Should I finish chemo??

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Rhiannon061
Rhiannon061 Member Posts: 22

Im currently doing TAC every 21 days and just finished Round 4 of 6 and I’m so done with feeling like crap already. I was in bed for almost a week with no appetite, fatigue and horrible nausea. I’m debating if I want to just call it quits and just be done with chemo already. Every round I just get sicker and weaker it’s so hard when I have a toddler to take care of too with not much help at home. Just wondering if anyone else went through this? Did you stop? I just need some advice pleas

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  • Frog-on-the-lilypad
    Frog-on-the-lilypad Member Posts: 190
    edited November 2018

    Hi Rhiannon,

    Hang in there. You have been so brave. I can understand how you feel. I finished in Aug. It takes time but it does get better. I am back to running after my kid.

    Talk to your team about how to manage the SEs better. I was on anti nausea meds till day 5 on AC. They worked fine. But I coudnt do much on day 2, 3. Then there was Neulesta to get through. Drink plenty of fluids and do things at your own pace. Do you have help with the little one? I used to send my kid, she is 6 to playdates on day 2 and 3 after school. Hubby would pick her up while returning from office. Day 4, I managed with cartoons on the TV and laying on the couch, did some colouring. Not anything too messy because I cannot clean up after her. Your kid is little. Keep the little one entertained when you can with quiet games and then maybe some screen time when you need to rest

    Hang in there, you are so close.

  • NotVeryBrave
    NotVeryBrave Member Posts: 1,287
    edited November 2018

    I was ready to quit after round three. You'd think it would feel better to be past the halfway point. Instead - it just feels unbelievable to not be done yet.

    If there are specific SE's - ask your MO for help. Many times there are other options for medications to counteract the problems. Or maybe a lower dose of chemo could be appropriate.

    After my first round, I ended up in the hospital. They decreased the chemo drugs by 25% and added Neulasta. I actually felt worse and sat down to talk with them about quitting. I ended up switching to Neupogen and I think that helped. But so did just knowing that I could quit.

    I didn't quit because of my kids and because I knew I'd kick myself if it came back and I hadn't followed through. But you know yourself best and need to do what's best for you. I'm sorry for all you've been through already.

  • Wildplaces
    Wildplaces Member Posts: 864
    edited November 2018

    Rhianon,

    If you have young kids, you are young yourself - you have a medium grade cancer but with nodes at 2 cm, so No you should Not quit chemo. You are at the absolute worse point physically and mentally, it will get better. If you can get through 5 - you are looking down at the last one.

    You can do this - ask for whatever help you need. Tell them at the centre ( please let them know) and see if there is any wiggle room to modify your protocol. The toddler will be fine if you pull back to minimum maintenance care only for the next 6 or so weeks. I am a single parent of a then 6 year old - I was shockingly nauseated despite good antiemetics, I found that crunching on salty chips would get rid of my nausea for 20 minutes at a time. For a while we ate out of plastic plates only (too buggered to do dishes) and I think we had the same towels/linen for 2 months - no one died and I got through it. I hated the way cyclophasmide made me feel to the point where I thought I would pull the infusion out of my port and walk out. I dropped my Hb and could hardly walk upstairs because of shortness of breath ( I had adriamycin to thank for that). Chemo is shit but is doable if you keep your goal in mind.

    Now 2 years down is a vague ( not really...😉😳) but poignant memory

    So hang on you are almost there. Keep coming here - you will find lots of us who did it supertough for that half year, keep holding on you are not alone.

    😳🌷🐣


  • Rhiannon061
    Rhiannon061 Member Posts: 22
    edited November 2018

    Thanks everyone for the words of encouragement, I go to the doc tomorrow for my Zarxio injection so I’m going to see if they can hopefully lower the dosage for my next round. I hate to sound like such a wuss, I would literally rather have physical pain than nausea and fatigue. I broke down and cried the other night because I was so done with being sick already. I guess I kind of feel like when I complain to the nurses about how horrible I feel they just tell me to “drink more fluids” which is quite hard when everything tastes and smells horrible. I lost 5lbs in a couple days after chemo. I’m gonna give it a shot tomorrow and see what the doc says about lowering my doses. Wish me luck

  • NotVeryBrave
    NotVeryBrave Member Posts: 1,287
    edited November 2018

    I remember feeling at times like I was either complaining too much and thus they couldn't really hear me or else I was complaining not enough and they didn't know how badly I felt! Keep a journal of your symptoms and take it with you to appointments. Sometimes that's the only way to really explain.

    And if they want you to drink more and you can't - perhaps you could return to the infusion center for some IV fluids. Many people say it makes a world of difference.

  • Racy
    Racy Member Posts: 2,651
    edited November 2018

    Hi there. I have done this chemo but without a toddler. The best advice I can give is to accept or even ask for any help with household tasks and caring for your toddler. Shop on line and take short cuts such as prepared meals. Get as much rest as you possibly can. Plus, glazed or chrystalised ginger is great for nausea, as is ginger tea.

    I hope you have steroid meds to take the few days after chemo.

    Hang in there, you will soon be at the finish line.

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