Diagnosed in November. No surgery until January.

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PennyK
PennyK Member Posts: 40
edited January 2019 in Just Diagnosed

I was diagnosed at the end of November. Stage 1B triple positive. I’m scheduled for a double mastectomy January 2. The oncologisr says that if it has grown af all (on MRI it’s just under 2cm), my stage will increase and treatment plan will change. I’m panicked they are making me wait. My breasts are painful so I know my hormones are surging. And the tumor feels bigger when I touch it. I’m not sleeping much. That was the earliest date I could get in due to the holidays but it’s seems like a lot of people don’t have to wait so long. My oncologist said she wouldn’t want to wait a month for surgery. But that’s the best date then surgeons could find

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  • Wigging2000
    Wigging2000 Member Posts: 295
    edited December 2018

    it's ok! That is not an overly long wait. I had about a one month wait. I was also scared about the stupid thing growing but it did not! I felt aches and pains and thought they were all cancer spreading. My tumor was 1.8 cm so I understand how you are feeling. It all turned out fine! I had clear lymph nodes and clear surgical margins.

    Mentally it helps to place your trust in your doctors and focus on that date. Get things done that need to be done before the surgery. Enjoy your time thebest you can, because after surgery things change for a little while.

    Take deep breaths, keep yourself busy, and trust in your doctors. The wait for surgery is very hard. Hugs...we are here for you!


  • Rah2464
    Rah2464 Member Posts: 1,647
    edited December 2018

    PennyK my time between diagnosis and actual surgery wound up being around 5 weeks. And I hated every minute of that wait. And my tumor was actually smaller than they originally estimated. Going into surgery they thought a 2cm plus mass, coming out it was actually only 1.3 cm. I wish you well and peace if you can find it these next few weeks. Take care of yourself, eat really well to build up your strength for surgery, and Jan 2 will be here. Sending you hugs as you begin this journey.

  • SimoneRC
    SimoneRC Member Posts: 419
    edited December 2018

    I was diagnosed February 20 and had surgery April 6. Please try not to panic. I know it is difficult. It is just around the corner. Sending strong thoughts your way!

  • Each_day_2018
    Each_day_2018 Member Posts: 154
    edited December 2018

    I was diagnosed in June and didn't have surgery until September. Try not to worry. Tumors grow for YEARS, so waiting an extra few weeks is not detrimental! Throughout this whole process, I have found that waiting is the hardest, and it's also what you will experience the most of. Best wishes!

  • JoE777
    JoE777 Member Posts: 628
    edited December 2018

    I was diagnosed February and had surgery in April

  • Maybe_Maeby
    Maybe_Maeby Member Posts: 16
    edited December 2018

    I, too,was pushed off due to the holidays and I panicked. The date from my diagnosis to the first surgery date they gave me was over 7 weeks. I think the surgeons thought they were doing me a favor by giving me an intact holiday—guess they didn't take my mental state into account, haha. I did get an earlier date which was more in the six week ballpark. Even though I am dealing with DCIS, the MRI showed it to be extensive and high grade. The pathology report I received after the UMX sounds just like the MRI I had several weeks before; nothing changed. It was very hard to trust that waiting period beforehand, but you'll see that timeframe on here a lot. In retrospect I’m glad I had that time to organize things at home and at work, too (even though recovery has been a breeze compared to what I feared!) Best wishes!!

  • wallycat
    wallycat Member Posts: 3,227
    edited December 2018

    I had to wait a really long time --first to get the MRI because they claimed menstrual cycle affected results. It figures I was peri-meno and took over a month to get my period. Then they sent me back to ultrasound, which found nothing, then back to MRI for biopsy...then finally, lumpectomy. The whole ordeal with first mammogram/ultrasound was in January and my initial surgery in May. That's nearly 5 months of watching and waiting.

  • PennyK
    PennyK Member Posts: 40
    edited January 2019

    I had the surgery on the 2nd. It took 6 1/2 hours. In addition to the double mastectomies, they plced a port, and did a sentinel node biopsy and reconstruction with expanders. Pathology found only the two tumors that were on the MRI. One is 1.9 cm, the other is 5 mm. So, no raditation. Sentinel node biopsy was clear. I feel pretty good. Improving mobility, not a lot of drainage, I'll start transitioning off the strongest pain killers today. My only worry is that my legs have some swelling. Is that normal? I don't see anything about it in the literature they gave me-only info about arm swelling. The lower legs are puffy. I'm a thin person. Does anyone have any experience with thus

  • dtad
    dtad Member Posts: 2,323
    edited January 2019

    Hi everyone..I was diagnosed in March and had surgery the end of May. Most tumors take years to grow so I wasn't concerned about the long wait. IMO its more important to do your homework about treatment options, docs and facilities. Good luck to everyone battling this complicated disease.

  • SuQu31
    SuQu31 Member Posts: 160
    edited January 2019

    I noticed some swelling in my legs about a week after surgery-mine was also lengthy. Was so worried about blood clots (because I worry about everything, not because I was particularly at risk). Drink plenty of water, walk around every few hours, prop up your feet higher than your heart. Flex your feet and ankles periodically. Watch for swelling in one leg more than the other. It was explained to me that you are unlikely to have clots in both legs. Hope this helps. Blessings

  • SuQu31
    SuQu31 Member Posts: 160
    edited January 2019

    One other thing- don't mean to give instructions just trying to be helpful. Nobody said much to meabout blood clots because I'm healthy (other than the cancer), but everyone should watch out. And at one week out, I found that I could feel great one day and wiped out the next. Apparently this is not unusual. I am four weeks out tomorrow and feeling better every day, yet surprised that fatigue continues. I had to have a reexcision after mastectomy to get a cleaner margin, so only 2.5 weeks since that.

  • jessie123
    jessie123 Member Posts: 532
    edited January 2019

    I found my tumor Nov 2nd and still haven't had surgery --- it will probably be in February. I got second opinions, cancelled my MRI twice out of fear and and waiting on tests and even doctors appointments takes time. One of my friends doctor told her that her ILC tumor had probably been growing 7 or 8 years ---- so no hurry.

  • Careninnj
    Careninnj Member Posts: 53
    edited January 2019

    i was diagnosed june 22. My surgery wasnt untill aug 16th. Its OK!

  • Missie280
    Missie280 Member Posts: 1
    edited January 2019

    I had the mammogram and ultrasound in April 2018... Was told lump that I found was fine come back in 6 months ..Went back beginning of October 6-month follow-up mammogram ultrasound was told I had a tumor that mimic cancer and scheduled for a biopsy of the following week.. Found my own cancer diagnosed on mychart.com .. Freak out and of course it was a weekend. Waitined until that Monday call breast health and the doctor i was going to see was on vacation and will not be back until November 1st.. 1st came had my appt she confirmed my cancer had my lumpectomy on November 23rd. Went back on Christmas Eve morning for my results from surgery. I was very lucky lymph nodes and margins came back clear. Next appt with MO New Year's Eve. confirms I needed chemo. 4 rounds of TC.. Started January 8 2019.Today was my second round.. Overall chemo hasnt been to bad...raditation will start after chemo then hormone therapy will start.

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