Stopping Chemo?

Options
Each_day_2018
Each_day_2018 Member Posts: 154

Has anyone requested to stop a certain chemo? If so, what was your experience? I am currently halfway done with my 4 treatments of AC and I don't know if I can do anymore. I am supposed to do 12 weekly taxol treatments after the AC which I am willing to give a shot. But my side effects with the AC have been absolutely brutal.

Comments

  • Joanne58
    Joanne58 Member Posts: 1,117
    edited November 2018

    Hi!

    So sorry about the rotten SE's with AC, Eachday! Nausea was my worst SE with AC, plus not being able to hardly move for the first 12 days, then I felt normal the last week before the next tx. What is happening to you? Vent away!

    I stopped Cytoxan with AC for my last tx due to increased neuropathy in both my feet, progressing up to my knees ( I had mild neuropathy before cancer--a genetic disorder I inherited). Onc. thought Cytoxan was the culprit, but the last AC still increased the neuropathy some more. I was supposed to have taxol afterward, but didn't--too risky to lose more feeling in my feet and legs. I did have Herceptin for 9 months after the 4 tx of AC and have religiously taken my tamoxifen, then letrozole, for the last 7 years. No recurrence as of today.

    Hope your Onc. and any BCO members can give you some helpful advice. I know how important it is to feel good and confident with your decision regarding tx. Hang in there! I'll be thinking of you :)

    --Joanne

  • JaBoo
    JaBoo Member Posts: 520
    edited November 2018

    Yes, vent away! Many of the SE's are in some way manageable with various strategies, the ladies here are very knowledgeable and there is always someone who experienced stg. similar.

    I had dose dense AC (2 weeks cycle) and it was certainly no walk in the park. But what really, really helped was indeed the walking. I don't know, but maybe it helps to move the chemo in our bodies. It certainly helps against losing muscle (which can happen very quicly) and muscles are great at moving blood around. And of course - hydrate, hydrate and hydrate same more! Same reason - to move the chemo around qiuckly, do it's job and go on it's way. I'm not saying to drink water, as I was ready to throw up at the very sight of a glass of water! (And I drink pure water my entire life). The chemo does strange things to our tastes. I made mild teas or used a juice to make a very light solution to give some taste to the water. I never drink soft drinks or non-diluted juices (because of the high sugar content, I rather have some chocolate).

    Don't forget to mention all your SE to your team. I did and my MO was very understanding and it turned out that the SE's I had were easily manageable. She prescribed stg. for it and it helped each time.

    Hopefully you find some help. Vent away here, tell your MO or perhaps there's a support group near you?

  • beeline
    beeline Member Posts: 308
    edited November 2018

    Each_day - please tell your team that you need help with SE’s! I am only one ahead of you with AC and have had terrible, terrible nausea and flu-like symptoms that keep me in bed for days. After #2 I told my MO I would try anything to make it better and the new meds definitely helped get me through #3 so I can see the light at the end of the tunnel now. We have similar dx’s so I know how important it is to keep going if you can. I think psychologically 3 out of 4 is the worst because you don’t have the milestone of halfway done or last one — you just know you have more of this sh*t to get through! You can do it but do ask for help. Good luck

  • Each_day_2018
    Each_day_2018 Member Posts: 154
    edited November 2018

    Thanks everyone for the kind words and tips! I will def be talking with my team....I don't go back til next Wednesday for round 3...I CAN DO THIS!

  • AMLmom51
    AMLmom51 Member Posts: 40
    edited November 2018

    Definitely contact your oncologist before your next treatment. There are so many different meds out there that could relieve bad SEs. Sending positive thoughts!!!

  • Joanne58
    Joanne58 Member Posts: 1,117
    edited November 2018

    Glad to hear you've mustered up some more courage to do the next tx, Eachday!

    Emend was really helpful for my nausea. Like you, I was terribly sick with all my pregnancies, so I agree--chemo seems to be worse for us. Best wishes to you!

  • Kat22
    Kat22 Member Posts: 111
    edited November 2018

    Yeeeahhh.....I did TCHP and after my 5th of 6 infusions (when I was rolled into her office in a wheelchair and practically demanded to lay down because I couldn't eat for days before), told my MO that I can't do any more. While she didn't outright say "yes you are", she told me that she'd talked lots of patients through that phase. I mustered up the strength to go that one last time. Since then I've gradually recovered from most SEs, had a successful lumpectomy, and am feeling better than I have in a very long time. Guess she knows what she's doing. Hang in there, make sure your MO knows everything you're struggling with, and go beat this monster. You got this!

  • MoonGirlJess
    MoonGirlJess Member Posts: 267
    edited November 2018

    Each day—are you getting Emend and Aloxi pre-chemo? They might want to give you an extra liter chemo day

    What antiemetics are you on at home? I burned through all of them and ended up with a Sancuso patch (wear it 24 hrs prior to chemo to 1 week after) and olanzipine 10 mg at night. That’s it. Lost 18 pounds with AC.

    About halfway through AC I hit the wall. Like I might be sick like this forever. I cried to my husband that I forgot what it’s like to feel normal. All I feel is sick 24/7. If I wasn’t a wife and mom I would have peaced out for sure (quit chemo.) My onc tried to turf me to rads on AC # 3 due to my insane SE and being on the strongest antiemetics but I sat in the chair and bawled all through it and did it. What I didn’t realize is that because I was so sick and not eating for 2 weeks I had inadvertently fasted myself. So AC #3 wasn’t as bad as the first two. Then I talked with the chemo nurses (and Santabarbarian) about fasting and fasted for AC #4. My AC #4 was by far my easiest AC, hands down. Fasting really puts some people off. My mom thinks I’m nuts.

    Weekly Taxol is a BREEZE compared to AC (I know we’re all different)but there is a light at the end of AC tunnel from hell.

    Jess

  • Each_day_2018
    Each_day_2018 Member Posts: 154
    edited November 2018

    I have AC #3 tomorrow. My husband won't let me quit. Thanksgiving is going to SUCK! I get anti-nausea meds before chemo and I have 3 diff prescriptions for at home. Nothing has really helped. I heard fasting before chemo helps, so I am doing that this time around to see if it makes a difference.

  • beeline
    beeline Member Posts: 308
    edited November 2018

    Good luck Each_day! You can do it!!

  • Denise-G
    Denise-G Member Posts: 1,777
    edited November 2018

    I am so sorry. Please talk to your oncology team and be honest about all of your SEs. Then can help! I BEGGED my Oncologist to let me quit after 2 AC Chemos as I had such horrible SEs. I told him I would rather die. He took my hand in a doctorly fashion, looked me in the eye, and told me he would not let me quit. He gave me some pep talk, increased meds to help SEs. Now that I am 7 years out, there is not a day goes by that I am not grateful that I completed AC and then Taxol.

    I'm always telling cancer patients - it is normal to want to quit, to feel like dying, and wanting to give up. But the next day, you might feel entirely different. It is an emotional roller coaster. Sending all my best wishes to you!


  • Krose53
    Krose53 Member Posts: 148
    edited November 2018

    Hi! Chemo can be rough. I had 4rounds of TC every 3 wks. I fasted for each one of my chemo rounds. I never had even the slightest wave of nausea. Since I fasted or each round, I don't know what would have happened,if I hadn't. I didn't want to find out. Sending you lots of positive thoughts!!

Categories