More anxiety NOW after chemo and surgeries

This woman in my knitting group at this wonderful retreat for women with breast cancer, said to me about a month ago...."OH, you're going to need more support at the end of your treatment --everyone always falls apart then..." Well first I thought "Thanks so much for that bit of info I have to look forward to...." but she's right! I still have radiation to go, but I don't need to see my surgeon and oncologist much anymore -- I'm on anti-depressants and have been since birth (just about) but find myself very emotional these past few days--doesn't take much to cry. I think also because my staging has been moved up to III since they found 16/17 lymph nodes with cancer---argghhhh

Hope to get the go ahead to swim again next week - not used to sitting around. What do all of you do to get your head out of the cancer cloud??

B

Comments

  • melmcbee
    melmcbee Member Posts: 1,119
    edited April 2017

    Hey Bclibrary. Im sorry you are having a bad time. Now is the time to set up a lunch date with friends. Meditate or oray. Stretching and yoga. Swimming. Call a friend and gossip lol. Read a book. Go get a facial or a massage. Pamper yourself. Watch a comedy. Im sending positive vibes your way. Gentle hug

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited April 2017

    BC, I totally understand. I am just a "high risker" for breasts, but I had ovarian cancer and was very ill for a while. I had lots of appontments for a couple of years. I was very emotionally dependent on my wonderful nurse navigator. I felt a very weird kind of insecure knowing I wouldn't be seeing them anymore, or in the "routine." I felt very cut loose. I think it is very normal and mine went away fairly fast

  • Denise-G
    Denise-G Member Posts: 1,777
    edited April 2017

    I have found most women are the most emotional after chemo and surgery ends and either en route to rads or going through rads. 

    I remember feeling like I ran a marathon, but doing rads was like -- oh no, I'm not done.  More to go.  These are normal feelings.

    You will get through them and then move on to other coping mechanisms. 

    It is all hard, but you will find your way.

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited April 2017

    I did real well through the lumpectomy, re-excision, and chemo. Then the BMX did me in-- due to severe tissue necrosis my chest was horribly disfigured and it took 16 weeks for the whole thing to heal. I was actually diagnosed with PTSD about two weeks after the BMX. My doctor put me on a temporary course of an antidepressant. I could tell a big difference within two weeks. I've been off the medicine since August and I'm doing very well now.

  • Lindzanne
    Lindzanne Member Posts: 94
    edited April 2017

    I am feeling the same way and am glad you posted because I almost started a similar thread myself. I am about 2 months out from finishing treatment--my crash has come in the last month, after finishing all treatment. I was so positive, strong and cheerful during treatment, and then in the last month I just lost it. Terrible anxiety, can't think about the future as I am afraid of the other shoe dropping, my own pathology was not very positive either. I was so surprised I feel like this after how strong I was the whole last year. It doesn't help that I was laid off from my job and I now have WAY too much time to think.

    I reached out to other survivors in a local support group and was surprised to get a huge amount of responses reporting the exact same thing. I hadn't thought about it this way before, but most people said, you had to steel yourself to survive and get through the last year, and now it's over, you have time to let go and collapse and actually feel all you had to close off to get through the last year.

    What was interesting to me is I work(ed) with domestic violence survivors and families in a housing program. The families would get there and finally be in a place of safety and yet the women often just collapsed in a puddle of anxiety and depression for about a month after. They would come to me in such distress and ask me why, when they were finally safe, were they experiencing such distress and immobility. I would tell them THE EXACT SAME THING my fellow survivors now tell me: you have TIME to experience your emotions. Before, you were in survival mode. And I would also tell them, there is nothing wrong with you, and you need to feel this in order to move on. I am trying to have the same understanding and empathy I had for them, with myself.

    Every day, I have anxiety, fear, and sadness. Every day I have been getting up, exercising, reading, taking care of the house, looking for a new job, walking my dogs, doing my nails, meeting friends, etc. I want to just stay in bed and watch tv. But I keep moving despite my feelings. I think it is good for me, and I think I am going to just keep moving myself through this. And then I have days I do let myself just stay in bed, and that's OK! What we have been through is essentially a trauma, a terrifying experience. We have to let ourselves feel that, as awful as it does feel.

    I am completely unashamed to rely on antidepressants and anxiety meds. They're helping me survive and filter out my extreme feelings and focus on healthy coping skills.

    I hope some of what I said helps. I don't want anyone to feel like this, but in a way it has been a relief to me to know that this is normal and that so many other survivors experience this--because I know I'm not alone, we can support each other, and there isn't something wrong with me.

    You're not alone. I'm sending you a virtual hug.

    Take care,

    Lindsay


  • MexicoHeather
    MexicoHeather Member Posts: 365
    edited April 2017

    I went back to Xanax. I think I like my new RO doctor better than the Oncologist. I didn't want Radiation PMRT, but now that I am there, I am going to love myself and be gentle with myself, too.

  • Cmurray
    Cmurray Member Posts: 2
    edited April 2017

    I was recently diagnosed with breast cancerand have had one chemo treatment, I have terrible anxiety every time I visit the oncologist. My next treatment is April 26, 2017. I had a hard time sleeping last night due to anxiety of the treatment and my hair loss. Any help? Suggestions?

  • Moderators
    Moderators Member Posts: 25,912
    edited April 2017

    Cmurray, we understand how this is! Support, like you'll find here, can be very helpful! Naturally, eating well, exercising, reducing caffeine, spending time with people you enjoy- all great to help you relax. You may find some additional tips on this page: http://www.breastcancer.org/treatment/side_effects/anxiety. It IS difficult. We get it, and are here for you.

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited April 2017

    Cmurray, a LOT of us here have suffered with terrible anxiety during our whole treatment. I know I did. I finally had to bite the bullet and get my doctor to give me an anxiety medication. It was the only thing that really helped.

    if you've tried everything else and nothing is working, don't be afraid to ask for help. Taking medication is not the easy way out. But it will certainly help you cope. And it's not forever.

  • Castigame
    Castigame Member Posts: 752
    edited April 2017

    Cmurray,

    I agree w mustlovepoodle. I am currently on Ativan prescribed by my onco. It helps w sleep, anxiety, mild reduction of fast heartbeat which probably triggered by dose dense chemo and nausea. If it was not fot ativan, i may have to rely on steroids. Regards to sterpids, i dont havr to take any at home bc ativan does replace it for me.

  • HelenWNZ
    HelenWNZ Member Posts: 485
    edited April 2017

    Hi everyone, I was diagnosed a year ago and thought that I had pretty much cried a lake full of tears - but managed to carry on as you do. I am finding things really hard now as I approach my year anniversaries. I say in plural. The year since going to my GP with a lump, A year since by biospy, I have just had my annual mammography and now find myself waiting for results which pretty much makes me so anxious I cant concentrate on much else. This week it is a year since my diagnosis and so it goes on. Thankfully I have finshed Chemo and Radiotherapy but being triple positive I still have 5 herceptins to go and I have started on my years of Letrozole. I have lympdema which is under control. So I guess I should count myself as lucky to be here. I just wish those damn tears would stop.......I hate being sad..... I used to be a great planner and would you believe, for the first time in my life I have a couple of dollars in the bank - I have been told by my other half I can book a holiday anywhere I like and I cant as am waiting for results and I have a bloody pain in my neck that I need to get checked out first.

    Sorry to whoever reads this as it is a bit woe me.

  • HoneyBeaw
    HoneyBeaw Member Posts: 212
    edited April 2017

    I to have the same issues, Horrible anxiety which is worse since my chemo treatment has ended and I only see Ong every couple mts. I worry about everything including if I had the proper treatment, which I still plan on getting a second opinion about . I have resorted to taking meds for anxiety which has helped some but does not get rid of it totally. I try to stay super busy from cleaning and painting everything in site to ripping up the yard when it didn't need it . I so wish I was one of them woman that could just move on like its nothing ......I just don't have that ability

    I still have to get a Thyroid scan as it has lit up on two different pet scans , which two Dr thinks its nothing both stating they see this all the time and its nothing but still its keeps my nerves on edge, I can only Pray it is nothing .

    I have to say going back to work has help, as I do not have as much time to think about things and working on a different project every night seems to help, that way I fall into bed to tired to get through my nightly prayer list . I wish you all well and if anyone has any natural solutions that they are tryng and working please share

    Huggs

  • Daczahow
    Daczahow Member Posts: 45
    edited June 2017

    @lindzanne that was worded perfectly! I would have to agree we are in survival mode. And afterwords I don't think our minds can process what we've gone through! It's also hard to explain this ... because unless you have been through this it is so incredibly difficult explain to someone!!! know matter how supportive they are!! I keep telling myself to live in the PRESENT because that's what I should be doing, but I can't seem to manage it. Staying busy is the key ! But when it's hard to get out of bed in the morning ...staying busy becomes a challenge.


  • Denise-G
    Denise-G Member Posts: 1,777
    edited June 2017

    It is certainly true for most women - it was for me, my sister, and hundreds of women who have written me through the past years.

    I cried the only tears I really cried all between chemo, rads and during rads. I remember going for the radiation consult and the RO was so kind telling me I had been through so much. I burst into tears and cried my eyes out in front of him. Looking back, that time, although emotional, was very healing.

    You have no idea who you are anymore. That is such a big part of it. You are not your old self, you are not something new yet, it is so hard to figure out. It takes time, much time and much patience, but you will get there!

  • Lindzanne
    Lindzanne Member Posts: 94
    edited August 2017

    I haven't been on the site for awhile and saw this had some new posts as it was marked on my favorites. I've had some great months since I last posted but am really, really struggling this week. We lost a member of my local support group, she was so strong and healthy and then went so fast from bone mets. It happened a couple of weeks ago, and sent my anxiety through the roof. It also coincides with me trying to set up a follow up appointment with a new onco--I got a great new job in May with good insurance but the insurance company really messed up and didn't get my insurance going until 2 weeks ago so I am late for my follow up! And I loved my old oncologist but can't go to her because my insurance won't cover her and I don't WANNA switch! For some reason the follow up appointment is terrifying me despite having no tangible symptoms or concerns. I know it's from this woman dying----im back to thoughts of, it's just going to come back, what's the point? I hope someone still checks this thread, I could use some hugs and encouragement to get this appointment done and keep moving, and to see the value in it all. Hugs to all of you, too.

  • HelenWNZ
    HelenWNZ Member Posts: 485
    edited August 2017

    Hi Lindzanne - its been such a long time since we have chatted. So it was a such a nice surprise to see your name pop up. We both started this journey more or less at the same time and both had a pretty ghastly path report but hey here we still are fighting the good fight. For me its been a very long process and last week I had my last herceptin so have still been having three weekly infusions all this time. Its been such a long road I was glad to see the end of things in that department. Im on Letrozole and finding things very difficult in the painful bone department but I am determined to keep at it for as long as I can. My hair grew back very gray and curly, my fingrnails are pretty gross but I guess time will fix that. I find my moods are up and down, but I am managing to have less tearful moments than was the case last year. I had a friend who was a month older than me pass away a few months ago whose kids are the same age as mine - that really brought things home and put me on a real downer for some time. But with three kids I have to keep it together. My family and I have planned to have Christmas in the UK this year and I am really having trouble believing that it might happen...it is so had to make future plans. But here we are 4 months out and we can start getting a bit excited. My daughter turned 21 last week so we celebrated in good family syle. I have to mark all the special occasions these days, but the downside is I have to keep reminding my family that there are still 2 more kids to have 21sts and if Im not here then its up to them to make sure it happens. My youngest is 12 so thats 9 years away, then I get a bit mopey as the stats are not that great for me..... and then I have to mentally give myself a good kick to stop the bad thoughts.

    Anyway enough of me, I am glad you have a new job with good insurance - which from what I read is so important in the US. Our treatment is through a public health system which can be a bit hit and miss. I do have private surgical insurance and have decided to keep with my private surgeon for my checkups mainly for consistancy.

    Are you doing anything health wise to help yourself. There are so many thoughts on diet, excercise.. the list goes on. This area I am struggling with as well.

    Take care of yourself.

    Regards Helen

  • Brightness456
    Brightness456 Member Posts: 340
    edited August 2017

    Good morning ladies. I'm so glad this thread got resurrected, as I suspect my emotions will be one of my biggest issues. I just had surgery last week and I'm waiting on my new pathology report to determine treatment plan. I'm trying to focus on healing and wellness right now. Knowing my emotions will most likely continue to flare at different times during this process helps, as I don't do well with the unknown. I'm a preparer, and I was totally unprepared for this whole ordeal. You can imagine how I handled that.

    I've never taken mood stabilizers, but my doctor prescribed me some xanax before surgery. I was too afraid to take them and had planned to discard them, but maybe I'll hold off in that.

    I'm sorry for your losses and fears, but I'm so thankful you're able to share with others. Have a wonderful day

  • Lindzanne
    Lindzanne Member Posts: 94
    edited August 2017

    Hi Helen, it's so good to hear from you, and while I wish you never had to deal with any of this, it is helpful to hear someone I can relate with. You sure had a longer treatment road than I! I am glad that you have had some positive things in your life recently and you reallyu sound well! But I have the same thoughts thinking about the future! I'm starting school for a graduate degree in a month and keep thinking, what's the point? I need to give myself a good kick too! Im so grateful that you are doing ok today. One day at a time, eh? Warm hugs to you and your family.

    Brightness, I remember the waiting for the path results, it was not easy. I'm a preparer too so I can relate. Sounds like you're being gentle to yourself which is good.

    I use an antidepressant and anti anxiety meds. I would hang on to that prescription, not because I think something bad might happen, but because I've learned my anxiety flares at the oddest times and one pill can break the loop in my head and get me back on track. Ive always been able to only use them as needed. It's just one tool in this whole crazy deal and there's nothing wrong or weak with leaning on it if you feel comfortable with that! Best of luck, sending warm thoughts your way!

  • DancingElizabeth
    DancingElizabeth Member Posts: 415
    edited August 2017

    Hi Everyone...it has not been easy!! I worry a lot! And, my psychiatrist has dx'd me with PTSD... I worry ALL the time and *hate* when my DH brings up "where we will live after retirement". Geez...I just hope I'm here - next year!! I have spent money that I don't have - because I keep thinking - oh well - I probably won't be here in the near future. But, then as the months go by, my spending is catching up with me...

    Lindzanne and Helen - it is so good *seeing* your names on here...I too was dx'd and went thru treatment around the same time as you...sorry to hear you are feeling the way I am though!!!

    Heart

    Helen - my hair grew back curly and grey as well! It was already sort-of greying - but - always very thin and straight. I never really liked it before - as it was too thin and straight. Now I don't like it because it is wayyyy too curly and have an imbalance of more hair in back - than in front!

    Sending (((hugs))) out to Everyone...

  • DancingElizabeth
    DancingElizabeth Member Posts: 415
    edited August 2017

    Brightness - I'm sorry you're struggling too...mood stabilizers are very helpful. I have had constant issues with anxiety. And, recently started on Buspar and feel it is helping...

  • Therealsvveetgirl123
    Therealsvveetgirl123 Member Posts: 19
    edited August 2017

    Hi, I am just curious if your anxiety has caused u to have a shaky feeling on the inside of your body? To explain it, the feeling I'm talking about is like if u drank too much caffeine feeling?

  • HoneyBeaw
    HoneyBeaw Member Posts: 212
    edited August 2017

    Therealsvve

    I know exactly what you are talking about cause I have the same issue. Not always but somethimes something will set me off and I actually feel like Im shaking from he inside out .I though I was having a heart attack the first time it happened. Dr told me to practice relaxation exercise and trying to calm myself with breathing . I take anxiety meds as needed but those ones I do not always feel coming on it can be a cancer commercial on TV that sets me off ......I have all those dam commercials.

  • mistyeyes
    mistyeyes Member Posts: 584
    edited August 2017

    I have finished chemo and radiation. I am still getting Herceptin and will get hormone pills soon. I get scared and anxious because if I am not fighting it I think it will come back. I really don't want to live my life afraid that every twitch I feel is cancer.

  • MishelleRose
    MishelleRose Member Posts: 1
    edited November 2017

    so appreciative of this thread. Today I am one week done with chemo. Surgery is next week. Been having the worst anxiety. The hardest part is not knowing if the symptoms are really anxiety or something to be concerned about. Granix shots really do a number on my nerves.

    So, reading through this thread has brought great comfort. Yes, it’s normal and yes, it’s okay too.

  • azrescue
    azrescue Member Posts: 116
    edited December 2017

    I was so happy to see this thread & read through everyone's comments. It's helpful to know that once again I'm not the only with these feelings. I'll be two years from my diagnosis the end of January. My oncologist kept warning me about the potential depression & anxiety after treatment. But I kept pushing on, thought I was doing well. Until, this past checkup. I had to have an MRI. And that just triggered me. My anxiety has been high, some depression. I like others will be planning a future event & find myself stopping & thinking (what if I'm not here for that). Since that MRI, I've just had so much additional stress ~ my stepfather is stage 4 kidney/bladder cancer; a young cousin is stage 4 anal cancer; a member of a support group passed away; & another just found out she has a second type of cancer (not mets); the anniversary of my dad's passing; and almost two years since diagnosis. It just all got to me so much. So today I took my first Lexapro. That makes me anxious too. Yes so full of irony - taking a med that could potentially help my anxiety/depression caused me anxiety. 🤔

  • LoveLau
    LoveLau Member Posts: 105
    edited October 2018

    what anto depressant,? Thanks.

  • rachelcarter35
    rachelcarter35 Member Posts: 368
    edited October 2018

    BC requires a time for grief afterwards. It teaches us that life can change on a dime and that scary. It's treatment is brutal. I think also though that it can teach us about our own strength and we need to try to remember we've gone through this to live. I mean really live. I have full on panicky moments worrying about reoccurrence but want to spend this precious life not worrying all the time. I don't want this BC DX to steal one more precious moment. In defiance I try each day not to be depressed. It doesn't always work but it's worth a try.

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