INSOMNIACS place to talk in the wee hours

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  • Wren44
    Wren44 Member Posts: 8,585
    edited December 2018

    Susan's Daughter, Thank you for sending the update. She was a very sunny presence here and beloved. Best wishes for her and the rest of the family.

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  • kathindc
    kathindc Member Posts: 2,042
    edited December 2018

    Susan’s Daughter, thank you for taking the time to let us know about your mom. I will be holding her and the family in my prayers. Gentle hugs to all of you.

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  • queenmomcat
    queenmomcat Member Posts: 3,039
    edited December 2018

    Susan3's daughter: another thank you SO much from another Owlette; yesterday I was wondering how she was doing. I'm the one who lives in SW Michigan, who made her a giant plate of 'normal' spaghetti (hamburger and tomato sauce) a couple of years ago, and I do remember with fondness the few meals we had together. Tell her if she's up for it) JJQueenmomcat raises a fork in her honor, and my hair still isn't lying down!

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited December 2018

    Sorry folks, Phyliss Graham is in hospice, Pd Graham. Most here on this thread don't remember her. Prayers please,

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  • kathindc
    kathindc Member Posts: 2,042
    edited December 2018

    Keeping Phyliss in my prayers. My fondest memories are her stories of sitting on her porch with a paint gun. Thank you Sas for letting us know. Hope you are well

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  • Wren44
    Wren44 Member Posts: 8,585
    edited December 2018

    Thanks for letting us know. I really loved reading her posts. I know she did everything she could to beat this beast. Blessings to her.

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited December 2018

    I'm going to do something I haven't done before, anyone who pm's me I will give you the number. As any of us that have gone through this long term, our close friends are few. So if you would like to talk to her, PM and I will give you the number.

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  • Beatmon
    Beatmon Member Posts: 1,562
    edited December 2018

    Dear God, how many treatments has our Phyllodough endured. I am just broken. We lost Mags and now our Phyllis in Hospice. When will they find a cure for this beast that is taking our brightest and best.im so sad tonight

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited December 2018

    Susan3 daughter Claire. so sweet of you to contact us. Give her our love. She fought so hard. She always joked that her doc had something new in his trick bag. She was so excited about the babies. She was so happy that you and your husband were in driving distance when he got his residency. Many, many hugs and prayers

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited December 2018

    Owlettes hello

    Beatmom, hugs, I sent you the number.


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  • Mominator
    Mominator Member Posts: 1,575
    edited December 2018

    Dear susan3's daughter,

    Thank you for updating us on Susan. I'm so glad that she is getting pain relief. Hospice people have been so helpful to my family, and I hope that they will be for your mom and your family. 

    I will keep you and your mom and your family in my prayers.  

    Mominator / Madelyn 

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited December 2018

    I talked with Phyliss again this morning. She's cheerful. Eating well. Laughing. Thinking is hard for her, but her brain is working, just hard trying to express herself.

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  • feelingfeline
    feelingfeline Member Posts: 5,664
    edited December 2018

    I remember Phyliss for her incredible wit on these boards. I am sure that her humour must be still intact, even if she can't express it, and it will be a gift to her always to have humour.

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  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited December 2018

    That's good.


    I am a meanie auntietoday. My younger nephew is an Ohio State fan and when I heard that their football coach is retiring after the Rose Bowl, I had to play “Play Pokethe Bear" with him. I posted a little message for him and then a picture message from the old game show “Weakest Link"


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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited December 2018

    Phyliss has the greatest sense of humor. It's wonderful that she is still laughing. She has the sweetest nursing assistant named Mary. I was on speaker both time and heard how Mary and Phyliss interacted. As an old nurse, it was respectctful and loving. That made my heart feel good. Mary is one of those people that as an old nurse, I loved having by my side as a team mate. You could trust their care and kindness.

    But now back to an old thought, I recommended in the past to have a second contact number for each other. With Mags and Phyliss had I not had back up numbers I would not have been able to contact them. Both had been moved to hospice and weren't making calls. Mags was more towards the end. Phyliss is still cognizant and talking, but let's just say not making outgoing calls. 

    Many on BCO want anonymity. I want contact, it's a need. I want the friendship that can be so much fun by the phone. Direct human contact is the best, but for those of us essentenially(sic) homebound the phone can be great.

    Please, consider, making phone contact and ask for a back up number to reach them. 


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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited December 2018

    Back with a thunder. The post below will be made into a post on some forum. I am shocked. Completely. I hope others are as offended as I am. If MammaRay's thread hasn't been wiped out I will apologize. 

    Message sent to Mods:
    I went to look at MammaRay's memory thread. Last person to post was Joanne58. The thread links back to the main forum thread. Did it multiple times. So, either there is a glitch or you have interfered somehow with MammaRay's memory.....thread 
    Wiping out the community's memory of a memory thread wouldn't seem to be part of the TOS. Nor under the control of any outside person. This is the record from the forum thread

    Joanne58
    replied to topic
    Prayers for MammaRay
    on Nov 11, 2018 04:11AM
    (134
    total posts)

    In forum:
    Prayers and Spiritual Inspiration .

    Since the husband was against her memory here. I object that he had a right to asked for it's removal, if that is what has occurred. Without her written permission, her thread should not have been deleted by anyone.

    WHICH raises a very serious question, that needs to be addressed at the highest levels of the organization. Who besides myself can ask for my posts to be wiped out----or my memorial thread. 

    Have a nice day. I will create a thread somewhere for discussion Thank you, sassy"

    Thread created here

    https://community.breastcancer.org/forum/135/topics/868700?page=1#idx_1


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  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited December 2018

    Had to re-record the funeral of Pres. Bush for hubby because he had to work today and he was going to miss it otherwise. My DVR glitched on the last attempt and I only got portions of it. I shed a few tears while watching it.

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited December 2018

    Sorry, Mommy, you missed getting the recording. I dislike when these machines don't do what we want. 

    Junie  Queenie, Wren :) waving

    Loverly???

    Beatmom and I are  calling Phyllis. She was cheerful this morning. Sandy her BFF and her son Dale visit.  ….. I left a message for Susan on her husbands cell phone. 

     


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  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited December 2018

    Loverly? I am looking for her too.

    image

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  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited December 2018

    The second attempt at recording worked, got it all! Was very moving and beautifully done

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  • JWoo
    JWoo Member Posts: 1,171
    edited December 2018

    sending all the love to Susan and Phyllis and their families. 2 wonderful ladies that are departing all too soon.

    Sas- I cannot believe that thread was deleted!

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited December 2018

    JWoo, I agree, over the years I have kept memory threads so I can visit. It can be comforting to visit.  Perhaps I'll contact Joanne and ask what happened. Not sure if it matters why it happened. It can't be undone. But sure would like to get this hashed out so it doesn't happen in the future. Now I understand the complete anonymity idea. 

    Love your avatar

    I'll be calling Phyliss in a few, I will send your regards.

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  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited December 2018

    Ladies, I got a message from Susan's daughter early this morning. I am very sad to say that Susan has left this world. Great loss.

    Susan, it was a privilege to know you my other goofy friend. I am glad and happy that we were able to meet you and your precious girls. You behave yourself up there, you hear? I will miss you. Until we meet again.....

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  • Wren44
    Wren44 Member Posts: 8,585
    edited December 2018

    She was a bright light here and will be where she has gone. Love to her family and friends who will miss her terribly.

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  • queenmomcat
    queenmomcat Member Posts: 3,039
    edited December 2018

    My condolences to Susan3's family for their loss. (I'll raise a fork of 'normal' spaghetti in her memory tonight.)

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  • Mominator
    Mominator Member Posts: 1,575
    edited December 2018

    Our dear Susan went so fast. She was just thinking of quitting work at the end of October. 

    Sending my deepest condolences and many prayers to Susan and her family. 

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  • JunieB
    JunieB Member Posts: 1,023
    edited December 2018

    Oh no! I am so sorry to hear of Susan3's passing. She was a bright spirit here. My condolences to her family!

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  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited December 2018

    Sorry to hear of her passing. Love and kind thoughts to her family.

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  • kathindc
    kathindc Member Posts: 2,042
    edited December 2018

    Another dear sister gone too soon. Rest In Peace Susan. Love and prayers to her family. She will be missed.

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  • JWoo
    JWoo Member Posts: 1,171
    edited December 2018

    Rest well, Susan.

    She was so sweet and helped me through many tough episodes.


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