Bone Scan for Breast Cancer Patients

Options
2»

Comments

  • CapeBretongirl
    CapeBretongirl Member Posts: 364
    edited September 2009
    Dear Dawnn;  You are so rignt, I wish there was an easy answer.  All cancer is sh%ty.  Take care.
  • Chickadee
    Chickadee Member Posts: 4,467
    edited September 2009

    I just finished up several days at MD Anderson (#1 Cancer Center in US according to US News&World). Maybe their practices has some bearing on this discussion. I can only speak for my situation.  They ordered a bone scan as part of my workup.  They told me during registration that a schedule of tests had already been set up for me but that I should not make plans based on the tests as the Dr. may add or remove tests once he reviewed all my tests and info from the original diagnosing center. I'm going to side with believing there is value in this test.  He did not schedule a breast MRI which surprised me as so many of you seem to have had that as a matter of course.  So I am fairly confident that the tests chosen were made partly as standard practice but with the understanding that the Dr. would have the last word on what tests he wanted.

  • QueenK
    QueenK Member Posts: 220
    edited September 2009

    Dawnn, I have a feeling that I agree with you.I think we should all really go with what our doctors suggest. I really think it is kind of a put down when someone says "I know I did everything I could".Every case is individual and if your oncologist sent you for scans,fine.If someone elses did not, maybe there was a reason.

    These blankets statements do not help anyone.We are all doing the best we can with the guidance from our practitioners.

    I did not have scans either.My oncologists take is that it opens up a huge can of worms.Such as seeing things like scarring that are not related to breast cancer.

    Anyway

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2009

        After my initial diagnosis I had a mastectomy and they removed 19 lymph nodes, all negative.My tumor was very small .9 cm.   I had a bone scan two years after that which was negative.  I later stupidly switched oncologists because I thought it would be nice to go for dr's appts with my mother.  This one did not do bone scans and when I asked why she said because it was so small and that I had no lymph node involvement.  She still did not do a bone scan when I started complaining about pain in my chest and it wasn't until two years later when I was still complaining and told her she had to do something that she ordered one.....a little too late because by then it was very advanced in my sternum and the CT scan that came after that showed cancer in my left lung as well as a spot on my liver.  I then switched oncologists and thanks to that move and still alive 11 years later and I am very thankful for that.  I think if the other onco had done scans earlier the cancer would have been discovered sooner and would not have gone on to my lung and liver...don't know that for sure, but as they say early detection is best. Looking back and thinking what if does no good I know and I am just thankful to still be here, but I think it is good oncos look for things before waiting for symptoms.     

  • swimangel72
    swimangel72 Member Posts: 1,989
    edited September 2009

    Marybe - thank you for sharing your story. I'm so happy your third oncologist has been so helpful for you.

    The new mantra for many doctors is "evidenced based medicine". - here's a link describing EBM in detail:

    http://en.wikipedia.org/wiki/Evidence-based_medicine

    I believe new studies will add to the growing knowledge base (for EBM) and will prove that scans and early detection of mets will help women with BC live longer and healthier lives...............in the words of Dr. McCoy (Bones) from Star Trek, spoken as he scanned a patient with his tricorder reader,  "Jim, I'm a doctor, not a butcher!" Yes Dawn, I'm also a Star-Trek fan. Wink

    "Beam me up Scotty - there's no intelligent life down here!"

  • SoCalLisa
    SoCalLisa Member Posts: 13,961
    edited September 2009

    speaking of evidence based medicine check out this site

    http://breastcancer.evidencewatch.com/  

  • swimangel72
    swimangel72 Member Posts: 1,989
    edited September 2009
    Wow Lisa - that's a ton of info - will make good bed-time reading to help me fall asleep! Thanks for posting the link! Smile
  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2009

      For all you trekkies.....did you ever see that card where there was this little Scotty dog standing in front of a window and I foget if it was a cat or a dog looking up at the window and the caption....guess?....Beam me up Scotty.   I thought it was so cute. 

  • swimangel72
    swimangel72 Member Posts: 1,989
    edited September 2009

    Hi Marybe - I Googled all over but couldn't find that photo - too bad - it does sound cute!

    I like to think that SOMEDAY the big expensive scan equipment we use today will be hand-held like Dr. McCoy's tricorder......

  • Dawnbelle
    Dawnbelle Member Posts: 696
    edited September 2009

    Swimangel??

    Have we had this Star Trek conversation before?PhotobucketPhotobucket

    I have NO idea why it is printing that twice? *shrug*

  • swimangel72
    swimangel72 Member Posts: 1,989
    edited September 2009

    Dawnn.........wow, it sounds like Deja Vu - all over again! Lol - maybe that is why your photo is printing twice? Ooh - watch out - might mean something is wrong within the MATRIX! I'm also a huge fan of all the Matrix movies, lol!

     

  • Dawnbelle
    Dawnbelle Member Posts: 696
    edited September 2009
    It may be my image....it is not even showing on my page at all....I saw a new oncologist yesterday and he suggested a PET scan in 6 months and I just laughed out loud!! I was thinking of this thread, he just thought I was CRAZY!
  • Dawnbelle
    Dawnbelle Member Posts: 696
    edited September 2009
    Try again? I saw a new oncologist yesterday & he suggested a PET scan in 6 months, I laughed out loud, thinking of this thread, he thought I was CRAZY.
  • swimangel72
    swimangel72 Member Posts: 1,989
    edited September 2009

    Dawnn...........PERFECT photo to go with your post! I'm happy you were able to laugh............it's really the best medicine! I'm thinking about switching onc's soon too..........I need to do some research first - I'm getting the feeling that my onc has me coming in once-a-month for blood work just to keep himself in business. I finished all my chemo and Herceptin in April 2009........I need to find out if this once-a-month visit is really necessary. When I complain about other issues (like my cough that won't go away) he does nothing. He even promised me to find a "thinking orthopedic" to talk to me about non-surgical treatments for my hip.......you guessed it.......Nada. The onc I'm thinking of switching to is part of the same medical group as my PCP and ob/gyn........it'd make it so much easier for all my doctors to access my records since this group puts everything in electronic format. Anyway - these thoughts probably need a new thread.......I do ramble on and on, sorry!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2009

        I used to always have halloween parties and did a theme.....like one year it was MardiGras, another cartoon characters, another time Woodstock.  I think with the hair I have now some sort of a space theme would be great....I don't really have the thighs for those lycra pants, but if I make my pointed collar big enough maybe people won't look down and notice them. Or maybe I could go for the Yoda look. 

    Swimangel,  Ramble on....rambling is good. 

  • Dawnbelle
    Dawnbelle Member Posts: 696
    edited September 2009

    Marybe,

    When I had my Mx and the surgeon started talking to me the next morning about future nipple reconstruction, I told him I was having Yoda tattooed there, not a nipple! My DH still laughs about it. Hey! Yoda is cool!

    Morphine & my mouth do not mix....

  • vikinyc
    vikinyc Member Posts: 5
    edited September 2009

    My surgeon had me get a Bone Scan and  CT scan w/contrast of the abdomen and pelvis.

    I got these tests after biopsy and before surgery.  He said he wanted to see if everything was clean (it was) and to use it as a baseline.

    Cool

  • Juleseyes
    Juleseyes Member Posts: 20
    edited December 2018

    hello everyone,

    I’m just so confused. My mom had a biopsy and they took out a 9mm carc from the breast and a 2mm carc from a lympth node. There was calcifications on that breast too so they booked a mastectomy immediately. They DIDNT order any tests. Not the surgeon, not her doctor. We have to wait weeks until the surgery path report and I am freaking out tryinf to figure out why they didn’t ordermore scans!! Why why why

  • star2017
    star2017 Member Posts: 827
    edited December 2018

    yes, I had one before chemo.



Categories