Radiation Induced Breast Fibrosis Prevention and Treatment

Campbell60
Campbell60 Member Posts: 3
edited December 2018 in Managing Side Effects of Breast Cancer and Its Treatment

Hello,

I am looking to find some names of oncology doctors in Ontario, Canada that prescribe pentoxifylline for the prevention/treatment of radiation induced breast fibrosis.

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  • macb04
    macb04 Member Posts: 1,433
    edited November 2018

    I hope you find someone to help you. I am on Pentoxifylline 400mg three times per day and Vitamin E 400IU per capsule three times per day PLUS a specially Compounded Prescription Cream of Pentoxifylline and Vitamin E 5%/1%. It really helps me with controlling the tightness and I have ZERO side effects.

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  • Campbell60
    Campbell60 Member Posts: 3
    edited November 2018

    Hi,

    Currently I am Pentoxifylline 400mg three times per day and Vitamin E 400IU per capsule twice daily. I have been on the medication for six months and will be seeing my RO for follow up appointment soon. I did my own research about this medication regime and then initiated a request with my RO. I was surprised to learn none of the RO's at the cancer centre prescribe this medication for radiation induced breast fibrosis. I have noted an improvement with the tightness and like you have had no side effects. Remaining on the medication is my goal, just not sure my RO will be willing to go along with this plan. I am trying to look at other options just in case.

    Thank you for responding I appreciate hearing from yo

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  • macb04
    macb04 Member Posts: 1,433
    edited November 2018

    I don't know why they would be against prescribing this medication, which we know works for us, has research to back up our use, for the intractable, insoluble problem that ruins our quality of life, that they inflicted on us.

    I mean, duh! They should stop being so backwards.

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  • Campbell60
    Campbell60 Member Posts: 3
    edited November 2018

    I was puzzled that this course of medication for treatment and prevention is not utilized more at the cancer centre where I am a patient. Equally puzzling is that I had to educate myself about the radiation induced breast fibrosis. My sense is that the focus with the radiation is about doing everything to eradicate the cancer and no focus on post radiation/post treatment.

    The reading I have done about the pentoxifylline and vitamin e is that you need to stay on it for a couple years, actually one of the provinces in Canada(not Ontario)recommends three years to have maximum benefit and not have a rebound effect coming off too soon.

    I have not come across anything about the cream you mentioned but will do some research on it.

    I will keep you posted

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  • macb04
    macb04 Member Posts: 1,433
    edited December 2018

    I read a single case study on the Pentoxifylline 5% and Vitamin E 1% Specially Compounded Prescription Cream, which I got my doctor to prescribe for me. Here in the US there are many Compounding Pharmacists who can make it up. The link for the PM&R Journal doesn't seem to work anymore, not sure why not.

    _________________________________________________________________________________________________________

    Poster 132 Decrease in Radiation-Induced Fibrosis of the Breast after Topical Pentoxifylline and Vitamin E Compound: A Case Report - PM&R - PM&R Journal

    PM&R Journal › article › fulltext

    image

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  • macb04
    macb04 Member Posts: 1,433
    edited December 2018

    I read a single case study on the Pentoxifylline 5% and Vitamin E 1% Specially Compounded Prescription Cream, which I got my doctor to prescribe for me. Here in the US there are many Compounding Pharmacists who can make it up. The link for the PM&R Journal doesn't seem to work anymore, not sure why not. I found it under Google Images.

    _________________________________________________________________________________________________________

    Poster 132 Decrease in Radiation-Induced Fibrosis of the Breast after Topical Pentoxifylline and Vitamin E Compound: A Case Report - PM&R - PM&R Journal

    PM&R Journal › article › fulltext

    image

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