HLB One did disappear but several others showed u in different places.

It is still going to be hard to get to, though. I'm in sort of a dilemma in fact. My IR and my MO talked and looked at my scans together. The lesions are tiny, IR is concerned that he won't be able to get to them but is willing to try. His plan is to use ultrasound to guide him. So I would go to the hospital, get all prepped and ready then he would do the U.S. if he can see them he will give me sedation and do a core BX. He would take enough so it could be sent for Genomic testing and normal pathology studies. If he cannot see them, I will go home.

Ladies I need advice. Part of me says, just trust the IR. If he thinks he cannot get it then it's not worth the time and someone to take me, etc. Another part of me says, DO IT. It's only a day of inconvenient and if he can get it and it has changed, I will get to stop Afinitor and move to a more effective TX.

Let's take a vote. I want your advice.💞

Aussie cat I wonder why they can't do a U.S. in the office to see if they can see the lesions. I don't know the answer to that question. But, the samples of my lesions have to be sent to pathology to see if there has been a change in hormone receptor. They have to have the tissue to test it.

If they cannot see the lesions there will be no sedation, no recovery, I just go home. I have decided to go ahead with BX attempt because there's really nothing to lose and a lot to gain if he can get the BX done. So, right now they are getting insurance approval and it will be next Thursday or Friday.💞

Judt dx'd with liver mets. Next step is PET and switching to Taxol.

ANY advice is welcome. I'm so overwhelmed

leee, just wondering if you've gotten a second opinion? I had a liver lesion three years ago and Xeloda cleared it up in 6 months. Now three years later there is another, and I'm now on Doxil, which is a little more tolerable than taxol..and no hair loss. Infusion is only once a month. Don't know you or what you've had in the past, certainly I'm not a doctor. But there are alternatives, and you may want to look into them before jumping off that chemocliff.

Sunset

Thank you for the message!

My onco mentioned a second opinion is an option but I haven’t fully wrapped my brain around what I need to do.

In 2004 i had AC chemo, the MBC dx in January this year with Faslodex and Ibrance

I’m in Oklahoma at a NCI.

PET scan next and liver bx if possible. The largest lesion is 1.3cm so hope that will work.

My Her2 was inconclusive/borderline on the breast bx so deemed negative.I feel it’s important if they can check if there’s a change.

Has anyone on carbogem developed pain on the upper left side of your abdoemen? it feels like it is around my spleen. It hurts when I twist or press on it. OF course I am terrified the chemo has stopped working.

Shetland. No it hasn't been discussed. I'm not even sure what it is. Where do they get the liquid from? I thought it might only be for lung, like plural effusion. Ill ask. Thanks

I made it 13 treatments in weekly taxol before my anemia levels caused my MO to decide to decrease my next dose by 20%.

I knew I had been overly tired lately but blamed it on getting ready for the holidays.

Nice to know there was a physical reason for the extreme fatigue.

Hoping to avoid a transfusion and to get through the holidays.

Take care everyon

Shetland, did you do foundation one before, or liquid biopsy was the first time you had your gene mutation checked? My cousin is doing F1 now with the tissue from Jan 2014.(she’s not willing to do liver biopsy). I wonder if liquid biopsy will find something different

KPW3 I haven't asked him why he's not using MRI or CT but I have been wondering why. He does have my recent PET and MRI. I am allergic to CT contrast, but I don't think contrast has to be used with BX. I am having the BX at a hospital, at first I thought since it was just a U.S. it would be done in his office, but no.

Thanks for the info on liquid BX. I will sure push for that if the BX cannot be done. I am pleasantly surprised that my MO is planning to send my tumor sample to Caris this time instead of Foundation ONE. She says my insurance will pay for either F1 or Caris. And Caris tests for more mutations. I remember when Caris was not covered by anyone's insurance and was very expensive.

Pray for success next Thursday, December 27 at 10:30 AM.💞

Ann1999. That is very hopeful news for the rest of us. You go girl.💞

well, I saw my doctor and the carbogem stopped working. My liver panels are high. I get a scan on Friday. Since I morphed into triple negative I am afraid there is nothing left. My doctor said there were other options-but we won't talk about it until after my scan. When is it time to just throw in the towel?

Lisajo6, Dont you dare listen to him. There are still plenty of options. Have you had Eribulin? That's a good chemo and I would definitely push for Immunotherapy if you can.

Hi everyone, can you please help with your experience and knowledge? My cousin switched to faslodex and Ibrance after xeloda stopped working for a year, when her scan 3 months ago showed progression on bones. The latest scan showed that bones are stable and some some spots in lung disappeared; HOWEVER, there’s a new 19 mm spot and probably some tiny ones showed up in liver. Her dr thinks it’s progression and wanted to change to another chemo therapy. I personally think liver is out of control because of removal of Xeloda and Faslodex/Ibrance combo does not work very well on liver. Can you please help me to uderstand why keeping the combo + local treatment on liver (like Y90) would be a bad option? Any comment is appreciated!!!