you again soon.

    Later, love, Mary

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