I'm approaching 2 years

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neverending
neverending Member Posts: 5
edited October 2018 in Waiting for Test Results

Hi there-

I'm not sure what sort of advice I'm searching for - perhaps just some words of encouragement?

So December 16' I found the first lump, went to see my primary and he was very concerned by the feel and color of my breast. So he referred me for a mamm, ultrasound, and to meet with a breast surgeon. Both the mamm and US came back benign. Shortly after that I discovered my second 'cyst' this time going straight to the breast surgeon, she removed this cyst without biopsy, exclaiming "this things just go away on their own usually" as she tossed my tissue in the trash. Shortly after that I began having discharge from the same breast (and never from the other)... and went back in yet again, she sent me for another mamm and ultrasound: both neg. She then sent me for a breast MRI STILL NEG and not just for breast cancer but for anything that might cause my pain and discharge (by this time things had began feeling lumpier or thicker rather.)

They assured me that my issues were hormonal and sent me to endocrine. The endocrinologist was positive that my discharge we milk and that my blood, when tested, would show high levels of prolactin. Well, I just got my hormone panels back and the endocrine specialist was wrong. My prolactin is quite low. Furthermore, I am having unreal pain in my right arm and armpit. as well as minor swelling in my right arm which seems different daily. I am also having bad neck pain on that side. I have an appointment coming up AGAIN, on the 29th with the breast surgeon... But I honestly feel as though she might have signed my death cert.

Anyone else have these symptoms? Anyone eventually diagnosed? I feel like I know deep down in my gut that something is so so wrong in there - I just fear with these issues going on for two years that if they were wrong initially, I may have invasive cancer by now.

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