Taste changes months after Chemo

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Warriorkat
Warriorkat Member Posts: 7

Hi All. TNBC and started AC in February and ended Taxol in June. BMX no recon end of July. I had taste changes with AC but they slowly resolved and a few weeks after Taxol everything was tasting good....until 3 weeks ago towards the end of October...so almost 4 months later.. Now I can only taste salty food...or very spicy food...like garlic or pepper. Nothing tastes like it should. Apples and oranges taste like cardboard and I can't taste sweet...at all. I took a teaspoonful of honey and nothing. I see my oncologist tomorrow for a follow up and I'll ask her but I'm wondering if this has happened to anyone else? it seems odd that it could come on so far out from chemo. Iv'e been taking zinc supplements this whole time and recently decreased my dosage but it's still more than the RDA. Anyone??

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  • beauz
    beauz Member Posts: 207
    edited November 2018

    Hi warriorkat, did you have radiation therapy after chemo? If so, could it also be possible that radiation therapy caused your taste changes? I had dry mouth right after I finished my radiation treatments and I still have it. My RO said my salivary glands were not in radiation field, but could be in scattered field. Hope you find some relief.

  • CaliKelly
    CaliKelly Member Posts: 474
    edited November 2018

    Its not unusual to have taste changes last a long time. Certain foods still tasted wrong a year after for me. Chocolate, I couldn't stand it! For a year at least. I had to have bland food only during chemo, cuz nothing tasted right. Then after I recovered from chemo, I wanted salty, spicy foods. Sweet food, even fruit, took the longest to start tasting normal. Give it time!

  • Warriorkat
    Warriorkat Member Posts: 7
    edited November 2018
  • Warriorkat
    Warriorkat Member Posts: 7
    edited November 2018

    My taste came back fully about 4 weeks after my chemo in mid July. It’s been normal until 3 weeks ago and I completely lost all receptors for sweet which had been the only thing that I kept during chemo. Medonc drew blood so I’m just waiting for the results. She didn’t think it was chemo related this far out

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