October 2018 Surgery Support Group

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  • LilyCh
    LilyCh Member Posts: 193
    edited October 2018

    Dovely, that is awesome news.

    Just out of curiosity, for the stage information, why is it called 1c, I thought it is either 1A or 1B, am I missing something here?

    Also, your tumor is small (<= 2cm) , nodes are clear and grade is 1, wouldn't it be 1A instead of 1B?

  • Dani444
    Dani444 Member Posts: 522
    edited October 2018

    Dovely- so happy for your good path results!! How much longer for the oncotype test? I hope you hear good news from that soon!!

  • Dovely
    Dovely Member Posts: 91
    edited October 2018

    LilyCH,

    I think it's because I had two multi- focal tumors in the left breast? I had it in both breasts, the right had a very small tumor, less than a cm. I also spoke with the BS who confirmed basically stage 1, grade 1, clear margins (even though bmx it’s still good to hear!!)

    Dani444,

    Oncotype in a couple weeks at the longest is my understanding. BS says considering all the other stats she would predict it being low, but there can be surprises. Crossing fingers!

  • star2017
    star2017 Member Posts: 827
    edited October 2018

    omg dovely! That’s wonderful news!!!



  • Naesha
    Naesha Member Posts: 62
    edited October 2018

    Hello everyone,

    Good to hear that all of you are done with your surgery. I guess I am the last one in the above list. I am scheduled to go in tomorrow. I am getting nervous and more scared about the pathology result. Hoping and praying everything goes well.

    Good luck to everybody who had their surgery done so far and wishing well towards the recovery road.

    This thread has been nothing but blessing. I have learnt so much along the way and this has been one of the biggest motivations for me to keep going all along.

  • PurpleCat
    PurpleCat Member Posts: 358
    edited October 2018

    So glad to hear, Dovely! Hoping and praying with you, Naesha.

    For those experiencing the tightness and arm pain, the warm moist compresses I've been using on the small seroma feel good on the rest of the pain too. I'm using a small microwaveable rice bag sealed up in a Ziploc and wrapped with a warm washcloth. It stays warm longer than the warm water alone, and I was told the moisture helps the heat permeate better. (Apologies to anyone who is grossed out by the word "moist," as I've heard from younger people that that's a thing now, haha!) I also started some stretching exercises this morning and they felt good.

  • Bookworm14
    Bookworm14 Member Posts: 176
    edited October 2018

    Naesha,

    Wishing you the best on your surgery, and for good news/paths. Just remember to keep up with your pain meds, do your stretches, and plenty of water....I felt it helped with the swelling and just feeling better all around. Also, ask for help as the first couple of days are trying. Having someone available, if possible, to help you out of bed, make sure you have things you need, and just keep you company can really make a difference.

  • Bookworm14
    Bookworm14 Member Posts: 176
    edited October 2018

    Oncotype...my MO says they will only do that if necessary? Still do not know if they plan to request that when I go in on November 12th, and if they do it is another wait. Is it necessary or does positive nodes automatically get chemo

  • Dani444
    Dani444 Member Posts: 522
    edited October 2018

    Naesha best of luck on your surgery. Bookworm has some great advice there!! Please let us know how you do.

  • sillyoldrabbit
    sillyoldrabbit Member Posts: 124
    edited October 2018

    Naesha, may all go well for you today.

    I hope we'll all hang in here until all the path reports are in, and that they'll be full of good news.

  • GAWarrior
    GAWarrior Member Posts: 398
    edited October 2018

    Awesome news, Dovey, congrats!

    Dani444, you probably know this, but if you get to the point where you are uneven after your UMX, insurance has to pay for a revision to the non-cancerous breast. You can get a lift, reduction, implant, whatever.

    Good luck today, Naesha!

    Bookworm14, I don't know for sure, but I would bet that chemo would be automatically given for someone with positive nodes. Part of the idea of chemo is to kill the stragglers that might have escaped to other body parts and they would want to do that if it is known that nodes were affected. Assuming you DO need chemo, it's very doable! There are various regimenes and yours may be minimal. I did very well with it and worked throughout all 20 weeks of mine. Your MO can help you plan for when SEs might hit, so you can avoid working on those days. The biggest help was getting into the chemo group for the month you start. Just like this surgery group, everyone goes through it together and the support you'll get is priceless. I'm always happy to answer questions, too! Good luck!

  • Anx789
    Anx789 Member Posts: 168
    edited October 2018

    Dovely, you mentioned about clear margins, do they automatically check margins if you have mastectomy? I kind of glance at my pathology last week and margins doesn't indicate clear but something like undermined. I'm concerned because my surgeon is not specialized in breast, he is a general surgeon.

    It’s been two weeks since my surgery, I still have swelling and discomfort below my armpit. My arm movement is getting better but the swelling seems improving very very slow

  • Raysal
    Raysal Member Posts: 45
    edited October 2018

    So I'm two weeks out of lumpectomy and snb.. arm still a bit sore, esp when stretching or sudden movements but otherwise getting better..

    My lumpectomy was at a 12 o'clock position and 4cm away from the nipple, two days ago I noticed a pretty big lump at about a 6 o'clock position close to the nipple same breast. It's not painful, I just noticed it while feeling around my breast checking for soreness.. I'm starting to freak out, but it's probably nothing just surgery side effects? I've had MRI, CT, mammogram and ultrasound about three to four weeks ago, so if it was a lump it shoul have been picked up right? I'm going to see the dr tomorrow but anyone been through something similar?

  • star2017
    star2017 Member Posts: 827
    edited October 2018

    I’d call and let the doctor know. Could it be a seroma (fluid build up)?



  • Trishyla
    Trishyla Member Posts: 1,005
    edited October 2018

    Just wanted to give an update on my surgery yesterday. Everything went well, but the surgeon did not do nearly as much on my abdomen as we had discussed earlier. She did the revision on my hideous abdominal scar (if looked like it had been glued by a team of drunken monkeys😐) and she did the nipple reconstruction. What she didn't do is the lipo and fat grafting to fill in the large dents I have in both upper breasts. So I still gave no waist to speak of, and still won't be able to keep my pants from falling down.

    So I'm going to need another surgery. Urgggghhhh. Plus the surgeon had a weird meltdown before the surgery, yelling at me because I asked if they could use propofol or versed. Don't know what that was about, but I will probably file a report. I almost cancelled the procedure and walked out, but I've been waiting for this for almost a year and a half, so I bit my tongue and went through with it. But I will be looking for yet another plastic surgeon.

    Thanks for the well wishes, Gawarrior and Dani444. It meant a lot

    Hope all is well with all our October ladies. Sending warm, healing hugs to all.

    Trish


  • Girl279
    Girl279 Member Posts: 3
    edited October 2018

    so glad to have found this! I had bilateral Mx on 10/10 with tissue expander placement. I was released on 10/11 with two drains that were removed on Friday 10/26. Immediately after removal of the drains, I started to build fluid on my left side, so much that I had to get it drained on Saturday! They pulled off 60cc's that day and then another 105 cc's on Monday. I'm on my way back again to get even more fluid drained today. The left side drain was super painful when it removed. That's also the side that my cancer was on, and I had three lymph nodes removed.

    Anyone else had an issue like this? I was barely draining at all on that side when the drain was removed! My plastic has no answers as to why this would be happening in such large amounts compared to what was coming out in the drain. It's like my left boob is on auto-expansion!


  • Dani444
    Dani444 Member Posts: 522
    edited October 2018

    Trishlya- I am so sorry to hear about your experience! That sounds so completely stressful. So odd of your surgeon to react that way with your question! You as a patient have every right to discuss what medications will be put in your body. I hope you can find a PS that will treat you with the respect you deserve. Hope you are able to rest and don’t have too much pain!

    Girl279- I am sorry you are dealing with issues after getting your drain removed. Could it maybe have been blocked? I hope they find a resolution for you soon.

  • PurpleCat
    PurpleCat Member Posts: 358
    edited October 2018

    Raysal, I would bet it's related to the surgery, maybe even a seroma? I don't think breast cancers grow fast enough for you to go from nothing to a palpable lump in such a short amount of time, and I was told to expect changes in the way things feel, although haven't been brave enough yet to go poking around.

  • Wised
    Wised Member Posts: 351
    edited October 2018

    I have a hard lump where the lumpectomy was.

  • Wised
    Wised Member Posts: 351
    edited October 2018

    My surgery was on 10/10 and I ended up w an enormous hematoma. My entire breast was swollen and black/purple. I've seen my BS and my MO since then. Last Saturday, I got up and started leaking dark blood from my incision, a lot of dark blood... My incision is wider at the bottom and has a small hole where the bruise is leaking out. My BS said the hematoma is just draining. I'm aggravated because this is going to delay my rads tx and it's stressful and gross. My surgeon is totally fired but I don't know where to find a new one.

  • sillyoldrabbit
    sillyoldrabbit Member Posts: 124
    edited October 2018

    DWiseley, I've often been told that the nurses are the best source for referrals. If you have the opportunity to corner one of the chemo nurses that works with your MO, you might strike gold. They see the results of surgeries every day. Your PCP can also be a good source, assuming you trust his/her judgment.

    Raysal, I agree with PurpleCat. Weird lumps and bumps are to be expected with all the rearranging of tissue they do in there, and surely the scans would have picked something up. Besides, your surgeon got to see everything up close and personal. (Well, these are the things I tell myself, anyway.) But it's worth it to get things checked out, at least for your peace of mind.

    Girl279, welcome to the club. Hopefully someone here will have an answer.

    Trishyla, how strange and scary! I would have been terrified to let a surgeon operate who seemed so out of control. Sorry you need more surgery.


  • Dovely
    Dovely Member Posts: 91
    edited October 2018

    Anxiouslady, I did get clear margins reported from my BMX. My surgeon is a specifically breast surgeon and said she always tests for margins, even on mastectomies.

    Found out today also I have no genetic mutations, which was great not only for me, but my daughter as well. Guess I just got bi-lateral cancer as a fluke.

    I’m getting my drains removed tomorrow. I will be getting surgary next Wednesday to hopefully place the implant. Question: is drain removal really painful? Right now the drain tubes are poking at the skin on my chest and super uncomfortable. I’m trying to imagine how taking them out wouldn’t hurt like heck.

  • star2017
    star2017 Member Posts: 827
    edited November 2018

    dovely, no drain removal isn’t usually painful. Sometimes it feels a little funny, but it shouldn’t hurt.

    Congrats!

  • star2017
    star2017 Member Posts: 827
    edited November 2018

    Trish, I'm so sorry you've had such a horrific experience. Hopefully things will be better from now on and you'll find a fabulous ps.


    Girl279, I did have a serom after my second mx but the doctor did not bother draining it as it did not continue to build up. He said it would reabsorb and sure enough, 3-4 weeks later the excess fluid was gone. Hope things get better soon.



  • star2017
    star2017 Member Posts: 827
    edited November 2018

    dwiseley, I’m so sorry. That sounds terrifying. Are you at an accredited cancer center? Is there one near you?



  • Bookworm14
    Bookworm14 Member Posts: 176
    edited November 2018

    Dovely,

    Removal of the drains are weird. Not really painful, but it does take your breath away for a moment. Lots of relief when they are gone though! I have two bottoms ones being removed Friday, but they have started to heal and scab over so I expect those to feel a bit different than the upper drain removal! Good luck with that and your next surgery

  • Bookworm14
    Bookworm14 Member Posts: 176
    edited November 2018

    Girl279,

    Sucks that the drains did not work like they were supposed to. Maybe there was a kink or something that did not allow for fluid to pass? Hope it gets better for you soon.


  • Bookworm14
    Bookworm14 Member Posts: 176
    edited November 2018

    GAWarrior,

    Thanks for for that info. Hoping I can handle the treatments with few side effects as I have my own business and I really need to get back into the grove of things! Glad you handled the treatment well!

  • Bookworm14
    Bookworm14 Member Posts: 176
    edited November 2018

    DWiseley,

    I would definitely be ticked with the doctor not being worried about an open incision and drainage. Sometimes the MO may know and be able to speed up the process of finding and getting in to see a new surgeon. I hope it gets better for you soon.

  • Wised
    Wised Member Posts: 351
    edited November 2018

    Star 🌟 and Bookworm, I live in a small city and the closest cancer center is about 2.5 hrs. away. My R.O. has an excellent rep and I'll see him next week. It was very traumatic to say the least. I don't understand why the medical community doesn't try harder to avoid traumatizing it's patients during an already traumatic time.

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