New Online MBC Registry for Patients and Researchers!
I am delighted to announce that a new online registry that
will benefit MBC patients and researchers is now ready for use!
“MBC Connect” is a free mobile and web-based app into which
MBC patients (or their caregivers) can enter treatment and lifestyle
information, and from which they will receive personalized alerts about clinical
trial opportunities, webinars, and events.
In addition, patients and researchers will be able to access de-identified
patient data in order to view trends, and each individual will be able to compare
their situation to others.
MBC Connect is sponsored by the MBC Alliance whose goals are
to (i) advance MBC research, (ii) increase access to MBC information and
support services, and (iii) increase awareness of how MBC is different from
early stage breast cancer.
Interested in looking at some real-world data? Visit: https://registry.mbcconnect.org/researcher#/analytics
(Note that towards the
right, under Survey, you can select the type of information you’re curious
about (Demographics, Disease History, Quality of Life, etc.)
To join the registry, visit: https://www.mbcconnect.org/
See you there!
Anne
Comments
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You rock, Bestbird! Going to sign up ASAP!
Hugs and prayers,
Claudia
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Thank you, Bestbird. I'll get right on it 😊
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Wow, thank you sooo much
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Bestbird, thanks so much for the info and links! I plan to look in to this!
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Done.
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I completed the surveys a few days ago. It is easy to complete the surveys. It would be fantastic if everyone with MBC completes the survey because the information gathered will benefit all of us.
~Kar
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Done. Thank you for posting the link.
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