Follow up appointments

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Mommyathome
Mommyathome Member Posts: 1,111

hi. Just curious to see what everyone’s follow up appointments are like after a mastectomy for dcis. I was diagnosed in dec 2013 and has box January 2014. I see my bs every 6 months. I had been seeing my ps every 6 months up until about a Month ago. She said we can do every 2 years now since everything looks good.

Curious to see what everyone else does. I only saw an oncologist once.

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  • TB90
    TB90 Member Posts: 992
    edited December 2018

    What a difference in countries. We were dx'd at the same time. My breast surgeon only saw me once post surgery a few weeks later and I never had a mo. My RO discharged me right after my treatments were finished. But I had no need to see them actually. I have regular mammograms. I danced my way out of Cancercare in April 2014 and was happy to forget about cancer except for annual mammograms. They assessed me low risk for recurrence and I was happy to get on with my life. Explain to me what I may have missed if we did things here differentky

  • MDRR
    MDRR Member Posts: 133
    edited December 2018

    my BMX was march, 2018, and I saw the breast surgeon twice post surgery, and then had to see her another 4-5 times by june 1 since I developed a seroma. Ultimately she reinserted a drain for a few weeks. I saw the MO in April for the first time, and she sees me every 4 months for the first year. I will see the breast surgeon in January, and then I will find out the regularity....I'm curious about this. I assumed it would be an annual exam but don't know for sure! I only know the oncology schedule for the time being.

  • Mommyathome
    Mommyathome Member Posts: 1,111
    edited December 2018

    I had a bilateral mastectomy in 2014. Up till this month I’ve been going to the breast surgeon every six months and the plastic surgeon every six months. This time the plastic surgeon said I didn’t have to come back for another two years but I went to the breast surgeon today and she wants to keep seeing me every six months.

  • TrmTab
    TrmTab Member Posts: 832
    edited December 2018

    I haven’t seen my BS since 3 months after MX... I am nearly 3 years since MX

    what do BS follow ups consist of?

    TT

  • Mommyathome
    Mommyathome Member Posts: 1,111
    edited December 2018

    At the follow up they do an exam by feeling for any irregularities, looking to see everything looks ok and if there's lumps (I had fat grafting and as a result I have had necrotic lump of fat/fluid) they do an ultrasound to see what it looks like and aspirate the fluid to send to pathology. She marks in my file where the lump was and how big.

    The first couple of times she sent the fluid for pathology but the last couple of times she didn't.

    I like going for the follow up because if something were to pop up it would've only had 6 month to grow.


    I see u were on hormone therapy. I never had any. Also keep in mind I have a lot of breast cancer in my family;

    Me, my mom, her two sisters, a paternal cousin, and my grandmother and her sister had ovarian cancer.

  • Rrobin0200
    Rrobin0200 Member Posts: 433
    edited December 2018

    bmx March 2017. I see my BS every 6 mos for 5 years, and up until recently, my PS every 6 mos as well. Since everything looks ok, I am seeing my PS annually now.

    The BS does manual palpitations as well as ultrasounds during each visit.

  • LAstar
    LAstar Member Posts: 1,574
    edited December 2018

    My MX was done out of town, so I had a local BS check on me immediately after surgery but did not continue to see him after I healed. I have had continued care with a MO since. It was hard to find a MO who would follow me with DCIS, and I have had 3 due to relocations. They examine me annually, order an MRI every 1-2 years, refer me to a OT/PT when my LE gets bad, and have prescribed antibiotics when I got cellulitis. My MO was going to "let me go" last year since I have had no recurrence, but she decided to keep me for another year to try to get the LE under control. It's a nice feeling to have someone to call.

  • Mommyathome
    Mommyathome Member Posts: 1,111
    edited December 2018
  • dsj
    dsj Member Posts: 277
    edited December 2018

    I saw a MO from the beginning and he was very active in helping me think through my choices. He has continued to coordinate my care. He orders my mammograms and checks me every six months. He also was the one who prescribed my tamoxifen. I think there are many ways to go in this complex process. But for me it made sense to see an oncologist post surgery.

  • Mommyathome
    Mommyathome Member Posts: 1,111
    edited December 2018

    dsj

    Did u have a lumpectomy or mastectomy?

  • TrmTab
    TrmTab Member Posts: 832
    edited December 2018

    okay, I do see the MO every 6 months.  He orders a diagnostic mammogram each year, ordered the MRI 2 years after MX and 1 year after initial exchange surgery...the fluid in the pocket and textured implant led to the second exchange last week.  I have not had ultrasounds...that sounds like a good middle ground in between MRIs. While the MRI was "covered" by insurance...I still had a $900+ co-pay on the $5000+ MRI charge, yikes. TT

  • dsj
    dsj Member Posts: 277
    edited December 2018

    I had lumpectomy, radiation and tamoxifen.

  • Mommyathome
    Mommyathome Member Posts: 1,111
    edited December 2018

    trmtab you have mammograms after a mastectomy

  • TrmTab
    TrmTab Member Posts: 832
    edited December 2018

    I have a L- only MX, so I have mammograms on the R...TT

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