Who do I tell?

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Suzyshacklechick
Suzyshacklechick Member Posts: 64
edited December 2018 in Just Diagnosed

I have ILC and have surgery December 27th. But I feel bad ruining holidays for friends telling them about me. But I could use the support. Who should I tell?

Comments

  • Salamandra
    Salamandra Member Posts: 1,444
    edited November 2018

    I told everybody.

    It's such a personal decision.

    But I would say, the way to think about protecting others is in how you tell them and how you interact with them about it, not whether to tell them.

    For whether to tell them, think about you and what will be comforting and comfortable to you.

    Then if you decide you want to tell, you can be thoughtful about how. So for children for example, you can be careful to be composed, not show panic, share whatever positives (with my students I told them that it is a very common type of cancer, doctors deal with it all the time, and I'm getting great care) you have. With some people you might explicitly tell them you don't want to make it the focus of the holidays and you'd rather they not being it up unless you do first.

    People (at least the ones it's worth being considerate of) will follow your lead if you give it.

  • CaliKelly
    CaliKelly Member Posts: 474
    edited November 2018

    I felt the same way, it was summer, lot of fun activities were coming up, so I didn't tell anyone til I was about to lose my hair from chemo. Then I only told my closest friends and family. I can tell you, my best friends were sad that I didn't tell them sooner, because they wanted to be there for comfort and support! It was kind of lonely, to be going through it alone. Except, for my great husband who was at every appointment, whether I wanted him too be or not! The way I told most people, like it's no big deal, I lied about my stage til my treatments were over, esp to my Mom, she had just lost 2 of her children, I didn't want her obsessing that I'd be next! Your closest friends and family will want to be able to support you, and if you frame it right, won't ruin the holidays. Made me closer to everyone! You'll know what's best for you, but I wish I had told my very best friend, right away, someone to talk to about my fears, other than my poor hubby!😚💖

  • Mamihen
    Mamihen Member Posts: 15
    edited November 2018

    You know, I read somewhere last year that people actually WANT to help in times of trouble. But they have to know first.

    I kept my diagnosis and surgery worries to myself for two months and only then told my sister and my mom. It was so nice to be able to share.

    Wishing you only the best! xoxo

  • gb2115
    gb2115 Member Posts: 1,894
    edited November 2018

    I told my parents and gave them permission to tell whatever family they thought appropriate so I didn't have to deal with it. And then I let the news spread at work and church just so that people wouldn't wonder why I was walking around looking so unhappy. It was easier for me to have people know. My coworkers really needed to know---that was the biggest thing, but I work in a small clinic and we all know each other pretty well. It would have been hard to hide it. And I didn't really want to anyway. However, I did not do a general announcement, like on Facebook or anything, since I don't like to draw attention to myself. There are many people I know that don't live near me, that have no idea I was diagnosed. And I'm ok with that.

    Honestly, tell whoever you want to tell. There's no right or wrong choice there.

  • beach2beach
    beach2beach Member Posts: 996
    edited November 2018

    I limited it to whom I told, but that's just me,,,I didn't want to tlisten to the whole omg, you poor thing..I just wanted my close friends to know and I knew they would respect my wishes in not dwelling on it. They were there for me when I needed them. that was important to me.

    Whomever you want. I would just say I have been diagnosed, scheduled for surgery such and such and I appreciate the support. I don't want this to put a damper on the holidays, I want to enjoy it and want everyone else too, so please lets not discuss it all the time. As long as I know you are there for me, that's what I need to know.

    We are here for you too. :)

  • Dani444
    Dani444 Member Posts: 522
    edited November 2018

    I told my immediate family at first but explained to them that I wanted to control who knew in the early stages. They respected that and I did let my coworkers and friends know when I had more of a plan. I honestly struggled with telling my family because I felt guilty for having to worry them. It was a relief when I did start telling coworkers and friends, and they are still such amazing supporters. I am still in awe of the love they are showing me. People will want to help and it will be nice to have that during this scary time. I wish you the best with your surgery

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited November 2018

    I told my sister, who is my only close family, but only because she was nagging me to help with going through our mother's stuff (she had passed earlier in the year). The day before surgery, I posted on FB, but my FB friends are other family members and real-life friends, so people I'd keep in the loop on anything. I kept it light and slightly humorous because I don't do drama - and for whatever reason, I wasn't freaked out about it anyway (my only reaction was "Really? Well, shit. Okay, let's take care of it."). I kind of paid for my lightheartedness by not getting much sympathy other than some initial "bummer, you're in my thoughts" reactions that day. But better that than gushing pity parties.

  • Runrcrb
    Runrcrb Member Posts: 577
    edited November 2018

    I recommend staying off FB and asking anyone you tell to respect that and keep it off.

    I wrote up an email in order to control the messaging. Sent one to my family ( parents and siblings) with follow up phone call to parents after i told my children. Husband knew first of course. Shared w group of friends the say way. Kept the work circle small for a good while- two years later people don't know and that is OK.

    Keep the list short. You will not ruin anyone's holiday. Tell people what you want from them- company, meals, company at appointments, or nothing. I found that people responded in many ways and many appreciated being able to do something specific.

    Good

  • MDRR
    MDRR Member Posts: 133
    edited November 2018

    At first I told just a couple of close friends and my sister, as I wanted some advice and support as I went through the testing, waiting and planning. I held off telling others until I had a plan in place. That way I felt I could tell them specifics and they, in turn, were able to determine how to best help since they knew what was going to happen. Like all of this, it's a very personal decision and whatever feels right to you is the right decision for you.

  • Michelle_in_cornland
    Michelle_in_cornland Member Posts: 1,689
    edited November 2018

    I only told my immediate family and best friend. I had a lumpectomy with radiation, and did not want alot of nosey people asking questions. Still only a few people know, and I am keeping it that way. When October rolls around, I do not want attention drawn to myself and do not discuss on social media.

  • Suzyshacklechick
    Suzyshacklechick Member Posts: 64
    edited November 2018

    Thank you everyone. I appreciate you taking the time to give me your input❤️ Suz

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2018

    I echo Michelle's post. I found reactions from people I thought I knew and could be trusted to be told were instead a mixed bag--, and they often pitied me (not with words, but with facial expressions), retreated, or pulled me from a positive place to a negative one with just an overly sympathetic "how are you"?

    I wore a short wig and unless I told them, no one knew. My close family knew, a few friends, and my boss and colleagues. I avoided telling my students, and they didn't know anything till I stopped wearing the wig, finished tx, and my hair began to grow in. It helped me avoid unnecessary stress and helped me with day to day normalcy.

    Claire in AZ


  • WC3
    WC3 Member Posts: 1,540
    edited November 2018

    I told most of my family because of our family history. With most others outside of my family, I started to look ill due to dropping a lot of weight and the hair loss/hats and people started to ask questions so I was just up front with them. I hope having it on their mind will save someone's life.


  • Salamandra
    Salamandra Member Posts: 1,444
    edited November 2018

    I did post on Facebook and for me it was a very good move. I didn't have to deal with telling most people individually. I got a lot of support and encouragement from my communities. And maybe most importantly, people I'd never known had themselves had breast cancer shared that with me and were really helpful in terms of information and just hope, of knowing people who went through this ahead of me. I also got a secondhand strong endorsement of my breast surgeon, which helped with peace of mind.

    I completely support everyone doing works for them. I just want to say, there's nothing wrong with putting it out there on Facebook or social media. It's your friends/feed, you have an idea of how they'd respond and whether it would be fortifying or stressful for you.

    For me, lucky to have wonderful extended community on Facebook, without a spouse or moms or local extended family, sharing was really helpful.

  • jessie123
    jessie123 Member Posts: 532
    edited December 2018

    I was just diagnosed last week and I've told all my friends -- I think my friends would feel hurt if I didn't share this with them. I even told the brick layer -- but it was because I had to put a hold on his work -- turns out his mom had breast cancer and has called me to answer any questions I have

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited December 2018

    Jessie123, that is so sweet. One of my FB friends is a woman I used to work with. We always got along well, but weren't particularly close. She reached out to me and we have become much better friends now - and she has long-term stage 4 ovarian cancer. I think she must have known how much I needed someone even though I acted like I was cool with everything. The cancer veterans become mentors.

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