Just diagnosed and scared.

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  • Salamandra
    Salamandra Member Posts: 1,444
    edited November 2018

    I found the time in between the diagnosis and meeting my new cancer doctor (surgeon) so very difficult. Hang in there. Being prescribed anti-anxiety meds is great and very normal! I needed them and got them too. They are helping a lot.

    I went in pretty much expecting to get a mastectomy, partly due to family history. But there are very good study results now from lumpectomy with radiation showing actually better outcomes than mastectomy. So you never know, you may keep your breasts. I ended up with a lumpectomy. I'm trying to figure out what I'll do in terms of radiation and now waiting for results on whether chemo will be recommended. And still haven't met my medical oncologist.

    There is so much waiting! As soon as I get done waiting for one thing, I'm waiting for something else. It was a great call to get on the anti-anxiety meds right away - I wish I'd done it sooner. Hang in there and take care of yourself as best you can.

  • Love83
    Love83 Member Posts: 111
    edited November 2018

    Thanks for your encouragement, when were you diagnosed? And what will determine radiation or chemo. Does it depends if spread and size of mass etc. I'm going through this at Washington University one of the top ten in the Nation, so I hope all this will be a thing of the past.

  • Love83
    Love83 Member Posts: 111
    edited November 2018

    Sorry just saw your diagnosed date.

  • star2017
    star2017 Member Posts: 827
    edited November 2018

    Sounds like you’re in good hands, love.


    I think chemo will depend on tumor size and lymph node involvement and receptors. Radiation will depend on tumor size, lymph node involvement, and the kind of surgery you have.


  • Love83
    Love83 Member Posts: 111
    edited November 2018

    On my mammogram and ultrasound the said my lymph nodes didn't look swollen but I feel a little aches since like yesterday that going down my left side to my to the bend of elbow. I don't know if it stress or what. Just hope it's not in my lymph nodes.

  • star2017
    star2017 Member Posts: 827
    edited November 2018

    it could be stress. You’ll have answers and a plan soon to beat this.



  • Love83
    Love83 Member Posts: 111
    edited November 2018

    Yes that is the hard part waiting. But this is where I'm learning patience. I coupon to free my mind in the meantime.

  • Love83
    Love83 Member Posts: 111
    edited November 2018

    Yes that is the hard part waiting. But this is where I'm learning patience. I coupon to free my mind in the meantime.

  • CaliKelly
    CaliKelly Member Posts: 474
    edited November 2018

    LOVE, just chiming in again. About anxiety of waiting, yes THE most difficult part! Only time in my life I ever took anxiety meds! I was hyper, like a crazy person waiting for appointments, results, etc. I lost 10 lbs before I even had chemo! I didn't want to tell anyone until I knew everything was going to be ok, waited til my hair started to fall out, then I kind of had to! My lymph nodes were involved but never were painful or tender, so don't worry about that. About the short hair, Yes! I never had so many compliments! My friends and family love me with short hair. I never had the nerve to cut it short! And the perky new boobs! Go braless,whoo hoo! Pamper yourself in any way you can for now😚❤Praying for your best possible outcome.

  • DiagnosisDisruption
    DiagnosisDisruption Member Posts: 108
    edited November 2018

    Totally agree with the "you are in the worst of it" comments. Seriously, once chemo starts, or the surgery is over, it is so much "easier". I met with the surgeon. She walked in the room and I busted into tears. I met with the oncologist and I busted into tears the minute she walked into the room. I met with the MRI tech and I busted into tears. For two months, I busted into tears every time I was asked to change into a gown - by the by, the most important question on the gown - open in the front or back, because it is different with every single procedure you have.

    Take tons of notes and bring someone to appointments. You will only hear a fraction of what is said and hopefully the counterpart can fill in the blanks.

    Also, take the meds! I got Valium for the MRI biopsy and it is the only thing that got me through. I took Valium for the wire localization and it's the only thing that got me through. If a procedure is going to hurt, don't let them tell you it's no big deal. Get the meds!

  • PurpleCat
    PurpleCat Member Posts: 358
    edited November 2018

    The waiting is just awful. Only time in my life I've ever taken anti-anxiety meds and sleeping pills. I'm recovering from surgery now, waiting to get radiation scheduled. The recovery has been a lot more painful than I had expected, but I realized that given a choice between the nerve pain and the waiting for a final diagnosis, I'd take the nerve pain every day. Hands down. Hang in there, take care of yourself, and let people take care of you. Hugs!

  • Love83
    Love83 Member Posts: 111
    edited November 2018

    Sorry to hear about the pain is there something they can give you for pain? And what do you mean you are waiting for final diagnosis?

  • Love83
    Love83 Member Posts: 111
    edited November 2018

    Sorry to hear about the pain is there something they can give you for pain? And what do you mean you are waiting for final diagnosis?

  • PurpleCat
    PurpleCat Member Posts: 358
    edited November 2018

    Hi Love, the pain is from the lymph node surgery. The incision is in my armpit, and is a very sensitive location with a lot of nerves. Those nerves are now healing, and are pretty painful sometimes, although I can tell it’s better than immediately after the surgery. And they did give me good medication after the surgery. It just takes time. I certainly didn’t mean to scare you about pain, Just to say that I understand how awful the waiting is.

    The final diagnosis is what you get after all your surgeries are done. In my case, I didn’t feel a lump but something showed up on my mammogram. I had to have a needle biopsy, and that showed cancer,

  • Love83
    Love83 Member Posts: 111
    edited November 2018

    Thanks for the clarification, I was starting to worry but. We got this.

  • Love83
    Love83 Member Posts: 111
    edited November 2018

    This morning has been rough had to tell my oldest daughter and she balled her eyes out. I really went into Mommy bear mode, don't mess with my babies. I need all my prayer warriors to say a prayer for me as I'm on my way to get MRI.

    Love

  • star2017
    star2017 Member Posts: 827
    edited November 2018

    how old are your kids, love?



  • CaliKelly
    CaliKelly Member Posts: 474
    edited November 2018

    OMG Love, that had to break your heart , to see your baby so scared❤. I never had the blessing of children, but am a doting Auntie to many! Show your babies, that you're not afraid! Whatever is in store for you, YOU CAN DO IT!! Let your babies see that strength. My hardest thing was telling my Mom, we had lost my brother to Melanoma, and just as she was getting over that, my sister was killed in an accident! My Mom was devastated. If I could have gotten away with not telling her, I would have. I played it down, never told her my stage until I was completely recovered, and back to my super human self😉 Your children need to see that you'll be ok. You are definitely in my prayers, I believe with all my heart prayer helps! ❤❤

  • Love83
    Love83 Member Posts: 111
    edited November 2018

    Yes I balled on my way to MRI for her, but she came home and I saw that smile. Sorry sorry for you loss, what great strength you and your mom have. Are you now in remission?

  • Love83
    Love83 Member Posts: 111
    edited November 2018

    Yes I balled on my way to MRI for her, but she came home and I saw that smile. Sorry sorry for you loss, what great strength you and your mom have. Are you now in remission?

  • Love83
    Love83 Member Posts: 111
    edited November 2018
  • Love83
    Love83 Member Posts: 111
    edited November 2018
  • CaliKelly
    CaliKelly Member Posts: 474
    edited November 2018

    I am currently cancer free , be 3 years in January 😃Doing awesome. Just like you'll be😚💜💙💚After the whirlwind of treatments, back to normal before you know it, believe that! Glad you have those kids and family to help you through it all, celebrate that joy! Keep in touch, free pep talks here😉

  • Mama1416
    Mama1416 Member Posts: 26
    edited November 2018

    Hi Love,

    I promise the shock of it all will calm down once you start formulating a plan. The fear was just so overwhelming in the beginning, I never thought it would go away. It has been my experience that God will send you "beacons " of hope along the way. Look for them. Your co worker that had breast cancer was one of them. Meals appeared at my door just when I needed them. Cards and text messages pushed me forward when I was sad. Complete strangers would give me encouragement. You can and will get through this! I'm sending you big hugs 🤗

    My kids were 14 and 16 when I was diagnosed. Scott and I have been married for 18 years. It was hard for them at times, but we all made it through together ❤️

    Prayers for MRI to go well


  • star2017
    star2017 Member Posts: 827
    edited November 2018

    hope the mri went well today



  • Love83
    Love83 Member Posts: 111
    edited November 2018

    Ladies please help as I do work in the medical field as a Respiratory Therapist, so I see a lot. But I'm having a anxiety attack I had a patient who has breast cancer along with other things that is not doing well. And I'm panicking. Help please.

  • Fritzmylove
    Fritzmylove Member Posts: 330
    edited November 2018

    Love, breathe. You are not your patients. Every case is individual, and many many many people have very good outcomes after a breast cancer diagnosis. Science is advancing so much with treatments.

    I’d ask you doctor for anti anxiety meds to get you through this diagnosis process. I took Xanax until I started active treatment, and then I started seeing a psychologist and was put on Zoloft. I’m in a totally different place now compared to right after being diagnosed.

    For now focus on your breathing and maybe download an app like “Stop, Breathe, Think” or “Calm.” They’ll teach you some meditation exercises that can help with anxiety. Big hugs to get you through!!

  • Love83
    Love83 Member Posts: 111
    edited November 2018

    I'm trying. It's hard. Do you have to get chemo.and I also take Xanax but left it home by accident today

  • Fritzmylove
    Fritzmylove Member Posts: 330
    edited November 2018

    Yes. I started chemo October 1, and will have round #3 tomorrow. It’s not as scary as it’s made out to be.

  • Love83
    Love83 Member Posts: 111
    edited November 2018

    Do you Know how many rounds you have to do and are the side effects tolerate.

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