October 2018 Surgery Support Group

Options
1111213141517»

Comments

  • star2017
    star2017 Member Posts: 827
    edited November 2018

    best wishes, Dani. I had my implant before radiation too and so far no issues. I constantly slathered myself with aloe and aquaphor for the skin. I may have just been lucky the implant seems fine. I hope you’re lucky too

  • Dani444
    Dani444 Member Posts: 522
    edited November 2018

    Thanks Star! That makes me feel hopeful. I had already been using aquaphor per PS instructions. I think all of my new bras are permanently grease stained. LOL What brand aloe are you using?

  • star2017
    star2017 Member Posts: 827
    edited November 2018

    Dani, it was fruit of the earth. I got it on amazon but I see it at cvs and such places. I don’t think there’s anything special about it. I looked for 100% aloe. I have tons of bras with grease stains post radiation too.

    I found bras really irritated my skin, even the softest wire free ones I could find. At the RO they recommended going without a bra, but the PS said i needed to wear one most of the day. I want to give you a heads up to ask your doc about that just in case.



  • Naesha
    Naesha Member Posts: 62
    edited November 2018

    Dwiseley, so far my hands have been doing good in cold weather.

    Dani44, wow i didnot know about the YMCA program. I will definitely try to get more details about the program. Thank you for sharing the information.

    Take care ladies.

  • GAWarrior
    GAWarrior Member Posts: 398
    edited November 2018

    Dani444, thanks for the info for the YMCA program.

    FYI, my local Y doesn't have the Livestrong program, but it does have a free cancer support program through the hospital where I had my BMX. I had no idea! Gonna check it out. :)

  • DIVA56
    DIVA56 Member Posts: 5
    edited December 2018

    just joining this group. I had double mastectomy 10/15/18 with immediate Tissue Expander placement. Cannot wait to het these expanders removed. I have tried to have a positive outlook on this cancer dx. but lately I find myself crying a lot. Anybody else feel this 6 weeks post op?

  • GAWarrior
    GAWarrior Member Posts: 398
    edited December 2018

    DIVA56, welcome to the group, but I'm sorry you have to be here. I'm a generally positive person, but it's hard to keep that up day in and day out with this disease. I have my sad moments, for sure (my double mastectomy was the same week as yours).

    I'm not sure whether you were recently diagnosed or have gone through a lot of your treatment already, but know that a lot of survivors (I think i remember 80% or so?) get post-traumatic stress after their diagnosis. It's perfectly all right to cry - this ordeal is overwhelming a lot of the time. Be kind to yourself and give yourself time to heal both physically and mentally.

    It's one thing to go through spells of being sad for what we've lost, but if you are finding yourself crying and depressed more often then not, please talk to your doctor (oncologist, surgeon, primary care doc - anyone you feel comfortable with). It isn't a weakness to seek emotional help after going through this. There are groups on this website that can help you feel supported (I have no idea how I would have gone through this without my chemo group on here) and in-person support groups, not to mention medications that can help you get through this. Hang in there, you aren't alone. Sending big cyber hugs your way.

  • DeeDeeT
    DeeDeeT Member Posts: 76
    edited December 2018

    Hi Diva56, Welcome!

    I have found that this experience has really drained me. I had a lumpectomy on the 26th and thought I would have a quick recovery. I'm still hurting. I meet with my RO tomorrow to discuss radiation treatment. I feel like I'm not physically ready, but on the other hand, I really want to get that behind me.

    You are not alone in your feelings. Sending gentle hugs.

    ~Dee

  • Wised
    Wised Member Posts: 351
    edited December 2018

    Diva56… this is a crappy disease with difficult treatments. You've already been through a lot! Crying, feeling angry and or anxious is normal. I still have not cried yet and am worried because I know the tears are in there. Hugs

    DeedeeT, tell your RO where you are in recovery from surgery. Radiation isn't bad but requires that you keep your arms above your head for a few minutes. Hugs

  • PurpleCat
    PurpleCat Member Posts: 358
    edited December 2018

    I'm feeling it too, Diva56. The fear and sadness have crept back in now that I've started radiation. For the past six weeks I've been slowly recovering from surgery, feeling better every day, and the news that my nodes were clear and I wouldn't need chemo was a huge boost. As my surgical pain went away I began to put the whole frightening business of cancer on the back burner. Now I'm back to the nakedness and vulnerability and gowns and huge machines and beeps and bright lights and being forced to think about it for large portions of each day, realizing that life will never really be the same after all this and I'll never really be free of the worry of recurrence. Tears have come close to the surface again and have been spilling out sometimes over the past few days. I think it's normal.

  • Wised
    Wised Member Posts: 351
    edited December 2018

    Purplecat, I started answering this on the December thread, but got interrupted. I'm really struggling with the naked vulnerability thing. It is causing me deep distress, so much so that I called our local cancer patient services to ask for a list of counselors who work with cancer survivors. I hope you feel better about it soon. Rads should be no big deal, but it is...

  • Munmunmary
    Munmunmary Member Posts: 18
    edited December 2018

    Hi group! It seems like we are all progressing along with some occasional hiccups along the way. I am grateful for this group. Things have moved along and I am back at work after being off for like 5 and a half weeks.


    Purple Cat and Diva56 - I can sympathize with you. I don’t know if it’s the medicine or just timing of things. In the last 2 days there is moments of General sadness. I hope this is a passing phase.

    Chin up girls!



  • chiliaddie
    chiliaddie Member Posts: 10
    edited December 2018

    It certainly doesn't help that it gets dark at 4:30....makes us gloomier. Question: why would someone take hormone therapy if hey had a BMX? I thought that was just to prevent recurrence in breast. But no boobs=no need ? Perhaps someone has info about this. Have a wonderful night and i hope some internal sunshine

  • DIVA56
    DIVA56 Member Posts: 5
    edited December 2018

    I chose for the double masectomy to avoid radiation and hormonal blockers. My oncologist later explained that even though all of my breast tissue was removedand 3 lymph nodes were benign, there is a small chance of it spreading to lung, brain. She said hormone positive cells like to run and hide and are sneaky, so the hormone suppression medication gives me a better chance of remaining cancer free

  • PurpleCat
    PurpleCat Member Posts: 358
    edited December 2018

    Chiliaddie - yes, the darkness has been part of it too! I was the last patient of the day for my first treatment, and when I left the building the sun was down. It made everything feel more difficult.

  • Munmunmary
    Munmunmary Member Posts: 18
    edited December 2018

    DIVA56 - I choose the same route as you! I did a BMX to avoid radiation. Started on the tamoxifen and scheduled for exchange surgery 12/20. Maybe this emotional stage is the tamoxifen?


    Anyone have thoughts on exchange surgery and time off required?

  • Naesha
    Naesha Member Posts: 62
    edited December 2018

    hello ladies,

    i can totally relate to everyone of you going through the sadness and crying. When my OC told me that pathology report came positive and i have to go through the chemo again, i was so shattered and cried so much. Radiation was already in my treatment plan so I was okay with it but Chemo was definitely not. On top of that the weather is also not favoring. Its snowing and cloudy most of the time here in OH. But I am excited to go AZ to see my family during holiday time. Except these group and my family and husband, whenever i try to explain to other people what is going on i do not think they actually understand and all they say is stay strong. Sometimes i even hate when people say stay strong , i guess its just me :-).

    So Diva66, we all have our phases and i think its okay to feel sad sometimes and to go through the roller coaster of our feelings.

    Hugs to you and all of you ladies and stay warm.

    Take care

  • Wised
    Wised Member Posts: 351
    edited December 2018

    Naesha, I also hate it when people say to be or stay strong. I know they don't know what to say, but that phrase grates on my nerves. You get to leave the gray dismalness that is Ohio! Lucky you!

  • star2017
    star2017 Member Posts: 827
    edited December 2018

    My doctors warned me that when you're done with treatment is often when it becomes most emotionally difficult. You're not seeing doctors as regularly and may not be talking as much about your illness and how you feel. And if, like me, you're at the end of reconstruction, or close to it, and still not sure how you feel when you look in the mirror, it is really daunting. I think I am now mourning my breasts and my "normal"ness in a way I didn't during treatment.



  • PurpleCat
    PurpleCat Member Posts: 358
    edited December 2018

    Star, that sounds right to me. As much of a drag as this all is, it feels very reassuring that the RO and nurse will be looking me over every week, and then I'll have a final (?) followup with the surgeon at the end of January. There simply hasn't been enough time since all the imaging and surgeries for any new cancers to develop, or at least to become detectable. I feel safe. And I can already tell that the farther away I get from all of this, just left on my own for months until the next routine mammogram/physical exam, the more anxious I am going to be.

  • Wised
    Wised Member Posts: 351
    edited December 2018

    Star, that was my experience when I had colon cancer. It's like we're on a treadmill w something to do and treatments to endure, while being closely monitored by doctors. Once we're left to our own devices, we have to start processing the incredible medical Odyssey we just experienced and it's overwhelming. I was diagnosed with PTSD after my colon cancer and it is rearing it's ugly head once again. Ive already called our local cancer patient services to get a list of therapists who work with cancer patients. Our local agency pays for 6 free therapy sessions and I plan on taking full advantage of it.

  • chiliaddie
    chiliaddie Member Posts: 10
    edited December 2018

    thanks for the follow regarding hormone therapy wit BMX. I will definitely,speak to my breast oncologist!



  • Naesha
    Naesha Member Posts: 62
    edited December 2018

    hello ladies,

    Lately i have been scrolling and googling few articles regarding the natural healing for cancer. I came across this one book called "Chrisbeatcancer". According to his book after the surgery, he healed himself by following strict diet and did not do chemo. I tried to read the online reviews and it was mixed. I know we are here to help each other with genuine heart and opinions.

    Have anyone know about the natural healing process or strictly following nutrients. Since my pathology report came positive and OC recommend for chemo, I am confused about it. After the surgery, the cancer is removed from my breast and lymph node. So i am wondering how would the OC will know when to stop the chemo or whether the chemo is effective or not.

    Could you please share your thoughts on this and help a confused lady.

    Thank you

  • Wised
    Wised Member Posts: 351
    edited December 2018

    Naesha, it's hard to know what to say without seeing your stats in the signature line. Did you have the OncotypeDX? That helps determine how beneficial chemo would be. Oncologists know when to stop chemotherapy because there is a protocol for your diagnosis. I think you should find out what your risk of recurrence and of distant metastasis is with and without chemo. Then you should decide based on what risk you can live with. I don't have to do chemo for this cancer, but I chose to do it when I had colon cancer. I did not want to live with the knowledge that I didn't do EVERYTHING in my power to keep it from returning. That being said, I had serious side effects from one of the chemo drugs. That drug only decreased my riskvof recurance by about 2%, so I dropped it and continued with the other drug after 3/12 treatments. Think about it, talk to other survivors, and get a second or third opinion to help you decide. In the end, you are the one who's got to live with it. Good luck and many hugs.

  • Aussie-Cat
    Aussie-Cat Member Posts: 5,168
    edited December 2018

    Naesha, my twin sister followed a strict diet and took supplements for 4-5 months and her breast cancer grew quite a lot in that time but she felt a lot healthier for having such a good diet. How much a natural diet helps probably depends a lot on the details of which type of breast cancer you have. Now my sister is having chemo and it's helping but she's still following a natural diet and that helps to lessen the side effects of chemo. It would be good to talk with your oncologist and if you're interested, to also find a natural practitioner who could guide you about a natural diet and supplements. There's a section on this forum about natural treatments too. Best of luck and I hope you find the right treatments for you.

  • Naesha
    Naesha Member Posts: 62
    edited December 2018

    Thank you for Wised and Aussie-cat for your suggestions. I was not aware of OncotypeDX. I will definitely check with my OC about it.

    The more i dig in, the more I am finding it confusing. I was not so much informed about the nutrition diets before as the OC never said to restrict any food. But i guess its never too late. So i started to cut down the sugar completely, no meat. I always used to feel that i might not be doing enough to heal my body or to take care of myself since I was diagnosed. I am glad that i started and so far I am loving it.

    Since i had travel plans during Christmas, I will be starting Radiation on Jan mid. I will be done with my fillings this week. I still have leg cramps but other than that I am slowly starting to feel normal and fresh.

    I cannot thank you enough to you ladies for being supportive.

    Take care

  • star2017
    star2017 Member Posts: 827
    edited December 2018

    Naesha, please make sure you’re getting enough protein. Your MO may work with a nutritionist who can guide you.


    I never had an onco type test either.

  • DIVA56
    DIVA56 Member Posts: 5
    edited December 2018

    thank you Neesha

  • Wised
    Wised Member Posts: 351
    edited December 2018

    New thread in hormone tx forum. All are welcome!

    New thread

Categories