October 2018 Surgery Support Group
Comments
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Dreya, I was pregnant when I first had surgery, and postpartum when getting my fills. I think my skin was all stretchy as it was, so that may also account for the easier time with fills. The other thing is that I didn't get fills until several months after my surgery because of chemo and radiation. So I was more healed.
However, something that may help, I put body oils on the breasts in the days before the fills. I happened to have oils for pregnant bellies, to help with stretching. I'm not sure, but it's possible that helped as well. I hope the pain subsides soon, and that it is not that difficult during future fills.
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I see some of you are getting saline fills. My Ps is filling with air due to the weight of saline. However, my TEs are deflating over time. Anyone else doing air fills and are they staying full?
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bookworm14: I had air coming out of surgery and it completely deflated maki g expanders painful...some of the edges were folded. I'm hopeful that the saline fill will round out the TE causing less pain. Will your dr convert to saline?
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chiliaddie,
Yep the folds are awful. I am going to ask him to switch at the end of the month or at the very least before I start radiation (after chem) because the rads dr said the size cannot change, not filling or reducing. The PS just really did not like the saline, but I don’t like the air ( really only the deflation)so maybe we can work something out!
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Checking in a month after SNB to report that the numbness, pain, and general nasty sensations in the incision area and migrating down my arm and into the breast are much improved. I'm still being careful about lifting/pulling/pushing heavy things on that side, and there is still the occasional ache and twinge and nerve zing, but nothing I can't live with, even for the long term if that's what ends up happening.
I had quite a lot of pain again yesterday, which was discouraging, but I think it was related to overuse and aggravated by a round of the normal cyclical/fibrocystic breast pain I've been experiencing for years. I feel much better today.
I did the stretching exercises and am continuing to do them. It's hard to think about stretching when all you want to do is curl into a ball and protect your incision site, but they really did make things feel better, sometimes immediately.
I'm posting this for anyone who is in pain from this procedure and wondering if they are ever going to feel better. Take heart!
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I'm also a month post SNB. They drained a seratoma for me twice, were not able to get any fluid a third time. I think it's getting worse instead of better though, despite me faithfully wearing the veronique with extra pressure. I think it's pressing on my nerves. I have to go in today for other tests. Maybe will try to find out when I should bug someone again and how long I should give it to resolve on its own.
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Salamandra, definitely but them!
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Just had my port put in for chemo. My mother is the one who was there today, and she said the doctor tried to put it on the chest. Unfortunately, there was a problem trying to get it through the collarbone (I’ll have to ask the dr) so they had to put the port in my neck. If something weird can happen it sure as heck will happen to me! Didn’t anyone have a neck placement on the port? Also, I am very surprised about the amount of pain with this. I got lucky on the MX surgery’s without having a sore throat from the tube, but my throat is sore on the inside from that. Just wanted to see how others handled this. Hope everyone is doing well
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aw so sorry, bookworm. I don’t remember much about the port surgery. I hope you recover and feel better soon.
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star2017,
Thanks! Hopefully, it is just standard soreness so to speak, and I will be better tomorrow. Are you feeling better
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yes, much better. The pain is pretty much gone, tho the skin still doesn’t look fully healed.
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Star, so glad to hear that your pain is better!!
Bookworm, sorry to hear things didn't go as planned for your port placement. I hope your throat feels better soon as well. Rest up! I hope everyone is doing well.
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Thanks Dani444! It is funny how it is the easier surgery that seems to cause more pain than the dang mastectomy
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Bookworm, my port was sore for months! (I had one for colon cancer) I had mine put in using versed, which for me means totally awake. Mine was on my chest, not my neck. It seems like your neck would be much more sensitive. Call your surgeon and complain. I hope you feel better soon.
Star I am glad you are feeling better!
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DWiseley,
Thankfully the had me asleep for this. They did try the chest, but had a problem due to the collarbone??? So in the neck it goes and it is extremely painful today. Luckily I had a few pain pills left over from the mastectomy, but I emailed the doctor askingfor something to help. I hope this pain is only temporary because I do not know how I can deal with this.
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Bookworm mine was actively sore for a week. I had to keep ice on it for much of the day. I would call the doctor and be quite assertive with pain relief as the holiday is coming up.
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I agree, bookworm. Please insist on stronger pain relief or some way to address how uncomfortable you are. I’m so sorry.
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DWiseley and Star2017,
Just called the office to tell them I had to have something. The chest site where they cut seems to have a nice bruise extending down and up, but is not sore at all. Really wish they could have made that one work! Thanks for responding!
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The doctor finally called in some meds so hope they start working soon! Wishing everyone here a Happy Thanksgiving tomorrow.
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Happy Thanksgiving Bookworm and everyone else!
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Bookworm, my port (chest) was sore for weeks and my throat from the tube for anesthesia was sore for about 3 days. Hoping you get some relief soon! My TEs are filled with air, too. They looked okay (pretty "normal") after the last fill, but the creases are back now. The PS says the air can't leak out of the breast pocket or TE...I don't know, I feel like it has, despite what he says. Maybe it's just that the tissue has actually expanded?
Star, I'm glad you've turned the corner and are feeling better!
Dreya711 and chiliaddie, I'm sorry I didn't get to answer you before your fills. You both have had the experience by now!.I had pressure and back pain with mine, but it was gone within 24 hours. I got 100ccs in each. Advil helped a lot! Try taking it an hour before your fill next time (and RX strength is 600mg so you can safely take 3 of the normal 200mg over the counter ones and that should work. The PS told me I could do that 4 times/day for the couple days of pain you get with fills. Dreya711, thanks for the bra recommendation.
Happy Thanksgiving to everyone! -
GAWarrioir,
My PS said that the air does dissipate over time which will cause the TEs to not be tight all the time. So he said not to worry over some air loss. My doctor had me send over a video of the ladies. He is thinking I mayhave a hole in one and may have to go back into surgery. I told him I could not do that yet as I am scheduled to start chemo on the 27th. Hopefully the air loss is just normal because I do not feel like going back under the knife just yet.
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bookworm14, Dreya711, and GAwarrior - that would just suck if you had a hole. If they filled with saline, they would know for sure I imagine. Having the saline makes my boobs feel like waterbeds. I'm wearing the $7 front hook and eye bra from Fruit of the loom on Amazon. Comes in two pack. Having TE pushed togetherness away from armpits feels better. I'm still taking advil every 4 hours. Also, massaging my armpit all the down time down to the wrist in he should owner seems to have increased my range of motion Bookworm17 sending you pain free thoughts. Wishing everyone a wonderful Thanksgiving
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Chiliaddie, that front hook bra , will that help to keep the TE away from armpit? Since 12 lymph nodes were removed from my left side i feel something rubbing in my armpit everytime and makes me uncomfortable. Will that bra helps from it?
Happy thanks giving to all the wonderful ladies. We all are warriors and though we all came across in unfortunate way but I am thankful to know all of you strong ladies.
Take care.
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Hi All,
I understand about the armpits. It's why I liked this particular bra because the side don't come up as high and bother my underarms. The nerves on my left side are going crazy and it's the weirdest feeling, so anytime something is touching me there it almost feels like a piece of cardboard or paper stuck in there. It has improved somewhat over time. Hopefully will one day feel normal again.
I didn't even know they had air TE's. Mine take the saline and they are rock hard! The only nice thing about them is they don't move and they stay up high
I wish everyone a Happy Thanksgiving. While we all have gone through so much these last couple of months, we are still here! I am certainly thankful for that and the support and guidance from each of you!
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Hope everyone had a great Thanksgiving. How is everyone doing, and has anyone started any of their treatments?
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Bookworm14, for me Radiation will prolly start on January. I just had first filling yesterday. Usually I am 34B size so PS said it might take up to 4 fillings. So far the surgery is healing. I have experiencing some cramps in my fingers and legs esp around thighs and feet. I met my OC yesterday and she said that its because of Nephropathy so she prescribed the medicine to me. Hope it helps. I am planning to do workout slowly. The cancer center where i live has an organization called Maple tree that provides one hour workout per week to cancer patients. I am planning to join soon.
I have been hearing and reading articles that we need to avoid sugar. I am not sure how much true is it. If anyone has idea about it could you please share or the thread to refer to.
Take care ladies.
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Naesha, I also took b supplements to help with the neuropathy. You might want to ask if it’s worth trying. I do think it helped me.
I’m doing well. Last night I finally finished my course of antibiotics for the incision infection.
We had a great thanksgiving but by Sunday I was really exhausted and had to decline an event. I’m also getting some headaches more regularly. They’re pretty mild, but I got them 3 times last week. Could be the antibiotics, surgical menopause, sleep, or some other random thing. Thankfully, they go away easily with Tylenol. I think my stamina hasn’t come back yet, but I do need to figure out rejoining a gym or some such thing to help me feel stronger.
Hope you all are doing well.
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Naesha, I'm taking liquid B12 that I place under my tongue for neuropathy. I've also noticed that I cannot let my hands get cold at all. Are your hands sensitive to cold?
Hi Star! I hope you are doing well.
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Bookworm, I meet with my RO tomorrow to talk about the plan. I really hope my implant survives radiation!!
Naesha, the maple tree program sounds great! I also saw the the YMCA has a Livestrong program. It looks like it is a free 12 week program for cancer survivors. From the website:
LIVESTRONG at the YMCA focuses on you — the whole person — not the disease. The free, 12-week program meets twice a week for 90 minutes, using traditional exercise methods to ease you back into fitness and help you maintain a healthy weight. You'll focus on:
building muscle mass and strength
increasing flexibility and endurance
improving confidence and self-esteem
Plus, learn about wellness, stress reduction techniques and how to continue healthful habits after the program has ended.
Just as important, LIVESTRONG at the YMCA encourages a warm spirit of community—a safe, comfortable place for you to build companionship with others affected by cancer and share stories and inspiration.
Hope everyone is doing well!
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