Starting Chemo in JAN 2007
Comments
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Mizsissy,
I am sooo glad that you fell better. We are all in this together, and we will WIN!. I know it does stink too, but what choice do we have. We have loving families that need us! I agree about the stupid hat and scarves too!!ilene -
Mizsissy, I'm glad you are back posting. Your posts have always made me smile and have always made me think of you as the Jan07 cheerleader! But just because you pick US up off the ground does not mean that you don't need a hand up every now and then. All you have to do is ask!
My second FEC was yesterday and last night I was not screwing around with under-medicating. I took my anti-nausea meds as well as 2 gravols and I slept last night. I woke up this morning and felt, while not good then at least better than I did last time on the second morning. Nothing sounds good to eat so I'm drinking an Ensure vanilla shake which strangely tastes like a think cake batter.
Mizsissy, these are for you to make you smile! A collection of a few of the funnier pictures of my little guy who is such a card sometimes!
2 1/2 months:
4 months:
6 months:
10 months:
And just to show that he is not always a perfect angel, here he is at 16 months last Nov:
Hope those made you smile!
Susan -
Mizsissy--You are in my prayers and remember you are also in the hand of GOD.Hang in there,I know you are strong enough to see this through.
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Since I got my hair on Saturday I have lost more than half of it. I cannot believe this. I should have cut it shorter. I had no idea it was going to all come out all at once. Sheesh...
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Quote:
Mizsissy, these are for you to make you smile! A collection of a few of the funnier pictures of my little guy who is such a card sometimes!
Aladora, thank you for your lovely pix! My favorite one is the last one where's he's just gonna have a good cry for the heck of it!!!
OK, gals, here are some of my family members. We'll start with Bunky, or more properly Mr. Bunky, the Moral Leader of the Family for the past 18 years (actually, we had him out of wedlock!!!) His job is to make sure that everyone in the family gets "wuved."
He sits on your lap, face to face, puts his paws on your shoulders and proceeds ritually to rub your cheek with his opposite cheek, alternating back and forth Sometimes this gets quite forceful, and we call it "Samuri affection" --it also gets kind of wet and blubbery, and sometimes his breath ain't so good, then we get smeared with "wuv." He gets insulted if you don't accept!
When he was little kitten, and even now, he doesn't like it when we close the door to sleep at night. DH called him a "wuv seeking missile."
Here's painting I did based on the photo:
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More to follow....
Mizsissy -
Well, I guess it it time for my daily check-in....
Not too much to report. I taught my class today, which went really well, and I was actually HUNGRY by the time I got home (gasp) so I am eating lunch as I am typing this post. Today my energy is still holding up, and I managed to do a full 20 mins on the bike this morning. I think I still have to be careful with my energy, though because I think I overdid it last night by trying to keep my normal (pre-chemo) schedule, and I wound up comatose on the couch to wiped to even be able to have a conversation with my poor husband. Tonight is not looking much lighter...activities do not formally end until 8PM, and I will not be home for good until almost 9 (blech). Nobody tells you just how inconvenient BC is...I mean who has time?
Round 2 really seems a bit milder than Round 1 for me. The inital hit was harder, but I recovered faster (give and take, I guess). I wish the rest of my stubble would fall out already...not too much left, but it is just enough to make my head look dirty. If am going to be bald, I would at LEAST like for my head to be pretty! I do not think that is asking too much.
Yesterday I went to a "Look good feel better" program at my local Cancer Society office, and it was pretty neat. Has anyone else gone to one of these things? They have a cosmetologist come in and show you how to put on makeup to best hide the visible side effects of chemo...and they even give you a very extensive makeup kit that includes a lot of premium products and skin care stuff. It was worth it even for just the "stuff" (if I am going to wear makeup, I needed some, because I do not own any )...but it was also a nice group to meet with.
Aladora- your pictures certainly made me smile...reminds me of when my Owen was younger. He was pretty much a ham, and now he is a total handful..so different than my girls. Enjoy him...he won't stay small forever! Oh...and good move with the proactive meds! Those things work better if you take them before you feel sick anyway. I also think that sleep makes a difference. I hibernated the through days 2 and 3, and honestly I feel great now (day 6).
RobbinJaye- hang in there! Yes, it does come out all at once...and it was the distressing mess that drove me to the buzzer. I felt much better after my buzz, and it made it easier to control the hair shedding. For me, it was the process that was more disturbing than the end product, but everyone is different. This phase will be over soon, though and you will be able to move on. Everyone has to handle this loss in their own way. Let yourself handle it.
Wow Mizsissy, I absolutely love your painting....and the kitty is pretty cute too! You sound like you are feeling a little bit better, and I am glad. We are here for you to lean on -
Nandy, everyone is different but my second cycle was much better than my first. Just had the third yesterday so the jury is still out on that one. Hope yours goes the same as mine did only even better. - Skye
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RobbinJaye,
I am not trying to depress you but you had gorgeous hair!!!I really miss mine.I am 3 months out from chemo and still waiting to ditch the wig.Hang in there.
Hugs,
Lisa -
Mizsissy - glad you are back and feeling a little better. Remember that in addition to all of the other side effects chemo does a number on your hormones which really effect your emotional reaction. Sometimes it's just all that chemical craziness going on inside that can make you feel depressed, upset, or like you just can't handle it. Don't let that get you down. I spent hours crying last week for no reason. I swear it was hormones. Chemo has been a lot like pregnancy for me with the nausea, fatigue and crazy mood swings. Hang in there. Oh, and the cat is gorgeous!
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...Chemo has been a lot like pregnancy for me with the nausea, fatigue and crazy mood swings.
Jan it is so funny you say that. When friends ask me what chemo feels like I am ALWAYS comparing it to the feeling of being pregnant...but without the squirmy thing behind my belly-button. I thought I was just being queer! Nice to know that I am not the only one to think that. -
RSheehy,
That's funny cause yesterday I went to my Look Good-Feel Better Program too. The lady never showed up to do the class and it was only me and one other lady. She was cool. So we watched a video of how to put on scarves and got our make up kid. I was lucky that they did have one kind of long hair wig. So I have a somewhat of a wig that I can throw on and go out in, but it's so frizzy and ichy. I am going to have to buzz my head like today or tommorrow.
My next treatment is Thursday and I am trying to get my daughter to go with me. She is 21 and cannot deal with this very well at all!!!!!!!!!! Here I am dealing with the breast cancer treatment and I am trying to support and help my daughter and mother through all of this. THEY CANNOT HANDLE THIS AT ALL!!!!!!!! My daughter gets mad and turns the other way and won't listen to anything at all. I can't tell her anything. I can't tell her that I'm gonna' be okay, she just don't want to talk about it.
I really hope some of my hair stays in until after Thursday which is my next (2nd) treatment JUST for my daughter to be able to go with me. If I am bald, she will FREAK!!!!!!
Lisaelder1972,
Thank you for your comment. Looks like you had thick hair too. If my hair had been thin, I would be bald right now. I have my first two bald spots. I can't belive I am going to be bald for the next few months. AAAAhhhhh... -
Had my Chemo #3 yesterday. FEC X 6, so that means I'm 1/2 way done. Started on December 29, so joined with the January girls. I had a much easier time with this chemo than Chemo #2. No vomiting this time.
My sister made me gingersnap cookies to alleviate the nausea, and they helped greatly. Today I'm feeling pretty good, so I better not complain.
I have a lot of problems with an itchy head when I wear my wig also, has anyone come up with any solutions? At least here it's so cold most of the time I just wear a hat.
Have a great day everyone. -
Thanks Jan & Rebecca, for telling us this,
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Sometimes it's just all that chemical craziness going on inside that can make you feel depressed, upset, or like you just can't handle it. Don't let that get you down. I spent hours crying last week for no reason.
You know, I have never been a crier. When this weepy stuff started coming along I thought I might be on the verge of a nervous breakdown!!!
Hey Aladora, your little monkey really speaks to me, tears especially!!!
I am so together today. Had two more neupogen shots since I posted, and took a couple of Darvocets yesterday. I don't know what it is about Darvocet, but each time I've had an infusion, one Darvocet seems to end the bad period.
When I had surgery, they gave me morphine (w/o even telling me, I really didn't want anything that heavy) but it didn't do a thing for the pain. Then the nurse gave me a Darvocet (the doc had prescribed them), the pain flew away, my brain started floating around with happy thoughts, and I was thinking...this isn't bad at all. Hey, I'm gonna go home and take another one of these!! Then the doc told me Darvocet was about the lightest thing he could have prescribed.
I hope we don't all turn into a bunch of drug addicts!!!!!
But the best medicine of all is a wonderful group of people like this one, people who are there when you need them!!!
Mizsissy -
Jonimb...I've got a real itchy head problem too. Shaving helped. The wig ladies told me that would go away after a while...but of course, they're sales people. You can get wig caps.
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Hi everyone,
Mizsizzy,
I know it is hard, but it WILL get better. We will all be on the other side before we know it. You have been such a positive person and an inspiration to all of us, I hope we can return that and send positive vibes your way. We have all been there. We know. Good days, bad days, in between days--It is great to come to this site and have everyone understand what we have been going through. Please keep coming. My thoughts are with you. Your painting is incredible. You have a great talent!!
A friend sent me a beautiful card with these words. It picked me up. I hope everyone has a pleasant day!
"JUST FOR TODAY
Do the things
You like the best.
Ignore the routine.
Put your troubles to rest.
JUST FOR TODAY--
Make a wish. Make a plan.
Close your eyes.
Dream a dream.
Believe that you can.
JUST FOR TODAY
Laugh out loud.
Sing a song.
Be assertive. Be silly.
Be happy
Be strong.
JUST FOR TODAY--
Do it all once,
and then if you like it...
TOMORROW,
DO IT ALL ONCE AGAIN!
Sometimes it's easiest
just to think about it
one day at a time!" -
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I hope we don't all turn into a bunch of drug addicts!!!!!
Ugh...I feel like a total junkie! I have NEVER taken so many meds in all of my life! -
Hi again,
Mizsissy,
After I wrote the last post, I realized I left out another aspect of this whole thing. THIS STINKS! It is okay to say this and to feel this. To deny our feelings is unhealthy. We have a right to feel yucky and to express that. Sometimes after a good cry, I feel much better. I hope you feel better too.
Viddie -
I hear you on the preganacy thing. Smells are driving me batty. I can smell aftershave and dish soap a mile away. My husband made toast on Sun and I had to leave the house. Blech! And standing at the deli yesterday was a challenge.
I agree that this round seemed to hit me harder but I recovered faster. I'd heard the complete opposite. I didn't have a "day 5" at all. Still have not gone to the gym yet and did that sooner last time, but I am trying to make sure I'm really out of the woods. Well, that and trying to figure out what to wear on my head so I don't look like an egg.
Sounds like we are all doing a little better today? Sure hope so--
Amera -
Viddie,
Thanx so much for your perceptive and kind remarks; we can all come back and look at your posts when we need inspiration.
You're right it stinks...but it sure helps to have each other!
And there are all those wonderful drugs!!!! You know, we're gonna have to be careful, because I do think that some of BC patients to get addicted. We'll be careful!!!
Mizsissy -
Rebecca, gingersnaps sound really good! And I know what you mean by the itchy wig. Actually with mine it's more the pressure of that sort of rubberized inside on my still-tender scalp that gets me. I can only stand it about 4 hours at a time, here is a pic of me in it. But the good news is my onc said he thinks there is a good chance I'll keep the eyebrows and eyelashes, he said about 30 percent of those on AC and cytoxin lose them, and usually that is for a six month regimen. Anybody else get eyelash/eyebrow predictions? - Skye
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I just finished by 4th AC tx and still have my eyebrows and eyelashes - thank God! But the 4th treatment seems harder than the others with the nausea lasting longer. Still going to work but it is hard to figure out what to eat. I start on Taxol on 2/22 for 4 tx. Hope that is better. It's getting a little discouraging and a little more scary each time. Hang in there. Together we can get through this.
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skyedivine, I'm on A/C and my eyelashes and brows are thinning rapidly. I have my 2nd round tomorrow, and just buzzed the hair off on Sunday because it was coming out.
I'm assuming since mine are thinning, that I will lose them. -
I still have my eyebrows, but I admit they are thinning. The one thing I still have plenty of is leg hair....lost it everywhere else, except on my gams.
Skyedevine: I love your wig!! -
My eyebrows were the first to start to go...they thinned even before the hair on my head started to fall out. I lost about half of the hairs in my eyebrows during my first round (I am taking TAC). I am assuming that they will thin again this round, and am predicting that they will be gone pretty rapidly. My eyelashes seem to be hanging in there pretty well...a little thinner but not noticably yet. I too have lost hair EVERYWHERE except on my legs. Sigh...lose it where you want to keep it, and keep it where you want to lose it.
Nice wig Skye! -
Good Morning,
I still have my eyebrows and eyelashes. I still have hair on my head. Has everyone totally lost ALL their hair on their head? DH buzzed me real short and I would rather have it gone then itchy irratating stubble. I do keep using the lint brush, but I had really thick hair to begin with, I just think there is still so much to lose!
Joni, congrats on being half way there! Hope you are feeling ok.
Skye, nice wig!
Mizsissy, so glad to see you back! Cute kitty, great painting!
RobinJaye, I'm so sorry to hear your mother and daughter are having such a hard time. My mom and older daughter (22) both had a real hard time right after I was diagnosed but have since come around and totally support me. I think they both realized that I'm the one with cancer and them crying wasn't helping me at all.
Ya know, this is such a rollar coaster ride we are on. I got out of the shower yesterday and stood in the mirror thought 'geesh, I don't really look like much of a woman, only one breast, no hair and the most pathetic look on my face', but hey, I'm beating this beast! Got dressed, put on make-up, earrings and head scarf and went to watch daughter cheer at basketball game. I was really nervous to be around other parents for the first time, but made it through and felt pretty confident. I was so down after taking my shower but ended up having a lovely evening watching my daughter.
Hope everyone has a wonderful Valentine's Day!
Lynn -
Thanks ladies for the nice comments on "Old Itchy." It's a freebie from the American Cancer Society. The funny thing is I was going to dye my hair red just before I found out I had cancer but didn't know if I'd like it, now I'm going to dye it for sure when it finally comes back. Especially if my onc is right and it comes in salt-and-pepper color! I don't think my brows and lashes have thinned but here is a weird leg hair thing...I shaved them over a week ago and it hasn't grown back! And yet above the knees nothing has fallen out, in fact I suddenly grew long mutant hairs on my left knee. Just one more funny thing to balance the sucky side. Not that long mutant leg hairs aren't sucky too. :-) - Skye
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Ok, well I guess I need to chime in with a "this really sucks" moment. Towards the end of my last cycle I actually got my period if you guys can beleive that. A true, honest-to-goodness totally normal one, at that. Right on time, too....28 days on the nose. YECK. I was led to beleive that one of the upshots of all this nastiness would be that I would not have to deal with that. Well, to add to that....last night (14 days after the start of my previous period) I started to stain and cramp a little. YECK YECK YECK. Anyone else having any issues of a (ahem) feminine nature?
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Rebecca,
Funny you should ask. I have an interesting story. I was getting really bad periods and actually had an endometrial ablation on 10/26/06. It was great, I wasn't going to have anymore periods. Then 2 weeks later on 11/7/06, I was diagnosed with breast cancer and found out I'd get thrown into menopause because of chemo. It was almost comical when I went to my gyn for post op, I asked him if he got good practice doing my surgery. I do admit that it's nice not having the periods anymore. I think I've read that many women have 1 or 2 periods after starting chemo, then stop. btw, I might have had a hot flash last night, not sure. I asked dh "is it really hot in here or am I having a hot flash?" -
Hey Lynn,
Strangely I was also having some issues with my cycles before my diagnosis. The cycles were getting shorter, and my hormonal fluctuations were getting more intense. I think that my ovaries might have gone into overdrive (which I am sure did not help my ER/PR+ tumor) I actually even had an appointment with an endocrinologist to look into what was going on...which I subsequently cancelled because of my cancer diagnosis. Hopefully the chemo will take care of the hormonal problems by stopping my ovaries, but I am not so sure based on how robust they have been so far. It is rather strange that I started in hormonal overdrive, and I am likely to end up at a dead stop (one way or another). Those are some SERIOUS hot flashes on my horizon, I think. I am also a little nervous about going into menopause at 35. That is a looooooong road with no hormones to keep my bones strong! I guess we have to do what we have to do... -
Happy Valentine's Day everyone!!
Lynn,
I had my period right before I had the first TAC treatment, then I thought I wouldn't get it again. 14 days later there it was. I am hoping it is now done. We have enough other stuff to deal with including the hair. I went to a funeral on Monday and wore my wig for the first time. It didn't bother my head, but I felt like I had a hat on and had to stop myself from pulling it off. When I asked someone who didn't know about my BC if she noticed the wig, she said she knew something was different. So even with the wig, things are obvious. My eyebrows are starting to hurt like my head did before I shaved it. My head is still all stubble too, and not falling out. How is everyone cleaning their head? I use lavender baby shampoo, but should I be washing it when I wash my face? Fun,fun, fun, ilene
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