August 2018 Starting Radiation

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  • Marymc86
    Marymc86 Member Posts: 102
    edited November 2018

    I have a question. I finished radiation in late July. I noticed my nipple had a crusty coating. I peeled it off and sort of forgot about it. It's November now and I got the nerve up to check it again. It was completely covered again. I'm scared that it's Paget's disease (breast cancer again). I'm hoping it's from radiation, but I'm scared. I see RO for followup the day after Thanksgiving. Was hoping to postpone, but guess I won't. Maybe move it up.

    Have any of you also experienced this crusting?

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  • Lomlin
    Lomlin Member Posts: 134
    edited November 2018

    Marymc86 I had that on my nipple too, I do believe it is from radiation, I just kept putting lots of aquafor on it. I never peeled it off so I wouldn't know if it would come back. Good idea to ask your RO though. I finished radiation in August.

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  • moth
    moth Member Posts: 4,800
    edited November 2018

    Marymc86 - I have that. The skin on the nipple is different than the skin on the breast and I think it's just part of the healing. Keep it moisturized, don't soak in bathtubs, and I'd say to not pick the layers, just let them fall off on their own.

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  • Marymc86
    Marymc86 Member Posts: 102
    edited November 2018

    Thanks. I saw my RO today. She doesn't think it's cancer, but wants me back in a month after my mammogram. She prescribed a steroid cream and told me to do what y'all just told me. Thanks for letting me know others have had this, too. They said it usually does not occur.

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  • Lomlin
    Lomlin Member Posts: 134
    edited November 2018

    Good to hear Marymc86.

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  • Insideout2
    Insideout2 Member Posts: 128
    edited December 2018

    Hello Everyone,

    I had my first post treatment PET scan this week. It came back clear. I will have one done every three months for a while. I will see my oncologist every three months also.

    A few more appointments with my PS and RO remain. A year ago I was getting a test done every other day it seemed to locate my Cancer's origin. I was first diagnosed based on a lymph node biopsy.

    Everyone's posts helped me. Thank you. Looking forward to our continued progress.

    Prayers and encouragement for all.

    Insideout2

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  • NVDobie
    NVDobie Member Posts: 184
    edited December 2018

    Insideout2

    Good news on the clear scan. PET scan every 3 months are pretty good monitoring.



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  • Insideout2
    Insideout2 Member Posts: 128
    edited December 2018

    NVDobie - I am not taking hormone therapy due to my cancer type.

    I will keep my three month schedule to closely monitor my post treatment progress.

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