I am a miracle?? Ok, I'll take that!!

Jen, I am so happy for you! Go live your life and enjoy every minute! You gave many here hope! Enjoy!!!!!!

Claudia

Thank you for sharing your awesome news, Jen! I'm relatively new to my stage IV diagnosis & appreciate the hope you are sharing. We don't know each other, but I am celebrating with you & all the long-term survivors.

Hi Jenn,

Thank you for posting your wonderful update. When I was dx stage 4 in March 2017 you were kind enough to respond to my questions and, like others on the boards, I consider you a friend. I am delighted to hear about your exceptional response. This is truly wonderful news.

My experience on this forum has been incredibly positive and that is what we should all be holding onto here. We are all in the same boat, whilst excepting that there are many different vessels in the harbour.

As for those who have posted on Jenn’s thread, I would like to wave a collective hello to all the names I see on here. So many recognisable ‘ faces’ over many months and even years; public posts, private messages where we have stood together against this crappy, unpredictable disease. Best wishes to you all and long may we continue to lift each other in this journey.

Liz x 💐

Hi gonegirl,

Thank you for sharing information on the MBC project: https://www.mbcproject.org. What a great and very important project, which can lead the way to optimized treatment plans 👍

That's is awesome!! I am a firm believer than miracles can and DO happen!!

Wonderful news, Jen! I remember holding onto hope in the first days and weeks following my mets diagnosis. Your story was one I read up on a lot, even though the make-up of our cancers is different. I pray you continue to have many more healthy, treatment-free years! Cheers!

great news jenn

I just read this entire thread, again experiencing joy at Jen's news, but then increasing apprehension as I saw it take a turn. It's amazing how things can derail so quickly.

Thanks to Jen's patience and generosity, this thread appears to be back on track. So, Jen and Exbrnxgrl, I'd like to add that I received my MBC blood sample package today. I too am excited to be part of this novel study!

Tina

Wonderful update!!!!!

I’m thinking (only with the help of my DH) that OP means Optomistic Patient...and I would bet a whole bunch of $ there may not be many UOP...UNOPTOMISTIC PATIENTS who log onto bc.org in the first place :-). I’m happy to be a member of the bc.org OP club!

I logged on (and most of you know I’m spotty on that), to see how Jen was doing since being herceptin free (a month ahead of me) & am so happy to read good news, Jen...and celebrating with Laurish too! I am 9.5 months post living w/out herceptin & I can add that along with the joy at celebrating the fact that we’ve defied the odds (my onc’s words describing NED for a good while after a stage 4 dx), I still get little aches and pains (normal at 64, I suppose) that make me visit a dark place. I doubt that will ever change. My onc told me, when ditching chemo after 22 mos, that perjeta would be next to drop & herceptin after that...so we had a plan all along, even though i was nervous. I added acupuncture, thanks to SUE’s recommendation & that helped my mental state immeasurably (I dropped my Prozac after a couple years). Now it’s helping my sexual state as well...TMI! When I asked my acupuncturist if he could help with (no) sex drive after decades of a healthy one, he explained to his student that as a stage 4 patient, the drive to survive is stronger than a sex drive, so that part takes on little importance. I’m thankful for integrative options & my cancer center has added this as well! I did the turkey tail tea/her2 vaccine study Jan-Mar 2017 & was able to add turkey tail supplements after 1 year post trial so I take one daily, along w/Letrozole. I’m up & down on diet...but stay active with kids, grandkids, friends, church, tv. & my dearest bc.org sister, WOODY, on messenger. Even though I didn’t think I had herceptin ses, I do notice feeling a bit more like the past me. My eyes are more clear, which seems trivial, but it affected me. My onc agreed that the ses are subtle, not chemo ses, but they’re there. I no longer have 3 month echos, but I have blood draw w/TMs every 6 weeks & onc visit every 12 weeks. My onc doesn’t scan routinely, unless there’s some change in my tests/appearance, or I request one. Sorry this is so long....prob info for 4 different threads. OH....MBC Project got my blood too! We are all in this together, even though we are all different, and I’m thankful that there’s a place we understand & support other. Prayers for peace & wellness.

Jen - love hearing about you being an exceptional responder! It gives all hope but we all know our own situations are unique. We can be happy and supportive of you without expecting our situations to follow your success. As we often say on these boards - it’s a crapshoot. Keep checking in and sharing your miracle

hi jenin

I had bilateral mastectomy back in 2011. No chemo or radiation. Tamoxifen for 5 yrs. Now 7 years later, cancer came back. PET scan tomorrow but I know it has metastasized to pectoral muscle and lymph nodes

I am in Toledo. Wondering if you can share who you see here

I too have 2 girls (11 and 13) You are inspiring m

Thx