November 2018 Surgery Support Group

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  • Spiritedcharm
    Spiritedcharm Member Posts: 16
    edited November 2018

    I'm almost a week out from BMX with TEs and just now starting to feel like I'm not going to die. I was not expecting it to be this painful and I think I tried to reduce the pain meds too soon. If I keep up with them, it's definitely more manageable. I'm down to 1 Percocet every 6 hours now (along with the muscle relaxers) and feeling much better.

    Surgery went well, no surgical bra for me (my surgeon actually wrote that on my chest). I stayed an extra night in the hospital because I wasn't ready to go. The bed was quite comfortable and the food was pretty good, so that made it harder to leave. By the second day I was ready to go home and I've spent the rest of the week on my recliner sofa sleeping a lot and enjoying the excellent care from my wonderful husband. I wish everyone had someone as nurturing and attentive as he is. It is making a world of difference.

    I'm surprised that my range of motion is much better than expected. I have to remind myself to keep my arms down because it's really not hard to raise them. I'm super impressed at how everything looks. So far I think I picked an excellent plastic surgeon because it looks like I will have minimal visible scarring. My drains have already slowed down significantly, so hopefully I will get them out sooner (I have 4).

    There are two tips that I am glad I learned from this site, @-BluGene. First, bring a LOOSE button up shirt to go home from the hospital. I can't believe that neither surgeon even mentioned that very important tip. Secondly, I have long hair and didn't consider what I was going to do with it until someone suggested a French braid. I had that done before the surgery so I didn't have to mess with it all week.

  • evily
    evily Member Posts: 63
    edited November 2018

    Hi all!

    Welcome, tlc4me and oya80!

    RosieRed, Christine1975, and MCBaker, glad to hear you're all doing well and recovering back at home!

    I'm now 5 days post-op and no longer need any pain meds. I took 1 ibuprofen yesterday afternoon after a walk on the treadmill that may have been a teeny bit too long (oops), and haven't needed anything since. I still get the occasional stabbing pain from one of my drains if I move a certain way, but it's so short-lived that I don't need meds for it. My range of motion is improving every day. I was encouraged to stretch my arms from day 1, and it is definitely helping. Interestingly, my range of motion is better on my cancer/nodes side, but I think that may be because it's the drain on the other side that causes me that stabbing pain. Overall, I'm really pleased with my progress. :-)

  • RosieRed
    RosieRed Member Posts: 257
    edited November 2018

    For those who had a BMX w TEs, do you have a stabbing painon or around your sternum? That's what is hurting the worst for me when I go to get up from a chair. I'm taking Norco every 4 hours, but it doesn't seem to touch this pain. I have to put.a little pressure on that spot when I get up and that's the only thing that helps.

  • boogirl
    boogirl Member Posts: 33
    edited November 2018

    Hi RosieRed, I had BMX w TE's on Wednesday, and have had the pain you describe a few times but not on an ongoing basis. I would say putting my legs up onto the ottoman or getting up from a chair or a bed even propped up (always trying to do both or any other move of upper body with 100% abs not pushing off or lifting myself w my arms) maybe is pulling on that spot? Other than that though random stabs at times esp where the drains are (2/side 4 total) and esp the sentinel node biopsy side. It has been important to keep up with the pain meds and though I'm trying to take less, being too fast to come off was a big mistake I paid for by not sleeping one night after thinking I felt pretty good - we are all only a few days out from major surgery and there seems to be this badge of honor on how fast one gets off pain meds - I'm working on it but it's not a race! And using pain meds as prescribed 3 days post major surgery is not an addiction! Weaning to weaker meds or less often (tylenol xs vs oxy etc, the longer lasting muscle relaxer etc) are all on the right glide path so I'm trying to slow down my eagerness to "be better". We all are where we are on the path and not much to be done for some things but take the time they need. No marathons possible w these drains hanging off me anyway!

    I do find now a few days post op I "feel" more generally. As in more distinct feelings of the individual muscles or areas of stress, vs general pain & aches, more of a feeling of where the TE's are under the muscle and weird twinges and twitches from that all settling in, and the start of some itching or discomfort around certain spots. The post-op bra I have to wear with gauze pads 24/7 hits at just the wrong spot where the drains are, but it's on the sentinel node side that it causes the most discomfort scaling up to actual pain. There are 5 exercises I do 5x a day and they are kind of all hitting various hot spots at different times. I can also feel the suction from the drains at times which is somewhat uncomfortable too but overall, slow and steady progress.

    It seems like it's all about taking your time...

  • MCBaker
    MCBaker Member Posts: 1,555
    edited November 2018

    I am getting caught up on my sleep. They had those boots on my lower legs to prevent blood clots, and I hated them! They also recommended a medicalert bracelet because of lymphedema risk. I have never had one despite penicillin allergy. I will have to call them tomorrow. As well as appts with BS and PS.

    I am working on the changes to my 7 * 4 pill minder. Very nice if you are scared of making mistakes.

  • evily
    evily Member Posts: 63
    edited November 2018

    boogirl, you are so right about not coming off the pain meds too fast, and the fact that needing them doesn't make us weak. At first I thought I could get away with just ibuprofen for the pain... BIG mistake. Once I started taking the Percocet, even though I didn't like how it made me feel, I realized it was so much better for my healing to not be in pain. I could actually sleep! And that is so important for healing. We are all going through something that is extremely traumatic to our bodies; there is absolutely no shame in taking the pain meds.

    MCBaker, I was also recommended to get a lymphedema bracelet. I have Googled them and there are some very pretty styles out there that look very jewelry-like, if you want something other than the traditional medical bracelet.

  • Wigging2000
    Wigging2000 Member Posts: 295
    edited November 2018

    Hello November ladies,

    I’m hoping to join you as well as the December crowd as my surgery is scheduled for 11/30 (just got confirmation today).

    I’ll be having bmx with the hope for immediate reconstruction with implants, but will see what happens of course. Keeping the best case scenario out there in the universe for now!

    Am reading and learning from all you strong women!

    -Wigging


  • kmhard1111
    kmhard1111 Member Posts: 1
    edited November 2018

    New to the site, but had question after recent lumpectomy and re-excision. During both surgeries the surgeon injected fluid into the space where the tissue was removed. He said I would hear sloshing from the fluid which I found to be very true. I don't understand why fluid was purposely injected into the space. I can find nothing about this, but instead can only find information about fluid developing after lumpectomy (seroma) that may need to be drained. Has anyone else heard of this practice?

  • MCBaker
    MCBaker Member Posts: 1,555
    edited November 2018

    evilly, I ordered the plain bracelet with blue lettering. I am not a frilly sort. I was peaking on silliness, and the rep took care of it. They are engraved with a reference number for other conditions. Unlimited space available for people with complex problems.

  • coclico
    coclico Member Posts: 6
    edited November 2018

    hello all, am due to have prophylactic double mastectomy with nipple sparing direct to implant on Dec. 19, and will start a new job 19 days later... not worried about surgery, am worried I will not be able to start new job as planned.

    I plan to relax for 14 days, then, hopefully for the last 5 days before job starts, get it together! any tips welcome.

  • evily
    evily Member Posts: 63
    edited November 2018

    Welcome Wigging2000 and coclico!

    kmhard1111, you might want to post your question on the main surgery forum so more people will see it. I have honestly never heard of fluid purposely being injected into a surgical site, but I'm sure there's someone out there who knows what's going on. Have you asked your doctor why he did this?

    coclico, everybody is different, but starting a new job only 19 days after a BMX does not sound like a good idea. My surgeons told me I would need to be off work at least 6 weeks following my BMX with DTI. You might want to see about delaying the start of your new job. After 19 days you may still be on painkillers, or still have surgical drains in, or still be unable to drive.

  • RosieRed
    RosieRed Member Posts: 257
    edited November 2018

    Saw my BS this morning and he had bad news. Originally I was staged at 1B and we were assuming that no lymph nodes were effected. Turns out he took out 9 lymph nodes on the left sideand 8 had cancer. He said I’ll now probably be staged at 3B. More chemo is in my future as well as radiation as well as Tamoxifen.

  • evily
    evily Member Posts: 63
    edited November 2018

    Oh RosieRed, I am so sorry to hear that! (((hugs)))

  • MCBaker
    MCBaker Member Posts: 1,555
    edited November 2018

    Rosie, my prayers for you.


    Pain woke me up at 3:00, I took my tramadol. I woke up at 6:00, took my other pills, and at 8:15was sleepy. I went back to bed, and just woke up ( 11:00 here), needing more tramadol. This is good! Sleep is healing and I must not feel guilty because I need more now.

  • evily
    evily Member Posts: 63
    edited November 2018

    MCBaker, good for you - sleep is very healing and it's important to rest when you feel you need it. I have found myself dozing off at weird times of the day, and I've decided not to fight it because I know my body is telling me it needs the rest. Keep on listening to your body. :)

  • Mariett
    Mariett Member Posts: 45
    edited November 2018

    I'm having a bilateral mastectomy on Friday. I am not too worried about the surgery or recovery as I have a lot of support from family and friends but I am worried about the follow up appointment. I was diagnosed with stage 2 and it doesn't look like any nodes are involved, but I am afraid that once they get in there they will find more problems and my diagnosis will change. I am keeping positive about the whole situation but this is one worry I can't seem to shake.

  • MCBaker
    MCBaker Member Posts: 1,555
    edited November 2018

    I asked in my pre-surgical interview with the BS what is the likelihood of a change in diagnosis as a result of surgery, and she said five percent. The analysis of tissue after is more complicated, but the final score is unlikely t o be much more serious.

  • Wigging2000
    Wigging2000 Member Posts: 295
    edited November 2018

    RosieRed...I am so sorry to hear this.


  • Cjzach10
    Cjzach10 Member Posts: 87
    edited November 2018

    Im not sure if im going about this the right way but i would like to be added to the nov surgery group. My surgery was Nov 12th Bmx with Diep flap reconstruction.Thank you.

  • Cjzach10
    Cjzach10 Member Posts: 87
    edited November 2018

    Im sorry you're going through this Mariett. I just had my surgery on the 12th. I went in on Monday to have a drain removed but my final path wasnt available yet. My next appt is Nov 29th. I have the same fear. My breast surgeon said she saw nothing that looked like positive lymph nodes. Buy we all know ya can't tell by looking. If theres a problem we'll face it head on. Thank goodness for the support on this site. Good luck to you!

  • Cjzach10
    Cjzach10 Member Posts: 87
    edited November 2018

    I wish i had got back on the site before now. Ive been struggling as well with pain. Pain in general in the area of surgery snd horrible back spasms. Honestly don't know which is worse. I know the drs have to tell you to get off the pain meds asap. But it's sort of had me down that i still need them. I've never taken them as often as prescribed since I've been home and continue to stretch the time out. But as someone earlier said i feel like im doing better overall keeping my pain under control because i can get up and move freely and feel stronger the next day. I did not have this whole thing in perspective as far as pain and how out of commission i woukd be for the first couple of weeks. I will be asking for a non narcotic thats stronger than otc. I'm tired of fighting this pain so hard and feeling bad that i need it to begin with. Thx

  • evily
    evily Member Posts: 63
    edited November 2018

    Welcome cjzach10! So sorry you've been struggling with pain, but remember you're only a week out from your surgery and it's very normal to still be experiencing significant pain. Take the pain meds when you need them - there's no shame in that. Keeping your pain at bay will help you heal better, since it will allow you to rest and relax. It is wonderful that you are seeing good progress every day in getting your strength and range of motion back.

    I received my final pathology yesterday and my grade/stage did not change, however they found multiple other cancer sites and pre-cancer sites in both breasts, which made me very glad that I opted for the BMX. Good riddance, my little cancer factories!

    I am surprised that some of you did not receive final lymph node pathology during surgery. My nodes were sent to the lab at the start of surgery and immediately evaluated for cancer so I found out as soon as I woke up that my nodes were clear. I thought this was standard procedure so that they would know whether they need to take axillary nodes as well. I would go crazy having to wait a week or more to find out if my nodes were clear, so I really feel for y'all!

  • Cjzach10
    Cjzach10 Member Posts: 87
    edited November 2018

    That's what I thought. And my breast surgeon took off this week so it prolonged it. Im just rollin with the flow trying not to think about it! Thank goodness your nodes were clear!!!

  • Mariett
    Mariett Member Posts: 45
    edited November 2018

    I will be having a sentinal node biopsy done during my surgery so I should know after surgery if any of the lymph nodes are affected, I'm hoping they are clear. I am not having reconstruction soi I am hoping the recovery is easier. Cjzach10 the waiting is the worst part, hope you feel better soon .

  • tlc4me
    tlc4me Member Posts: 3
    edited November 2018

    Am recovering nicely from my lumpectomy two days ago; somewhat swollen and tender but haven't needed any pain meds. However, a few hours ago I looked online and found the pathology report for the two sentinel nodes removed. I am disappointed to learn that micrometastases are found in one of them. Probably won't be able to talk to my doctor until Friday to learn what this might mean for my treatment.

  • RosieRed
    RosieRed Member Posts: 257
    edited November 2018

    Happy Thanksgiving

  • MCBaker
    MCBaker Member Posts: 1,555
    edited November 2018

    We have a lot to be thankful for.

  • Dyannah
    Dyannah Member Posts: 52
    edited November 2018

    I get my results on Monday. They will come from my oncologist who called me into his office.

  • BluGene
    BluGene Member Posts: 44
    edited November 2018

    Hi ladies!

    Hope all the healing is going well! Dyannah, wishing you positive news for Monday!

    Thanks for the tips about BMX recovery I’ve received so far, it’s really helped me to gather my thoughts and prepare properly.

    I’m wondering if any of you who have had bmx and te’s have found sleeping in a recliner necessary? I’m thinking I’ll borrow my father in laws mechanical one. How long did you use it?

    I have a king sized bed, but my husband is a toss and turner, and the bed is pretty rocky.

    I’m most nervous about the TEs and the pressure people say they put on their chest. I have a great pain tolerance, but any lung pressure or difficulties breathing and I’m a huge baby. I have asthma, and I get super panicky when I can’t breathe.

    Happy Thanksgiving (a day late) to my southern neighbours. Like it’s said above, so many reasons to be thankful. <

  • Spiritedcharm
    Spiritedcharm Member Posts: 16
    edited November 2018

    I'm still sleeping in a recliner (almost two weeks out). I could probably sleep comfortably in the bed now, but I was thinking the reclined position was better for drainage? I think the pressure is relieved when reclining. It's standing and sitting upright when I feel the mostpressure/pulling.

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