Just found out.....terrified!

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Christine1975
Christine1975 Member Posts: 36
edited October 2018 in Just Diagnosed

I was just diagnosed yesterday with Invasive Ductal Carcinoma, tumor grade 3, er+ and pr+ HER2 negative. I met with the surgeon this morning and will be having a double mastectomy in November. Will not know about chemo until after we find out if it has spread to my lymph nodes. My tumor is less than 5 cm., so that is encouraging. My mind is completely overwhelmed right now. I'm so glad I found this site. Anyone is welcome to chime in with any and all advice. Thank you in advance.....sorry this is so scattered, I'm just so overwhelmed right now. Thank you......

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  • MissouriCatLady
    MissouriCatLady Member Posts: 977
    edited October 2018

    I found out I have Invasive Ductal Carcinoma on October 17th, Christine. I have found a lot of support reading the posts here. I can tell you one of my co-workers had a double mastectomy and reconstructive surgery and is back at work doing well. Be strong and keep the faith. I will feel better knowing what will happen to me (I find out tomorrow). My family and my co-workers have helped me a lot.

  • CaliKelly
    CaliKelly Member Posts: 474
    edited October 2018

    Hi! I was diagnosed in 2015, finished up all my treatments about a year ago. I m stage 3, my cancer was also in my lymph nodes, so had chemo, then surgery, then radiation. I was in a state of shock at first, I was a health and fitness"nut", so figured I was the last person to get cancer! Terrified till I got a treatment plan in place, then just, step by step getting through each one.I had all my Dr's in one place, a teaching hospital, so that made it easier to get the plan, tests, appts etc.in place.Tried to keep my life the same,even while in treatment went to the gym as much as possible(My happy place, the gym!,weird I know) Chemo, a challenge, radiation, no big deal, just a drag going everyday, surgery(surgeries, incl.multiple reconstruction procedures) to me, I hate hospitals and anesthesia, not fun, but fairly easy to heal from. Do your exercises after mastectomy to regain range of motion! Listen to your Dr's, but do your own research, they don't know Everything! Best of luck girlfriend! You'll get thru it, and you'll bask in the awe and admiration you get for being so STRONG, SUCH A WARRIOR! 😉

  • CaliKelly
    CaliKelly Member Posts: 474
    edited October 2018

    And anything you're going through, I've probably gone through as well so feel free to message me if you need advice, info or encouraging

  • Moderators
    Moderators Member Posts: 25,912
    edited October 2018

    Christine, welcome to Breastcancer.org,

    We're so very sorry to hear of your diagnosis, but we're really glad you found us. As you can already see, our Community is an incredible source of information, advice, and support -- we're all here for you!

    Please come back often, ask lots of questions, and get the inspiration and answers you need here, anytime, day or night.

    We look forward to hearing more from you soon!

    --The Mods

  • Yellow15
    Yellow15 Member Posts: 8
    edited October 2018

    hi christian....i felt the same way when i was diagnosed in Feb of this year....i was triple neg and had to have 4 rounds of chemo along with 20 radiation treatments...i had the tumors removed along with 1 lymph node....i. Done with all treatments as of july 21st of this year.....looking back this site and all the suppoet from family and friends got me thru this process.....you will get thru it as well stay strong follow doctrs orders orders......and go kick this monster in the butt......i was told that in the the beginng but aftr i cried thought about my family and kids and grandkids i was ready to take back my body and life....you have sisters here and we will get you thru this ....god bless your in my prayers😊

  • star2017
    star2017 Member Posts: 827
    edited October 2018

    I know how you feel. I promise it’ll be easier once you have treatment plan in place. If you have questions, please ask

  • elleredux
    elleredux Member Posts: 45
    edited October 2018

    Christine,

    Just wanted to give you a word of encouragement from someone who is 6 years out from diagnosis. I remember how overwhelmed I felt, and for a while it was hard to imagine that I wouldn't always feel that way. You will find that help and support shows up along the way, and you can always find it here. Sending lots of hugs xo

    Sarah

  • PurpleCat
    PurpleCat Member Posts: 358
    edited October 2018

    Hi Christine - I'm not that far ahead of you: had lumpectomy, then sentinel node biopsy, and am waiting to make the plan for the rest. The place where you are is so frightening because it's all so unknown: you know it's cancer, but not how bad, and it's hard to make any kind of plans for the future, even getting concert tickets for 3 weeks away. My best advice is to just avoid doing any of your own research right now, because you just don't have enough information about your own particular situation and will just end up scaring yourself to death over scenarios that have nothing to do with you.

    This horrible dark waiting will end, and you will discover how strong you are.



  • Lady-shammrock
    Lady-shammrock Member Posts: 2
    edited October 2018

    Hi Christine! I completely relate to how you feel as I think most of us here do. I was also recently diagnosed and underwent bilateral mastectomy on 10/08/2018. The waiting from the time you are diagnosed until treatment is so difficult. It was the hardest part for me. Even though I recently had my surgery and am recovering well I still experience many ups and downs. One thing that has truly helped me is knowing "you are not alone". A few short days after I was diagnosed I was watching the Today Show and an episode came on from "Fighting Pretty". It got my mind and heart going immediately because I realized I truly wasn't alone. I also recently discovered this site yesterday and it has helped so much. It is easy to preach to stay positive and strong, but I think that is what is helping me most. I will be undergoing surgery again on Tuesday since they found I have a genetic mutation and my ovaries need out ASAP (another long wait until pathology comes back). The best advice I can give you is read and educate yourself as much as possible (I was reluctant to read anything in the beginning). I found a somewhat comforting and humorous book "Chicken Soup for Breast Cancer Patients". I believe there is more than one edition. Reach out and ask for help. There is so much help out there as I am starting to find out myself, especially from those of us who are or have been experiencing the same emotions, symptoms, treatment, etc. I am so grateful that there are Breast Cancer Support Groups and hope to become a part of more than one. If there is anything I can do, or if you just need someone to listen please feel free to contact me. Best wishes, Marcie

  • Rah2464
    Rah2464 Member Posts: 1,647
    edited October 2018

    Christine we all know how this journey feels. I know the wait for me to get my IDC out felt interminable. I, too had a double mastectomy with immediate reconstruction. Once the surgery is completed, you will know more about what your treatment plan will be. You can do this one step at a time. Before your surgery, take care of yourself, eat really well to get your body strong so that you can heal quickly. And don't be suprised if your emotional state swings all over the place. This diagnosis impacts your body and your psyche. There is a wonderful community here that will help you each step of the way. God Bless and wishing you well.

  • Christine1975
    Christine1975 Member Posts: 36
    edited October 2018

    Wow - I can't thank you all enough for the outpouring of support, encouragement, and strength! I admire each and every one of you! Right now, the next step for me is an MRI and genetic testing on Monday. The following Monday, November 5, I meet with my plastic surgeon, then the BIG DAY, surgery on November 12. I have so many thoughts reeling through my mind and I my emotions swing all over the place;I go from feeling positive and hopeful, to imaging the worst case scenario and feeling like my life will be cut short. I worry about things like, "will I ever be a grandmother?" , "will my husband be a widow in his 40's"? etc. I know it sounds melodramatic, but I just can't seem to get a handle on all the feelings I have right now. I know I will feel better once I have a definitive diagnosis of staging and treatment plan. I worry about chemo and losing my hair (so sorry if that sounds vain - I hate myself for worrying about something so seemingly trivial, but it truly does bother me). I think I'll look and feel 'ugly' and my husband won't be attracted to me anymore. Between having my boobs chopped off and going bald, I certainly won't be feeling 'sexy' lol. I know it sounds so ridiculous. I worry that my boys (I have 3 teens) will not see their mother live long enough to see them flourish in their own lives. Anyway, I am rambling .......sorry ......I am so glad I found this group. It seems like such a supportive and soft place to land. I wish you all the best and look forward to sharing our journeys together....a journey none of us chose, but we will no doubt emerge stronger than ever. Hugs to each of you!!! <3

  • star2017
    star2017 Member Posts: 827
    edited October 2018

    What you're describing is totally normal. I remember talking to my husband about how I wanted him to wait until the kids were older before dating/remarrying. He refused to engage in the discussion, but I needed to get it off my chest.



  • Moonbeam1969
    Moonbeam1969 Member Posts: 1
    edited October 2018

    I was just diagnosed with Grade 3 invasive ductal Carsanoma. My doctor said I caught it early from self exam. I meet with surgeon on Monday to go over everything. My family has No history of Breast Cancer. I had a hysterectomy a year and a half ago and got put on Estradiol 1 1/2 mg once a day. I have read that it can cause breast cancer. I am not even 50 yet and I'm freaking out on this nasty diease. I just need to know what to expect from the surgeon? I know it's a consultation but a woman called me from the hospital to tell me he will give me options? I have no clue what to do. I'm hoping they can remove the lump and a little radiation on the area. Anyone has any advice please let me know. 😨😨

  • MastectomySister
    MastectomySister Member Posts: 19
    edited October 2018

    moonbeam, I’m so sorry you have to go through this. All I can say is that it is normal to feel panicked and sad and scared. But it will get better. I think once you know more and have a plan, you’ll feel better. When I was diagnosed in July, I focused on what I could control, which was my eating. I switched to a plant based diet to starve the cancer cells and I drink a daily antioxidant smoothie (my doctor wrote a book about it). It helped me to focus on that. Another thing I’d like to recommend is getting more than one opinion. I had no idea how different doctors can be in what they recommend. I’ve seen it firsthand and am now a huge advocate of two or three opinions. You’ll have a lot of upcoming appointments. Take it one day at a time and know you aren’t alone. Sending you hugs.

  • Rainbowgirl13
    Rainbowgirl13 Member Posts: 1
    edited October 2018

    Hi Christine,

    I was diagnosed just over 3 weeks ago with the same Ca but grade 1 - 2. Everything has happened so quickly ,I have had everything scanned and examined and enough blood taken to satisfy any vampire.

    Like you i was terrified initially and almost could not see the point of carrying on, but after fantastic and kind treatment by my DRs and specialist nurses,I feel quite positive and just want chemo to start and then surgery to get to get this parasitic little devil out of me. I have been in cancer nursing for nearly 30 years on the pall care side of things ,and have seen so many huge advances made in Breast ca management, of all the cancers to be landed with we have got one of the best prognosis wise and the best to treat

    So ,good luck, we will all prevail in the end . It's just the getting there

    Love and best wishes to everyone going through this

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