I don't want to attend any BC related events, anything wrong?

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I was diagnosed two years ago at very young and I don't want to be defined as "breast cancer survivor" for the rest of my life! So I have been reluctant to attend any breast cancer events. I don't care if they can raise money or not for BC. Anything wrong about it? I have been paying a lot for my copay anyway. My mom thinks I will become depressed if I still don't open myself up about my diagnosis. 🙄

Comments

  • LoveFromPhilly
    LoveFromPhilly Member Posts: 1,308
    edited September 2018

    girlfriend I totally hear ya! I went to one MBC conference and I was drained for a week. Perhaps your inner knowing of how to best care for yourself is really shining through and speaking loudly and clearly.

    There’s no have to’s with BC. If you end up deciding you want to connect with other BC’ers one day, then I’m sure you will.

    Thank Mom for her concern and let her know that if it feels important to her then perhaps she could the events for you and for herself and report back.

    Actually, my parents did just that! They went to several events to become more educated about MBC and they found it very informative and helpful. I was happy to not go

  • Egads007
    Egads007 Member Posts: 1,603
    edited September 2018

    Almost every stage of our experience is dealt with in our own very personal way. I don't see any right or wrong way in the many reactions or coping methods any of us choose. I felt, and still feel, very much like you do. I told very few people about my cancer because I was afraid it would define me to others and myself as 'the one that had breast cancer'. To a great degree those that I did let in on my situation still treat me with kid gloves 5 years later. I hate it. I understand where they are coming from, appreciate their concern, but I wish I could erase it from their memories and go back to who I was to them before they knew. I have done that for myself, but 'it' is still there for them no matter how much more physically and emotionally stronger I am today. They still refer to me as a survivor, like a permanent mark on my record. Delving into fundraising would probably bring it back to the frontlines of my mind too, and possibly ruin all the work I've done to put it behind me and live a full happy life. Like you I choose not to immerse myself in events, not because of laziness or callousness to the cause, but simply as a life coping method. Some folks gain strength by the amazing work they do for the cause, and I'm proud and grateful for them....happy they’re finding a way to peace of mind. In the end it's all good. Whatever it takes, there is no right or wrong IMHO.

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited September 2018

    I wish people would just donate money to a legit research facility, or to an organization that provides services (transportation, screening, treatment, etc.) for those who can't afford it, without it having to be an "event." And I really hope anyone who participates in these things doesn't try to lay the unwanted and unwelcome burden of gratitude on anyone who has or had cancer.

  • Traveltext
    Traveltext Member Posts: 2,089
    edited September 2018

    Yes, plenty of good research institutes to donate money to without going to the bother and distress of attending a pink event. Those pink charities take at least half of thebfunds raised as administration costs. And you could look for a group that offers practical support to people as AliceB suggests.


  • gb2115
    gb2115 Member Posts: 1,894
    edited September 2018

    Honestly, do whatever you want. Just because you had breast cancer doesn't mean you have to go to events!! It's totally ok.

  • Meow13
    Meow13 Member Posts: 4,859
    edited September 2018

    I agree with AliceBastable. I wish the "events" weren't shoved in our face. I know where I used to work it really wasn't possible to avoid them.

    Pink charities don't care what BC survivors think or feel they are fundraisers making a profit. Yes some of the money goes to research. I am happy when the pink is over.

  • stephilosphy00
    stephilosphy00 Member Posts: 386
    edited September 2018

    I will go if they give me financial support for my medical bills!

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited September 2018

    Nothing wrong with your feelings at all. Mom can go, you don’t have to. I hate the whole pink washing of October and won’t wear anything pink during the month.

    My DD did the last 3 day Komen walk in Tampa when I was in treatment. Now Komen has stopped them completely. I’m glad, for a lot of reasons. I won’t go off on Komen now.

    Just keep on being you, it’s ok.

  • ceanna
    ceanna Member Posts: 5,270
    edited September 2018

    Nothing wrong with not wanting to be labeled, giving our time and money to other causes, and not telling others of our situations. Having BC is private unless I choose to let others know. I'm not a fan of Pinktober nor of the word "survivor." We all cope with having BC in different ways and each way is okay. I think there is enough "awareness" and work needs to focus on a cure and help for those in financial need for treatment. Don't feel guilty stephilosophy for getting on with life!!!

  • Meow13
    Meow13 Member Posts: 4,859
    edited September 2018

    True, for people without good health insurance the costs are high. MRIs are considered routine for discovering the extent of the disease and easily cost over $2000, not to mention surgery, hospital stay, radiation, reconstruction....

    I know we aren't suppose to be political but I think we need the affordable care act, with truely affordable costs.

  • Runrcrb
    Runrcrb Member Posts: 577
    edited September 2018

    Stephilosphy00 - don't feel guilty and don't feel compelled to attend or make excuses. Simply say no. I'm a lot older than you and I don't want to spend my remaining years labelled as a breast cancer survivor. Unlike the flu or strep, the treatment cycle is long for BC (23 months from first surgery to last for me) so the illness stays in my mind but I look forward to the day when I can't remember the details.

  • NotVeryBrave
    NotVeryBrave Member Posts: 1,287
    edited September 2018

    I say do what feels right to you! Some people gain strength and purpose by digging into many BC events. Others just wish they could forget all about BC and it's effect on their life.

    My teenage daughter participated in a walk for BC with some friends while I was still undergoing treatment. I think it felt important to her and I didn't mind paying the registration fee. But I just couldn't go.

    I'm sure there are lots of good organizations, but sometimes it seems like more focus is put on raising the next dollar than on what the dollars are paying for.


  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited September 2018

    "I gave at the office - the doctor's office." 😏

  • Sadlynew2018
    Sadlynew2018 Member Posts: 222
    edited September 2018
    Egads, your post is so incredibly refreshing. I’m less than 2 months out from my diagnosis and only my husband and mom know. And frankly, between them and the incredible women on this site, I feel like I have all I need for me. I agree it’s a personal choice. I do feel like “going public” will label me. And when I was ready to move on, they couldn’t or wouldn’t. I do agree the extra support would be nice now but the “pity looks” outweigh any benefit (to me). Every person is so different and I do believe I’m in a minority on this. But I guess it’s my coping mechanism. I’m so glad I care across your post because it makes me believe I’m not alone with the way I feel. Thank you for sharing. You helped someone incredibly today (me). :-)
  • PhoenixCruiser
    PhoenixCruiser Member Posts: 118
    edited September 2018

    Steph and SadlyNew I agree 100% and to be honest just not looking forward to October and all the pink we will be seeing.

    Alice, I love your quote and will be using it!

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited September 2018

    Alice and Meow, you are right on the money. I truly hate the whole PinkTober campaign. I don't want to walk or run, I don't want to buy or wear pink stuff. I don't want to be the face of breast cancer.

    Rather than give my money to PinkTober organizations that may or may not spend it the way I intend I made a donation to the Hope Lodge in New Orleans. They offer their assistance to anyone undergoing treatment for cancer, any kind of cancer. We have stayed there twice while I underwent surgeries. They were so good to us. We were able to stay in a lovely hotel room with a large bathroom. We had a large kitchen available to us, a library, and a TV in the dining area. Volunteers ran us to and from the doctors and hospital. Other volunteers brought delicious meals.

    Hope Lodge made a very difficult situation more bearable and for no charge. I will be happy to support them in the future.


  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited September 2018

    Mustlovepoodes, Hope Lodge sounds wonderful. That's the kind of place to donate to - and I'll try to find something like that when I'm not giving all my money to co-pays, which will start up again when I'm cleared for radiation and then whatever anti-hormonal I'm going to get. And if insurance covers Prolia shots. This crap is a real money slurper, even with sort-of decent insurance.

  • Egads007
    Egads007 Member Posts: 1,603
    edited September 2018

    Sadlynew - Thank you for your very kind and generous words. It’s not often that I get serious around here, but this thread struck a note with me....and it was a relief to get it off my chest. I’m so pleased to have helped lighten your load. Having found your ‘like mind’ has helped me in return. Thank you for posting, youmade my day!

    Alice - *high 5* your quote is 15 shades of funny :)))

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited September 2018

    Must love poodles, excellent idea!

    And I do love poodles.

  • 7of9
    7of9 Member Posts: 833
    edited September 2018

    I still don't 6 yrs out although after 5 yrs, I got courageous enough to talk to on the phone and mentor some newer patients. I threw every pink think away I was ever given. I did buy myself a shirt last spring, I've only worn it a few times. All the treatments, scars, drugs, add one of us just can't handle any more. I'm grateful for those who do. I really feel their voices got me to do my self exam that caught my original diagnosis.

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited September 2018

    I don't want ANYTHING with a pink ribbon or other symbol on it - do people think we want or need a souvenir of this? We have those every time we glance down. Ribbons aren't gonna make our mangled or flattened or burned or shriveled breasts suddenly "cute." And as someone who has had more than one kind of cancer, I'll be damned if I join a ribbon-of-the-month club. I just want to get past all of the current surgeries and treatments and get back to living my normal life. And I don't refer to myself as a cancer survivor any more than I would call myself a hip replacement survivor. I don't give any disease or physical malfunction that much hold over my life. As a friend of mine who has been stage four (ovarian cancer) for about ten years says, it's like Whack-a-Mole, if/when it shows up, you smack it down and get on with other things.

    Gee, can you tell this is a pet peeve? 😀

  • Rrobin0200
    Rrobin0200 Member Posts: 433
    edited October 2018

    it’s so ironic that this topic is being discussed. Just this past weekend, I was telling family that I dread October, and that I want NOTHING to do with any type of BC fundraisers, conferences, etc. I look at my scars daily; that’s my reminder. I don’t think there’s anything wrong with it, maybe I’m wrong.

  • Sassa
    Sassa Member Posts: 1,588
    edited October 2018

    I was diagnosed in November 2006. I refuse to attend any pink events. Anyone who says something to me because I won't donate I inform that I donated two breasts.

    I will not have any product that is labeled with pink ribbons in my house. This means I change my egg supplier from about the middle of September until they run out of pink ribbon stamped eggs.

    Stephilosphy: Tell your mother to take a flying leap.Tell her you are strong enough to deal wight your diagnosis without wallowing in "Poor little me" events.

  • Meow13
    Meow13 Member Posts: 4,859
    edited October 2018

    I have been asked to speak at a BC event and declined. I feel on the fence, I like to help anyone I can especially during the horrible first 2 months after diagnosis. Self exams are fine I am sure every woman that has an annual exam has been told to do them. No one ever talks are dense tissue, never heard it before I got diagnosed. I never knew mammograms were almost useless for me. Still at 60 years old I am told MRI needed if I live to 70 maybe I will be less dense.

    We need better treatment, that is a message I would like to get through.

  • Traveltext
    Traveltext Member Posts: 2,089
    edited October 2018

    Good on you Meow13, I can see your point. When I get asked to speak at my small town’s pink event, I accept the offer and I make my point by turning out in blue amidst the sea of pink. Four years later and the town is very aware that men get this disease too. I also get featured in the local media, so this spreads the message further. Because public awareness about men getting bc is so low, I will chip away at this task.

    The new ABCshow A Million Little Things features a man with bc attending a support group which is naturally made up exclusively of women. The story unfolds around his relationship with one woman. This sort of publicity will turbo charge our awareness campaign, for sure.


  • Meow13
    Meow13 Member Posts: 4,859
    edited October 2018

    Travel, did I tell you I saw a tv ad with a man on breast cancer. Haven't seen it recently but I was suprised and happy to hear they are trying to get the word out.

  • Gussy
    Gussy Member Posts: 115
    edited December 2018

    stelophilosophy00 - I know exactly how you feel. I'm looking at age 80 in a month and I don't want to be defined as "cancer survivor" since I may not be here who knows how long. I have a new husband (1 year) and I want to spend as many years as possible with him. But I'm looking at the end of life here regardless.

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