Hospice

Options
Becs511
Becs511 Member Posts: 303
edited December 2018 in Stage IV/Metastatic Breast Cancer ONLY

After living with MBC for 4.5 years and brain mets for almost 3 years, I’ve officially been on every treatment possible, no more trails to try. My brain mets are causing significant neurological issues that are irreversible,


That being said, I know I’ll be leaving a strong legacy, that most 37.5 years olds would be incredibly proud of. I officially signed up for home hospice care yesterday but nobody is expecting anything to happen immediately; just prepping for the eventuality and getting the equipment to help me navigate around when I’m by myself, like railings around the toilet and a bedside table for my laptop and to help me to work off on,I still work remotely 20 hours a week!

· Share on FacebookShare on Twitter
«1

Comments

  • Sue2009
    Sue2009 Member Posts: 228
    edited December 2018

    you my sister have had a rough road. I will keep you In My prayers. At 57, dealing w/cancer 10 years, I am starting to think about hospice care also. I pray you stay comfortable & surrounded by lots of love. 💖 Su

    · Share on FacebookShare on Twitter
  • Moderators
    Moderators Member Posts: 25,912
    edited December 2018

    Hi Becs,

    We just wanted to stop by and share our love for you. We know this must have been a very difficult decision to have made, but we're hoping it will make things easier for you all around.

    Sending lots of positive thoughts your way.

    --The Mods

    · Share on FacebookShare on Twitter
  • Beatmon
    Beatmon Member Posts: 1,562
    edited December 2018

    Wow, Becs511, You are definitely my type of girl. Making plans for the future if or when it is needed. Amazing you are able to work remotely and take all the treatments you have. Your strength is an inspiration

    · Share on FacebookShare on Twitter
  • illimae
    illimae Member Posts: 5,710
    edited December 2018

    You are an inspiration and I’ll continue to stay updated via Facebook, Instagram and as one of the BCO “Brainiacs”. Wishing you good times and minimal SE’s.

    · Share on FacebookShare on Twitter
  • Micmel
    Micmel Member Posts: 9,450
    edited December 2018

    I think taking control is the best thing possible to do. Just hoping you’re safe. You’re a strong beautiful woman who has powered through some rough things. You are in my thoughts. Stay safe. Sweetnwoman

    · Share on FacebookShare on Twitter
  • blainejennifer
    blainejennifer Member Posts: 1,848
    edited December 2018

    Becs,

    You are my hero. Thank you for letting us do this with you.

    Jennifer

    · Share on FacebookShare on Twitter
  • JFL
    JFL Member Posts: 1,947
    edited December 2018

    Becs, you are a rock star and will definitely leave a strong legacy. I hate to hear that any of us have to take the step of filling out "the paperwork" but you are wise to set up everything now so you don't have to worry about it later. Please keep us posted.


    · Share on FacebookShare on Twitter
  • Tina2
    Tina2 Member Posts: 2,943
    edited December 2018

    You are wise beyond your years, Becs. Control what you can and leave the rest!

    With you,

    Tina

    · Share on FacebookShare on Twitter
  • Becs511
    Becs511 Member Posts: 303
    edited December 2018

    thanks everyone for the kind and thoughtful words! They mean a lot to me! There are a lot of restrictions around what/where and how I’m allowed to go places while I still can.


    The plan is when I’m ready, I’ll take the morphine they provided

    · Share on FacebookShare on Twitter
  • 50sgirl
    50sgirl Member Posts: 2,527
    edited December 2018

    Becs, I have followed your posts since I first joined these discussion boards. I remember when you accomplished your goal of visiting all 50 states, really visiting them, not just stopping at the airport. I watched the video that featured you. You have been a source of support for many of us here. I hate this disease and what it does to us. I wish I could do something to change things. You remain a strong force in this world. You have things planned, and you are continuing to live each day as it is given to you. You are in my thoughts and prayers.

    Hugs and prayers from, Lynne

    · Share on FacebookShare on Twitter
  • blainejennifer
    blainejennifer Member Posts: 1,848
    edited December 2018

    Becs,

    Is that morphine for pain control or an exit plan?

    You are exploring frontiers that scare me. I'm so proud of you.

    Jennifer

    · Share on FacebookShare on Twitter
  • Iwrite
    Iwrite Member Posts: 870
    edited December 2018

    Becs,

    I admire your determination! Enjoy every day:

    · Share on FacebookShare on Twitter
  • Heidihill
    Heidihill Member Posts: 5,476
    edited December 2018

    As someone old enough to be your mom, I just want to say I am so proud of you, Becs. 

    · Share on FacebookShare on Twitter
  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited December 2018

    Becs,

    Wishing you peace and comfort

    · Share on FacebookShare on Twitter
  • SandiBeach57
    SandiBeach57 Member Posts: 1,617
    edited December 2018

    Hi Becs. How are you spending your days? Books on tape? Manicures? Frufru coffee drinks? Turner Classic movies? Photoalbums? Great conversations? You seem active and adjusting to this next chapter.

    We are listening..talk to us when you need to.

    · Share on FacebookShare on Twitter
  • Zillsnot4me
    Zillsnot4me Member Posts: 2,687
    edited December 2018

    Awed by you, your journey, your resilience.

    · Share on FacebookShare on Twitter
  • pajim
    pajim Member Posts: 2,785
    edited December 2018

    So proud of you for still working and also making plans for the future. I aspire to be able to make those decisions. Thinking of you and wishing you all the best.

    · Share on FacebookShare on Twitter
  • Kidmanliang
    Kidmanliang Member Posts: 91
    edited December 2018

    Hi Becs, I also admire how you can still work, but I hope that you will be able to enjoy everyday. I wish you all the best.

    · Share on FacebookShare on Twitter
  • dtad
    dtad Member Posts: 2,323
    edited December 2018

    Becs511...when reading your post all I could think of is how unfair this horrible disease is! You are way too young to be going through this. I would like to commend you on calling in Hospice early in your journey. As a RN with Hospice experience, most people wait way too long. Hospice is a wonderful organization with so much support for you and your family. They will help you live your best life. My heart goes out to you. You are one brave women. WE NEED A CURE!

    · Share on FacebookShare on Twitter
  • Shutterbug73
    Shutterbug73 Member Posts: 791
    edited December 2018

    Becs - I haven't been on BCO in ages, but I logged in tonight hoping for an update from you. I'm glad to hear you are able to still work remotely part time. I know how important your work is to you. I think it is amazing the way you have adapted to these new changes in your life. You, my dear, are a beautiful example of resilience, and I wish you joy and comfort and peace.

    · Share on FacebookShare on Twitter
  • Cure-ious
    Cure-ious Member Posts: 2,626
    edited December 2018

    Dear Becs, Ditto to what everyone is saying- I'd like to think you are just taking a cleansing break from all the toxicity and stress, and that in the new year something marvelous pops up, and if not we all are headed down this road you're traveling and hugely appreciative for all the insights that you care to share...

    · Share on FacebookShare on Twitter
  • illimae
    illimae Member Posts: 5,710
    edited December 2018

    Per BCO Brain mets sisters and Facebook reports, Becs passed away today. Heartbreaking 😢

    · Share on FacebookShare on Twitter
  • MuddlingThrough
    MuddlingThrough Member Posts: 726
    edited December 2018

    Oh, such sad news. Heartbreaking.

    · Share on FacebookShare on Twitter
  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited December 2018

    Oh, wow, that was sooo fast! I’m so sorry to learn the news. It is a little hard to accept. My deepest condolences to Becs’ family and loved ones. It is sad that another one of us, and one so young, was taken by mbc. May she rest in peace.

    · Share on FacebookShare on Twitter
  • 50sgirl
    50sgirl Member Posts: 2,527
    edited December 2018

    Yes, that was very fast. I am glad that she did not suffer for a long time. I pray for peace and comfort for her parents, friends, and other family members. She was a strong, caring, special person.

    Mae, Thank you for letting us know

    Hugs and prayers from, Lynne

    · Share on FacebookShare on Twitter
  • illimae
    illimae Member Posts: 5,710
    edited December 2018

    FYI

    https://www.google.com/amp/s/www.dignitymemorial.com/obituaries/new-york-ny/rebecca-scheinkman-8091578


    · Share on FacebookShare on Twitter
  • Cure-ious
    Cure-ious Member Posts: 2,626
    edited December 2018

    Thank you Ilimae for letting us know about Becs, she was so strong, and its very very sad.

    https://twitter.com/nycbecs?lang=en


    · Share on FacebookShare on Twitter
  • Moderators
    Moderators Member Posts: 25,912
    edited December 2018

    As we've posted on other topics, we are deeply saddened by the loss of Becs, and recognize how this affects so many of you. We are here for you and sending you gentle hugs

    · Share on FacebookShare on Twitter
  • JFL
    JFL Member Posts: 1,947
    edited December 2018

    Illi, thanks for letting us know. I am shocked. I thought this was a ways down the road based on her initial post. She is such a strong person and an I inspiration. She will be missed dearly.Life is not fair.

    · Share on FacebookShare on Twitter
  • Micmel
    Micmel Member Posts: 9,450
    edited December 2018

    Oh my goodness.. again at a loss for words. I am very sorry to her parents. No one should have to worry about cancer at 37.5 years aged. Nor have to let go of a child. I just hate this disease. Taking it everyday is all we can do. But days like these are very difficult to process. No more pain sister. No more limits to where you can go or what you can do now ! Much love ~M~

    · Share on FacebookShare on Twitter

Categories