Biopsy results in and still questions

Options
puzzled1
puzzled1 Member Posts: 34
edited November 2018 in Waiting for Test Results

My biopsy results say atypical ductal hyperplasia, radial scar, PASH, and some other things. Then it states that sample size was insufficient to rule out DCIS or other cancer. I knew I would be having an excisional biopsy/lumpectomy anyway but now I’m frustrated because there is still a possibility of cancer. Has anyone had this happen and after lumpectomy they were upgraded to DCIS or another breast cancer? I was sooooo hoping to be done with the wondering.

· Share on FacebookShare on Twitter

Comments

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited October 2018

    puzzled, in about 20% of cases of ADH there is an upgrade to DCIS (or invasive cancer) on surgical biopsy.

    · Share on FacebookShare on Twitter
  • puzzled1
    puzzled1 Member Posts: 34
    edited October 2018

    Thank you so much for responding, Melissa! I gather you are from Texas. I am too.

    · Share on FacebookShare on Twitter
  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited October 2018

    You're welcome! Where are you?

    The stats are about the same on upgrades from ALH/LCIS too, but I had nothing worse on my excision.

    · Share on FacebookShare on Twitter
  • puzzled1
    puzzled1 Member Posts: 34
    edited October 2018

    So glad you had nothing worse. I am from the Round Rock area. I’m guessing you are in Dallas.

    · Share on FacebookShare on Twitter
  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited October 2018

    Hopefully you won't either. Yes, I'm in Dallas.

    Here's a long thread from folks down in your area:

    https://community.breastcancer.org/forum/153/topic...


    · Share on FacebookShare on Twitter
  • CasM
    CasM Member Posts: 110
    edited October 2018

    Hello puzzled1

    My biopsy also show ALH mild to moderate and columnar cell hyperplasia. It appears we are in the same boat. Sigh. I have an appt. with a breast surgeon 10/29 to discuss pathology. I am not sure if we will wait/watch or do an excision/lumpectomy biopsy. I am also scared of an upgrade.

    · Share on FacebookShare on Twitter
  • puzzled1
    puzzled1 Member Posts: 34
    edited October 2018

    Hey, Cas! Sorry you’re in the middle of this too. I saw my breast surgeon yesterday and I’m having the lumpectomy next week. Really not a lump there so I get the lucky wire put in my breast to guide her. Yuck.Waiting to find out if it’s a Tuesday or Thursday. She said just watching and and waiting wasn’t an option . I’m high risk anyway for many reasons so that maybe why she doesn’t recommend waiting but my research shows radial scar or ADH is almost always removed. Better safe than sorry! Good luck!

    · Share on FacebookShare on Twitter
  • CasM
    CasM Member Posts: 110
    edited October 2018

    Hi Puzzled1

    Good luck on your upcoming surgery. I also saw my BS today and I will also be getting a wire guided biopsy. No date scheduled as of yet. I am hoping B9 results for you and no upgrade. She told me 5-10% could be upgraded to BC. So fingers crossed for us both. I was told 7 days for pathology results. That will be another hard/LONG wait!

    · Share on FacebookShare on Twitter
  • puzzled1
    puzzled1 Member Posts: 34
    edited October 2018

    Hi Cas! Glad you got to see your surgeon. Lucky us with the wire and surgery. Mine is this Friday. She said I would know in three days and 20 to 30 percent chance of finding something a cancer. We are hoping no surprises though. I pray that yours goes well and everything is good. ❤️

    · Share on FacebookShare on Twitter
  • CasM
    CasM Member Posts: 110
    edited October 2018

    Hi Puzzled

    I like the 5-10% upgrade chance better. ;) I know MelissaDallas stated above 20% for both ADH and ALH. I guess just be prepared and be relieved if it doesn't upgrade. Good luck on Friday!

    · Share on FacebookShare on Twitter
  • CasM
    CasM Member Posts: 110
    edited November 2018

    puzzled - thinking of you today !! I have my surgery on 29 Nov, the earliest my breast surgeon could get me in. Sending positive vibes to you for no upgrade!


    · Share on FacebookShare on Twitter
  • puzzled1
    puzzled1 Member Posts: 34
    edited November 2018

    Thank you, Cas! It was a long day. Glad you have your surgery date! Hope they ha e a cancellation and can get you in sooner.

    · Share on FacebookShare on Twitter
  • Snowchick
    Snowchick Member Posts: 34
    edited November 2018

    Puzzled, how are you doing today? Sending you a virtual ice pack & good thoughts!

    CasM, I have not yet scheduled my excisional surgery. I had LCIS and ADH results from core needle biopsy. I have a full calendar at the moment, was told that's fine & no need to cancel plans, just can't put it off more than 2 months :) I admit I worry about upgrade but my surgeon has not been panicked so I'm taking my cues from him. I do understand the stress between now and then can be much. Been there done that waiting on biopsy result. I can't function like that so I'm keeping faith on the favorable odds. I was told there's a 75-80% chance to find result without upgrade. 🙋

    The only thing I'm worried about is being awake. I thought it'd be under general anesthesia but my surgeon said it's not 😓 Saving my big girl panties for that :)

    · Share on FacebookShare on Twitter
  • puzzled1
    puzzled1 Member Posts: 34
    edited November 2018

    Hi Snowchick, thanks for asking. It’s been a little rougher than expected. Was hoping the pain would be like the mri guided and stereotactic biopsies but nope. I thought I was going to have twilight sleep too but when I got there it was changed because the area was bigger than expected. What you’re probably having will give you amnesia for the procedure and you won’t remember it - king of like during a colonoscopy. I know lots of people who have done that for a lumpectomy and said it was just fine. Good luck on yours

    · Share on FacebookShare on Twitter
  • Snowchick
    Snowchick Member Posts: 34
    edited November 2018

    Puzzled, sorry that things were rougher than expected :( I'm hoping that today you're feeling better than yesterday and that tomorrow you'll be feeling better than today. Sending good thoughts your way! please let us know how you're doing

    Yes, I was told wire excision I would be sedated but not under general anesthesia. My biopsies were excruciating so Im leary to be awake for any part of the next step. This is not my first rodeo, I had core biopsies and wire excision over 10 yrs ago. Different hospital, surgeon & circumstance-- wide awake and no problems. This time around everything has been very painful.

    · Share on FacebookShare on Twitter
  • CasM
    CasM Member Posts: 110
    edited November 2018

    Puzzled - so sorry to hear that the procedure was rougher than expected. That is NO FUN!! I hope you are feeling better today and got to rest a lot over the weekend.

    Snowchick - I didn't feel a sense of urgency from my breast surgeon either. I was hoping to get it completed quicker just for peace of mind. I like your thoughts on the 75-80% chance of no upgrade. ;o)

    · Share on FacebookShare on Twitter
  • Snowchick
    Snowchick Member Posts: 34
    edited November 2018

    CasM, I understand about waiting & peace of mind. Maybe scheduling could add you to a cancellation list so you might get in sooner? ✌

    Puzzled1, thinking about ya & hope you're on the mend.

    · Share on FacebookShare on Twitter
  • puzzled1
    puzzled1 Member Posts: 34
    edited November 2018

    Thank you, Cas and Snowchick, today is definitely better. Most of the swelling is gone and pain is minimal. It will just be black for a while. Y’all probably wo t have the problems I’ve had. I am old and have a chronic illness.I pray that both of you are able to have yours done soon with good results. I am supposed to get my results today

    Cas, I saw on another thread worries about the wire localization procedure. I was more worried about that than the surgery, lol! I didn’t need to be. They definitely numbed mine and there was only a sting for the needle numbing and a little discomfort with the positioning. They did take lots of pictures and reposition the needle a couple of times but there wasn’t pain because of the numbing. I was sitting up but I know that some places do this lying down. I wouldn’t worry about this procedure if I was you. You will sail right through it.

    · Share on FacebookShare on Twitter
  • CasM
    CasM Member Posts: 110
    edited November 2018

    puzzled1 - so glad to hear that you are doing better and I hope your results are favorable. Thanks for the encouragement on the wire placement. It is definitely my biggest fear and I am happy to hear that part of your procedure wasn't painful for you.

    · Share on FacebookShare on Twitter
  • Snowchick
    Snowchick Member Posts: 34
    edited November 2018

    Thanks for update, so glad to hear you're doing better! Hoping benign results for you. 🙏

    · Share on FacebookShare on Twitter
  • puzzled1
    puzzled1 Member Posts: 34
    edited November 2018

    Praise the Lord, no cancer! She took a large area with clean margins. Said I had a lot of stuff going on but no cancer. Praying for results for yall

    · Share on FacebookShare on Twitter
  • Snowchick
    Snowchick Member Posts: 34
    edited November 2018

    Puzzled!!! :))))

    Can you see me smiling from here??

    That's awesome news! I am praising with you!


    · Share on FacebookShare on Twitter
  • CasM
    CasM Member Posts: 110
    edited November 2018

    Puzzled1 - WOOT WHOOT!! I am so happy to hear on your results!! That is WONDERFUL news!!

    · Share on FacebookShare on Twitter
  • puzzled1
    puzzled1 Member Posts: 34
    edited November 2018

    Thank y’all so much! I will be watching and praying to hear you have good results.

    · Share on FacebookShare on Twitter
  • Salamandra
    Salamandra Member Posts: 1,444
    edited November 2018

    Yay!

    · Share on FacebookShare on Twitter

Categories