Mammogram scheduled

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Jmora22
Jmora22 Member Posts: 11
edited December 2018 in Not Diagnosed But Worried

Hi all! Thank you for taking the time out to read this. Friday Nov 16 I felt a lump in the shower (noticeably big, no pain), I went to the doctor Monday and she said it was hard and about the size of a golf ball and had me schedule a mammogram. Fast forward to Thursday and the lump is the size of a grape but it’s still hard; so I wonder if maybe the “golf ball” was swelling and the grape is the actual lump. Has anyone had this same occurrence? I’m 29 next month and my grandma has had breast, ovarian, and uterine cancer.

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  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited November 2018

    Do you have a copy of the radiolgy report? What exactly does it say?

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  • Jmora22
    Jmora22 Member Posts: 11
    edited November 2018

    I go for the mammogram on Monday so I don’t have it yet.

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  • Jmora22
    Jmora22 Member Posts: 11
    edited November 2018

    I need a biopsy. They said it’s a 5 cm mass

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  • Salamandra
    Salamandra Member Posts: 1,444
    edited November 2018

    Sorry to hear that. When is your biopsy scheduled? You can ask about the birads number if you want an indication of risk. Not sure if it's actually helpful or not though, you know? No matter what you're still waiting and it suck.

    Have you had genetic testing? Your gynecologist may be able to prescribe while you're waiting, based on family history.

    Hoping for good news for you!

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  • Jmora22
    Jmora22 Member Posts: 11
    edited November 2018

    They’re calling today to schedule it. The nurse said she wants to get me in tomorrow if possible and the results take one to two days.

    So when she calls I can ask her what the birads number is? Are those a good indication of the outcome or are they wrong at times?

    She mentioned genetic testing so maybe that’ll be a possibility.

    Thanks so much!

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  • Salamandra
    Salamandra Member Posts: 1,444
    edited November 2018

    Birads is their way of saying where it strikes them on the spectrum from 'this looks like nothing alarming to us but we're not 100% sure without a biopsy' to 'this looks just like cancer to is but we're not 100% sure without a biopsy'. So in that sense it's hard for it to be wrong, but it might not be so helpful. You could have a low birads score but it's cancer or a high birads score and it's not cancer. I think that's why they'll use it for deciding whether to schedule a biopsy or whether to tell the patient to watch and wait and rescan in x months, but not necessarily share with patients.

    I didn't know about them until after my biopsy confirmed cancer. Then I looked back and yup, my birads was a 5 - the highest you can get without clinically confirmed cancer. But I couldn't really have done anything differently in the meantime anyway. Maybe set up an alternate doctor with a more reliable fax system to get the results sent to. So that's why I'm not sure whether it's good or bad to have the score. Based on some posts see here, lower scores don't actually relieve women of worrying.

    Tomorrow would be great! I had about a week between them and then over a week to wait for results of the biopsy. I hate waiting.

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  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited November 2018

    My Birads was a 6, so sometimes I guess they do know for sure.

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  • Jmora22
    Jmora22 Member Posts: 11
    edited November 2018

    Birads is a 0.

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  • Mystic18
    Mystic18 Member Posts: 27
    edited November 2018

    You've probably already looked this up, but BiRads 0 means they don't have enough information. I have a biopsy on Thursday for a mass that grew and changed a bit in a 6 month interval follow up. Had one last year as well - wishing you peace and comfort. I feel like we all need that in spades while waiting for results. xoxo

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  • Dani444
    Dani444 Member Posts: 522
    edited November 2018

    Jmorra22- The waiting is definetly the hard part. Looks like you are getting in for your biopsy soon so hopefully you will not have to wait the weekend for results. At the womens center I went to they called within a couple days with the results. I am a little confused by your Birads score being a 0 with them doing a biopsy, but as Salamandra said, you will be waiting either way. I was too antsy and had them upload mine to the portal so I could get my Birads score. It was a 5 as I suspected. Is it an ultrasound core needle biopsy that you are having? I am sending good thoughts for B9 results for you!

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  • Jmora22
    Jmora22 Member Posts: 11
    edited November 2018

    well now I’m confused because I just read the report and it said birads is 4B but the nurse told me it was 0.

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  • Jmora22
    Jmora22 Member Posts: 11
    edited November 2018

    here’s the report:


    There is a 3.7 x 2.5 cm lobulated mass with an indistinct margin in
    the left breast at 1 o'clock middle depth. This lobulated mass is
    hypoechoic. This correlates as palpated. Color flow imaging
    demonstrates that there is increased vascularity.



    IMPRESSION: 4B SUSPICIOUS - MODERATE SUSPICION FOR MALIGNANCY -
    FOLLOW-UP RECOMMENDED
    The 3.7 cm lobulated mass in the left breast is at an intermediate
    suspicion for malignancy. An ultrasound guided biopsy is recommended.

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  • Dani444
    Dani444 Member Posts: 522
    edited November 2018

    That BIRADS score makes more sense, but again doesn’t give you the answers you need. I am sorry you are going through this. I can understand exactly how scary this feels while waiting for answers. When will your biopsy be? I truly wish you moments of peace while waiting. And please try to stay away from google, sometimes that just scares you more and the information you might be reading could be inaccurate.

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  • Jmora22
    Jmora22 Member Posts: 11
    edited November 2018

    Thank you. Biopsy was today. The radiologist who did the initial ultrasound and the one who did the biopsy both said different things about the way the tumor looks. One said indistinct and the other said circumscribed. Those are two totally different views on opposite ends. Wouldn’t they be the same?

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  • Dani444
    Dani444 Member Posts: 522
    edited November 2018

    I hope everything went well for the biopsy. Ice packs were my friends after mine!! Hopefully you will know an answer in the next couple of days. Hang in there. Try to find things to distract yourself while waiting, even though that might feel impossible

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  • Jmora22
    Jmora22 Member Posts: 11
    edited November 2018

    Thank you :) I’m trying really hard not to think about it but its difficult

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  • Dani444
    Dani444 Member Posts: 522
    edited November 2018

    Jmora22 just checking on you, how are you doing? Have you heard back yet?

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  • Jmora22
    Jmora22 Member Posts: 11
    edited November 2018

    Thank you for checking on me. Unfortunately it’s cancer

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  • DebAL
    DebAL Member Posts: 877
    edited November 2018

    jmora, I'm sorry you are going through this. You will find much support here. Once you get your plan together and get started you will feel a little better. Its alot to take in and absorb. Hang in there. You are not alone in this. Big hug to you.

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  • Salamandra
    Salamandra Member Posts: 1,444
    edited December 2018

    I'm so sorry to hear that Jmora. That really sucks.

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  • Dani444
    Dani444 Member Posts: 522
    edited December 2018

    Jamora I am so sorry. The beginning stages I felt were the worst for me as far as anxiety and fear. That does lessen as you find out what you are dealing with and what the plan is. It is so much information in the beginning so please don't hesitate to ask any question on here. You are definitely not alone in this as Debal said. I wish you the best.

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