TRIPLE POSITIVE GROUP

Thanks Ladies so much! I feel a little better reading all your experiences and tips. I'm worried about bone loss too! I am pretty active and ride horses, and giving that up would make me cry too. It's great to see there are remedies for many of the SE's of all of this. I'm seeing my MO post holidays and my list of questions is refining daily from all the great info on BCO. I've had a lot of success stories on the cold capping so I'm definitely trying it. I have a touch of Raynaud's as well so the thought of it getting worse worries me but I'll take it all as it comes I guess! I'm looking forward to when this is all a memory too (especially these salad bowls - cold winter chills have taken on new levels with these TE's in place. Yikes! Every winter wind feels like a dagger even with my layers. I keep trying to tell myself feeling anything is a good thing, even if the feeling itself is bad....).

Thank you SpecialK. I talked to my oncologist and surgeon and will do double mastectomy. My oncologist mentioned TDM1 which just had data released in San Antonio conference, if the surgery shows residue, he might put me on that.

Hi everyone, happy holidays!

I posted this question under the surgery topic, but I think since this is the triple positive group, more people are doing surgery after chemo, might get more answer here also.

Just want to ask, has anyone had a long wait for the surgery after neoadjuvant chemo?

I finished my last chemo TCHP on 11/24, but because my blood clot (already cleared according to my recent ultrasound), my surgeon insists that I have to finish the 90 day blood thinner treatment which will be done by 1/24. That will make the gap between last chemo to surgery bigger than 8 weeks.

My oncologist started to put me on the maintenance Herceptin + Perjeta due to the delay, but not on tamoxifen yet. I am really worried that I might be unprotected for this period

The MRI did before chemo shows3 lumps, one was also seen by previous mammogram and did biopsy, the other 2 are new. Did another MRI after chemo, the one had the biopsy looks all clear now, the other 2 one shrink from 2.8 to 0.8cm, another one didn’t change much, stays 1.9cm

Hi SpecialK, my oncologist is giving me Herceptin and perjeta now every 3 weeks as a protection, he also said if the surgery is going to be more than 8 weeks away, he might have to put me on tamoxifen. Yeh, I read online that tamoxifen might cause clot too, so I am not sure when are they going to start that. But I don’t have a surgery date yet.

Wow, you waited 14 weeks, that will drive me crazy. Noticed it’s already been 7 years, that’s great

Hongh - I had 5 surgeries during that 14 weeks, so I was distracted by that, lol! I was getting a bit nervous though as I was node positive, so I was ready to get the ball rolling with chemo.

My surgery is scheduled for 6 1/2 weeks and my H & P infusions continued without stopping after my chemo was complete. I will have two H&P dosages prior to my surgery.

Well, Ladies, we live to see another Christmas.

This is my third Christmas since diagnosis.

I call that great.

Vicky

Yes Coach Vicky, it is great! Merry Christmas to all of us. Thank you all for the encouragement, wisdom and sisterhood this site provides. I started chemo Christmas week last year, I’m thankful for the progress I’ve made!!! My hair has grown to a short ‘style’ that looks intentional! I had my last Herceptin/Perjeta last week. I’m looking forward to a new year!!! To all who have just started, be encouraged by others progress, be gentle with your body and know this time next year, you will emerge better & stronger in many ways. I myself think the year has helped me to be a better person.

We are at the lake cabin in Minnesota, my favorite place on earth. Some grandchildren, cards and crafts!!! Who could ask for anything more❤️

OK, the food is good too!!!

Merry Christmas to all and thanks to everyone in this group! I'll start Taxol/Herceptin post holidays once recovered from surgery now that we know it's HER2+, and this Triple+++ group has made me feel much more confident in the path ahead and prepared for it all post all the negative surprises.

I hope everyone has a wonderful holiday season!

And happy holidays from us as well!

Tresjoli and anyone else with insight to share. I was 44 at diagnosis and 47 now. Haven’t had a period since chemo. Two weeks before chemo, had one ovary removed. I think I’m in menopause. Did chemo put you in menopause? I am taking Tamoxifen, but I have to admit I don’t take it regularly. Every other day or so because my vagina is fried. I keep hoping the lower dose will bring back some life

Bird-of-light, I didn't have a period for two years after I finished Chemo the first time, then it came back with a vengance.

I started having terrible pain in my back, at the same time my husband was having it too (weird I know) We both were diagnosed with a slipped disc and put on steroids, he got better, I got worse, to the point that I could no longer walk. I woke up one morning and couldn't move my right leg and finally they did an MRI and found a very large tumor on my spine that wasn't picked up on X-Ray. After that it was a PET scan and I had mets from my skull down to the tops of my thighs.

Hi Everyone, Its been quite a long time since I've been on line.  I'm so glad coachvicky & SpecialK are still going strong giving advice.  Thank you! 
  I am about finished with Herceptin, had to skip a few sessions due to Hospitalization for Sepsis 3 times in the last few months. (Sepsis is terrifying)  My oncologist said it had nothing to do with my cancer - I'm not so sure about that.  Plus Heart Eco post-phoned treatments a few times.  

Anyway - Question please :  He wants me to take "The Herceptin Pill = Neratinib" Anybody take this or know anything about it? 
  Plus- He (Oncologist) finally brought up the issue of Hormone Therapy (He thought I was already on it ) He wants me to start Arimidex.  Besides diarrhea, what other side effects? (I'm 60 - hysterectomy) Any thoughts?  I have an appointment with the pharmacist doctor next week to discuss and wanted to have some real life situations to bring to the table. 

Thanks!  Wish you all a Happy New Year.  Rj

hi all! Young and Scared are you on ovarian suppression? I had terrible joint pain and foot/ankle pain. My MO told me it was not my meds. But then my primary told me that ovarian suppression can cause these symptoms.

Bird I am not in menopause, even though I havent had a period since July of 2015. My FSH and LH indicate not menopausal. Which I was bummed about actually. Makes contraception decisions really complicated. There are lots of options to help with vaginal atrophy. Talk to your MO about your side effects.

Hugs to all the newbies and yeah to hapa and jaboo for finishing up! Whoop whoop!