Could this be ILC Again

dakrock
dakrock Member Posts: 99
edited December 2018 in ILC (Invasive Lobular Carcinoma)

Well I had my mammogram on Monday and saw my BS right after.  After I had the mammogram they said they needed to do an ultrasound. After the ultrasound person came back in and said the radiologist said everything was okay it was just a cyst.     I don't have to tell you how I was freaking out.  Report says:Left breast ultrasound of the retroareolar region redemonstrates a bilobed cyst at 12 o'clock, 1 cm from the nipple measuring 1.3 x 0.6 x 0.6 cm. The cyst contains debris. On previous ultrasound in 2016, the cyst was larger, measuring up to 2.6 cm.   I'm thinking the letrozole I'm taking is shrinking the cyst if it is really just a cyst.  I'm worried it might be ILC in that breast.


· Share on FacebookShare on Twitter

Comments

  • Dani444
    Dani444 Member Posts: 522
    edited December 2018

    dakrock, would your surgeon order an MRI just for your peace of mind? I imagine how stressful that was when they said they needed the ultrasound after the mammo but glad they were being thorough.

    · Share on FacebookShare on Twitter
  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2018

    Hi there,

    Until you find out for sure, try to believe that the AI that you are taking is working and keeping any problems out of your good breast. MRIs seem to be the gold standard for ILC detection, so if your doctor will order one, get one done. I've had two--both ordered by my plastic surgeon: one to see if there were any new problems before my BMX, and the second was post surgery, to see how much breast tissue was left after my surgery. Luckily there was no detectable tissue left over, so I guess my surgeon and plastic surgeon did a really great job.

    But there has to be a way to order one for you. Otherwise, I suppose they would biopsy the believed cyst to make sure it's nothing?

    Claire in AZ

    · Share on FacebookShare on Twitter
  • jessie123
    jessie123 Member Posts: 532
    edited December 2018

    A younger friend of mine had a fine needle biopsy on her breast -- when the needle reached the cyst it popped and disappeared from the screen. Of course it wasn't a hard cyst. When I just had the core biopsy he didn't hurt at all and the guy stuck me 3 times. I'd go that route.

    · Share on FacebookShare on Twitter
  • dtad
    dtad Member Posts: 2,323
    edited December 2018

    Hi everyone...I agree that you should have a MRI. Its the best screening tool for ILC. Good luck and keep us posted.

    · Share on FacebookShare on Twitter
  • dakrock
    dakrock Member Posts: 99
    edited December 2018

    Thanks for all the support.  I am going to ask my primary care doctor what he thinks I should do at this point.   My BS doesn't think I should have an MRI.   I'll keep you posted.  I see a genetic person 1/7/19.   She is going to check to see if the breast cancer and the melanoma I recently had surgery on have any of the same genes.   I don't know I'm really confused by all of this. 

    · Share on FacebookShare on Twitter
  • princessfluffybritches
    princessfluffybritches Member Posts: 81
    edited December 2018

    I don't think many people go far enough in investigating findings. And my mri did not show any ILC. I feel like if you've had ILC, and now have what appears to be a cyst, that may require a biopsy to be definitive.

    · Share on FacebookShare on Twitter

Categories